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SN children

Here are some suggested organisations that offer expert advice on special needs.

Im desperate, where do i go from here?

16 replies

Minxyminion · 08/05/2014 16:50

Sorry for the long post but feeling so stressed out right now.
My daughter is due to start school in September of this year. She currently is in a special needs nursery. Is globally delayed and is on the waiting list for an autism assessment. She also has hypermobility. Her play and social skills are very delayed. I was told last year to look at possible school options for her and looked around mainstream school, SALT units, autism unit, developmental assessment unit and also a moderate sen school. I don't think she is ready for mainstream whatsoever, and this was also echoed by her EP. The autism unit I didn't feel was suitable either as she is trying to communicate and many of the children in the unit didn't want to communicate- although the unit itself was wonderful I just couldn't imagine her there. I went and viewed our local sen school and thought it was wonderful. My daughter would benefit from the small group setting and everything that they had to offer there and had my heart set on getting her a place. We had previously gone to look at our local SALT unit and I left feeling extremely underwhelmed. The head of the unit showed us around the school and said at break times and lunch times the children from the unit mixed with the mainstream children and were supervised by a lunchtime assistant. The playground was huge with a lot of high climbing equipment and dd has no fear and would literally just climb and either fall- due to hypermobility or jump from the top. She also will only be 4 and there will be children of 11 in the same playground as her and she is extremely vunerable- she is quite "typically autistic." The head of the unit went on to say the children from the unit wear "hi vis" jackets to make them easier to spot amongst the other children- which I think segregates the children from the mainstream children. Carried on looking around and a massive gate that led from the playground onto a 30 mile an hr main road had been left open and any number children could have got out. Once I pointed it out the teacher did quickly go and lock the gate and apologise but didn't take a register to see if any children were missing. For these reasons I didn't think it was suitable for dd.
However, she was offered a place in January this year at the speech and language unit and I didn't know what to do for the best. I rang and spoke to a SEN coordinater who told me that if I accepted the place at the unit she wouldn't be considered for a place at the SEN school, but a decision couldn't be made on that placement until May. I agonised for a month before refusing the place. Fast forward to now and iv just found out that she hasn't been offered a place anywhere else and they are looking to place her in a mainstream setting with 1:1 support. What are my options?? How do I appeal? Can I legally keep her home seeing as she is only 4? She has a statement which is something. I just don't know what to do and fear for her happiness and safety. Thanks for anyone who has managed to read all of this. Im just so stressed out and upset and feel my dd has so much to cope with already, as we are moving to a house with disabled adaptions and I am also 30 weeks pregnant. Just want to run away.

OP posts:
babiki · 08/05/2014 17:09

Hi, it's stressful, isn't it? My ds is also supposed to start in September, I'm appealing for him to stay 1 more year at preschool because SS has no peer group this year for him.

Is your statement finalised? You can appeal the Statement - if you don't like the placement.

Also, legally she only has to start first term after her 5th birthday - so this buys you more time to sort out suitable placement.

Firsttimer7259 · 08/05/2014 17:09

Big hug. We are in almost exact same position except we got the place we wanted so my heart just clenched for you. I would call ed psych, I would want to understand how to put the refusal. I'm in Scotland and system is different but you need to understand whether as how you can argue the provision is unsuitable also ask about pros and cons of defering. Could you defer and end up w same offer next year? So so sorry you must be so stressed. Do you know any support/advocacy agency that can help you or just provide moral support?

Firsttimer7259 · 08/05/2014 17:10

By same position I mean children same age, sn nursery, austism

Minxyminion · 08/05/2014 17:22

Hi thanks for reading -my essay- and thanks for replying. Her statement isn't finalised, im still waiting on the draft, but I know its defo going ahead. Just feel so angry and stressed. Her preschool is brilliant but there is no possibility of her staying another year. Her birthday is April so im not sure of when she would legally have to start? Iv already told the receptionist who told me she hadn't got the place that there was no way she was going to mainstream school so I don't know where to go from here. Im not in a rush to send her to school just don't want to hold her back either. I will appeal it and know I can do it via the statement but don't know how long it takes, what it involves etc. Im going to see a local parent partnership service tomorrow although have never been to anyone like this and don't know what the service is like. Just wish I could cuddle her in and not let go. The local authority are proposing mainstream school with 1:1 but I know she isn't ready, she receives so much support at the moment and I cant bear to send her somewhere where I know she will struggle and be unhappy etc. Thinking of homeschooling but again don't know how to go about it either, or if there are any other options, thanks for your replies

OP posts:
autumnsmum · 08/05/2014 17:26

Hi I've got a 4 year old dd in a special school nursery she is verbal but has autism and hypermobility I really feel for you

Minxyminion · 08/05/2014 17:28

She sounds just like my dd, what placement is being proposed for her for September?

OP posts:
babiki · 08/05/2014 17:29

OK - wait until Statement is finalised, then appeal. Tell them constantly MS is not suitable. I don't know where you are but be careful with PP - more often than not they are biased towards LA (funded by them!), perhaps you have local independent charity that could help?

If her birthday is April, I think she can stay at preschool until April - have a look at IPSEA website and book a telephone call with them, they are fantastic.

If you go to Tribunal, you can argue to name Preschool until April and SS from then - but check with IPSEA. If preschool are not helpful, don't tell them anything until you speak with IPSEA.

autumnsmum · 08/05/2014 17:36

Dd2 is in an autism class at sp sch she will go into reception there in September .i saw some units that I hated

Minxyminion · 08/05/2014 17:38

I should receive her statement any day now so hopefully that wont be to long. I don't know whether to go tomorrow to the local sen department of the council and try to speak to someone, as when I ring I never seem to get anywhere. I have no idea of any local independent charity's in my area, the only advice service I am aware of is PP but have never used them. I hope she can stay at her pre school until next april, but don't know if there is an option as they seemed to say there was no way she could stay after the summer, and places are very hard to come by. I will 100% going to tribunal, what does it involve? And who are IPSEA, sorry, my brain is all over the place. Thanks

OP posts:
Minxyminion · 08/05/2014 17:41

And yes autumnsmum the unit she was offered the place in wasn't great at all. I actually think I would prefer to send her to mainstream, not that I would ever say that, just because of how bad it was. The nursery she is at is next door to the SEN primary school so transition would have been great. Shes been on an extra ABA programme which was funded by the local authority as she was chosen as a child who would benefit, plus she gets extra support in the sen nursery so I don't and cant understand why they would offer her mainstream.

OP posts:
bjkmummy · 08/05/2014 17:45

ipsea are an independent charity who can help and advise you through it all. from lodging an appeal to an actual hearing is approx. 5 months so give you a rough estimate to timescale although it can vary. I would wait for the statement to come and then contact ipsea for advice. if you go onto their website you can pre book a telephone call with them as getting through to them can be difficult at times as they are so busy.

there are so many of us on here who have been through lots so you will get plenty of help support and advice on here

Minxyminion · 08/05/2014 17:50

Thanks so much bjkmummy your help and support has made me feel a bit better. If it takes 5 months it wont be in time for her school placement for September, which is fine, as im in no rush to send her. Just feel a bit trapped by the system- not by dd's special needs! Its hard virtually impossible to go out and I rely on the 3 hours she at nursery each day to get out and about, I just hope the appeal goes through but will have to wait and see, and doesn't look like its going to be any time soon that a decision is going to be made. I think I might go to the LEA tomorrow and see exactly what they are proposing for her i.e how many hours of 1:1 support etc, do u know if I can request the EP to make another assessment, or if I can privately get an EP to make an assessment and if so, will the LEA take any notice of it?

OP posts:
autumnsmum · 08/05/2014 17:53

That's terrible I think special schools don't have a set intake number so maybe if you kick off they will find you a place

stillstandingatthebusstop · 08/05/2014 17:57

Hi Minxy I would say dig your heels in here and now and do not accept the mainstream place. You know what is right for your dd and it sounds like you're going to have to fight for it.
I'm not good at the legal stuff but some people on here are experts - I'm sure they'll be along soon. IPSEA is a charity that often comes up.
I would offer a word of caution about parent partnership they are funded by the local authority (I think) and may not be as independent as they seem. The ones round here are useless - well they were when I contacted them. And very odd!
Thanks Thanks

oramum · 08/05/2014 19:28

once the statement is finalised appeal through sendist. if you are entitled to legal aid you can get funding for a solicitor who can instruct and fund private EP, SALT reports etc.
you can certainly have independent EP assessments commissioned, dont worry if the LA ignore these as ultimately it will be the tribunal who decide.
once you have recieved the draft if it names ms write to the LA stating why this is not suitable. chances are they will ignore your reasons and insist on ms. if this happens let them finalise the statement, as if you continue to correspond with them ultimately you are just delaying the statement being finalised, giviing you the right to appeal.

Nennypops · 08/05/2014 19:41

I'd also suggest you contact SOS SEN - similar to IPSEA, but they also run workshops on appeals etc and sometimes can offer more hands on support.

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