To all those pros out there who kept telling me that a dx wasn't important...

[Blossomhill]

Well almost 2 months after receiving mine for dd I can categorically tell you it does!
The worst part for me was the unknown and knowing that she had something that no body else agreed with. It was actually far more damaging than knowing.
I feel so much more confident as a mum and happier to say asd rather than her asd traits.
As I am now less anxious I am a better mum and all round we are much happier.
To have a reason to explain why your child behaves they do is so helpful and I just feel it has helped all of my family immensely.

i agree.
i am still having to have the " well he has XYZ and we think its possibly Asd but they havent made a dx yet...." convo with people.

i always feel they just think im making excuses for his behaviour and trying to label him with something he doesn't have, hence the professionals not giving a dx.

i think i will cry if someone actually tells me for certain what it is that wrong.

Oh I thought your ds had been dx with asd fm.

I agree it's so frustrating. I wish I had known 3 years ago when dd was 4 but am also glad that I didn't have to wait until she was 12 iykwim as a lot of my friends with hf kids have had to do!

Believe me I did cry when I was officially told but with sheer relief and I guess a tinge of sadness too.

we have had various "professionals" tell us different things from Aspergers to ADHD and then more recently simply "probably on the spectrum but needs further assesment before a firm dx can be made"

the fact that he is quite HF is probably what makes it more difficult, i guess a very sevrely autistic child pretty much dx themselves.

they have pinpointed the gross and fine motor delay, the communication disorder, the poor social skills, the severe behavioural dificulties etc etc but they wont actually label him ASD officially.
its so annoying as they pretty much tel me its asd every time we go to see anyone they just wont gettheir big rubber stamp out.
to be honest i coldn't really care, he will be the same boy then as he is now but it will make sucha differance to those at the education dept, at the local school, at the clinics we have to go to.
its so much easier to get funding or placement5s fo a child with an offical tag than it is for a child with supsected asd.

hear hear BH and fattiemumma, since DS has been dx,d (we had to go privately for it ) the LEA and other various "professionals" have taken our situation more seriously and as an adult on the spectrum i can say it has brought enormous relief to myself, a person with ASD knows that they think differently to other people and for me knowing that i had this condition explained everything so dont give up all those who are fighting for their childrens dx as they will thank you for it when they grow up.

Hmmm, this takes me back to our days of dx which I've blanked out! We were given a vague dx of Language disorder, possibly on the autistic spectrum. Having looked at the definition of Autism we just continued to say Autism and put that in all letters etc. I used to send the Paed's letter with the vague dx out with statementing stuff etc and no-one ever queried it. I know we were'nt kept hanging on and weren't messed around as much as BH and others though. We did get a proper written dx within a year of that vague one.