What needs to go in a support letter to go with dla form?

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My dsis has offered to send a letter of support to go with the dla form I've been filling in.
Ds doesn't have a diagnosis yet, we're on the long waiting list, so I understand any information to go with the form is helpful.

What sort of things does she need to put in the letter. She sees ds once or twice a month and speaks to me on the phone most days.
Thankyou :)

My portage worker did the letter for me. She mentioned we need to go to quite a few appmts, need to take taxis for them, nappies etc

Do you have any notes from professionals? Pead etc copies of those as good, could nursery write something?

Sorry, lurking and learning. Can you claim dla without a diagnosis?

does she have DC? maybe she could write then how much more support your DS needs as compared to her own DC .

Thanks polter ... that's a great help. Another question if you don't mind?.. can you claim dla for each child with a problem? I'm amazed you can claim without a diagnosis .. I'm

It's done. I have a letter from ds's paediatrician, a work report from the ed psych (which doesn't say much, but I suppose is evidence that she has been involved)
The SENCO has written a statement in the form, and has also written in the section about support needed at school.
I've included some diary entries from the beginning of the year, and a link to a video we managed to get of him.
She has dc, but ds masks things around less familiar people, so she hasn't seen him how we see him (angry and violent), but I could ask her to put in a comparison with her own dc.

Thank you :)

Dla is based on need, not on dx (a lot of children with SN do not have a formal dx). In reality though a dx will probably help with your claim. are you under a paed or Salt or so?

Dla is per person/child, i.e. one claim per child.

Thanks choc (that sounds like it was aimed at my questions) .. I don't want to hijack OP thread. DD2 is being assessed by CYPS, been speaking with SENCO about DD1 and DS2. Will continue to lurk. Thank you.

Thanks polter

Frazzled, hijack away :)

Had a rare night where ds has settled before 9
Not quite sure what to do with myself now!

Try this fav

Frazzled, we are on a two year waiting list until assessment for ds, but I lurk in the SN boards and learn loads from it.

Thanks polter and fav . I've stupidly listened to school and GP for 6 years. Being told my dd is just shy, fine at school. I've only just summed up the courage now to act on MY instincts. I should have been more forceful years ago. I don't like to remember DD early years at school. They were horrendous.
I watch the SN threads and then get angry and upset with myself for not doing something sooner. Everyone seems so clued up on everything! When some posters describe their dc and their problems, it's like they're living with my dd. It amazes me how some get their problems recognised far sooner than others. We've really, really struggled with dd .. I try to focus now on the fact that I'm going through channels to get her problems recognised.

Frazzled, I know what you mean about others being clued up. It's like reading a foreign language sometimes!

We've had nearly three years of life being hellish with ds, family and GP have all believed it was dh and I not dealing with things properly - we have enough parenting books to open a library, nothing has worked. I had to sit in the gp's office and beg him to refer ds to the developmental paed, and even then he sent it to the wrong place!

The important thing now is, as Polter said, things are progressing, slowly, but we are seeing little signs of improvement.

I can't shake off the feeling that we are scroungers, applying for dla, but we suspect that a bit of extra money would make a huge difference to ds's life, so we have to do it for his sake.

That's so true fav ... I think I have a valid claim (after reading here on MN) for 3 of my 4 dc. Definitely for 1, assuming for other 2 also. But claiming for 3 makes me feel like a fraud! Even though they have their problems/difficulties. I thought you had to have a dx first though. So this thread has enlightened me! I'm trying to convince myself that IF we're entitled to something then I should just accept it graciously. My main priority was/is getting them all dx ... now I'm going to do it all at once .. dx and dla.
Thanks all for your time and advice.

Thanks polter .. I'll do 1 application at a time. I don't know if it'd be appropriate for your ds but my 2dc that have just been diagnosed with sensory issues have been prescribed coloured lens glasses. They made a huge difference immediately in the opticians, can't wait to get their glasses in a week and a half.

Mine both have visual issues - dd, the words all move around on the page, ds, his words go 'puffy'. When getting tested for this problem only, they were diagnosed with sensory processing disorder. Unbeknown to me, because their senses aren't working together correctly, they have other issues - ds isn't hearing properly as the brain isn't connecting that sense, although his ears are working perfectly fine if that makes sense. Their co-ordination is affected, their sense of touch and taste also. When wearing the coloured lenses everything comes together so not only is their visual problem sorted but so are other things that we weren't even aware of!