sen help please!

[Mummyk231]

Hi mums, my LG will is almost 5 and has recognised issues that we currently see a paediatrician for. She has fine and gross motorskills problems some of which caused by hypermobility syndrome which causes her leg pain also, memory issues, behaviour problems, poor listening and understanding, concentration and emotional problems. I've recently been having trouble getting her to school because she gets so upset she throws herself about refuses let us get her dressed and then takes her clothes off again she tells me she don't like school, that people have pushed her and are horrible to her, it's really distressing as a parent to see her like this. I had meeting with her school this week I arranged this to try to find out what was causing these issues who told me as far as they can tell she's not being picked on, she is struggling as her works getting harder and they have had to move her to the bottom group for reading and writing because of this and I belive she's starting to really find leading difficult because of the issues she has and also she's starting to notice she's not doing as well as her peers. The school try to give her a small amount of 1 to 1 but they can't give her no more though they have said all along that's what she needs because she's not 'funded' they can't diagnose what's wrong with her until she's 7 but the paediatrician knows there is something. How do I get the funding for her so she can have the extra support she needs? I'm worried about the mental and physical impact this is having on her both now and in the future and I just want to help her but I've no idea where to turn. Can anyone offer advice please?

Also she's having s&l therapy at school x

You apply for a statement (a process called statutory assessment). Look at IPSEA website for info and initial letter to start the process you send the letter to the SEN team at the Council. Also download the SEN Code of Practice 2001 (not the 2014 one which is still draft).
You will almost certainly be told by the Council its too soon to assess as she doesn't have diagnosis, school has not put in 1:1 it should yet or accessed all the support etc etc. You ignore this and appeal to a tribunal.
In the meantime the Council will ask the school for evidence of what it has done so far and tell it if it thinks it needs to put in more e.g. more 1:1. You keep the tribunal on the go until you are satisfied the needs are met and if not you go to tribunal and ask the tribunal to order the assessment.
Schools must fund the first £6000 of 1:1 support now and it sounds as though the school is not funding anyway close to this. So the school is not being honest in telling you it can't put in more 1:1, what it means is it won't put in 1:1. (Thats not to say schools are not short of funds, but thats not your problem, the govt says they must put in £6000 so they have to find the money and if they genuinely don't have enough in the budget the council has contingency funds to give more)
At the end of the day no child should be left to fail because of council or school policies about having to jump through hoops. Whatever the school and Council policies about funding say, the law is based on need and a child must have their needs met. The only way you can enforce the law is to apply for the assessment and if its refused appeal.
It does not say anywhere in the law or code of practice a child needs a diagnosis before more support / a Statement is put in place.
You should also contact the Council educational psychologist yourself and ask for the EP to assess your child. The school can do this but you should bypass school and do it yourself. Put all requests in writing, keep emails and notes of phone calls and keep a diary. If you end up at tribunal you will be able to evidence that you have been asking for help for a long time.
You can get help e.g. caseworker from IPSEA to help with all of this.

thankyou very much for your advice its been very helpful and informative. i do feel that the school is not doing all they can for her though they say they are, they fail to keep me updated on the progress she is making in class and also with her s&l therapy only through arranging the meeting with the head this week did i find out that she was poorly achieving i dont doubt that without this i would not have known, i ask every day when i collect her how shes been and they always say yes shes been fine which it appears to not be true, they never seem to have the time to talk to you either even parents evenings are too short to discuss concerns. she is currently on the waiting list for another better achieving school.
i have gone on to the web site you suggested and had drafted a letter to the LA. im going to log everything from now on im determined to do everything i can to get her the help she needs. thankyou once again for the information and advice you have given its very much appreciated