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How can I help my DS? Do I actually need to do anything?

18 replies

TheWorldAccordingToJC · 22/04/2014 12:09

My DS is 7 and in year 2. He's always been quirky and has been on SAP since week one of starting school. He speaks normally, has full comprehension , can do everything for himself and can be a completely ' normal', compliant and well behaved little boy.

The flip side of this is hard for me to explain. He has mood swings and can scream and make growling noises whilst panting to control his breathing. The trigger for this can be anything from his older sister teasing him or even just looking at him, or him being refused something, although at other times he takes the word ' no' just fine. Ten minutes later he is fine once more! He lacks concentration and needs constant re focussing on tasks. He cannot read anything bar his name and the odd few words and he cannot spell. He finds it difficult to play with other kids and doesn't have a large friend circle - he likes other boys but struggles to interact properly with them. He has no sense of humour and cannot laugh at himself at all. In fact, if you laugh at him - gently and because he's done something funny - it's a trigger that ends in a meltdown. EnvyEnvy

He's been assessed for dyslexia and it's not that. He has no speech issues and no sight or hearing issues. He has just changed schools and I was shocked to learn in conversation with his new teacher that his old school were about to start assessments to have him statemented. Statemented for what exactly? I'm annoyed that this is news to me!

I know deep down that he has ' something ' that isn't just tantrums / being 7 etc,. But what? It's either autism, aspergers , ADD or ... What?

Not even sure what I'm asking. No idea how to make life a little easier for him whilst still enforcing good behaviour and not letting him get away with bad behaviour.

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TheWorldAccordingToJC · 22/04/2014 12:11

Thanks for reading that epic! His new school are going to make their own minds up about him so is there anything I should be doing? I've pushed his old school for years for answers only to be told that it's my fault for not reading to him in the evenings enough ( eye roll at that one ) and he's ' probably fine '

No point in taking him to the doctors because all they'll see is a normal little boy at that time. Oh and he does display his quirks in different settings. He needed additional support at his holiday club for example before they'd allow him to return because he was being very disruptive last year. As soon as that additional support was in place , he was fine and well behaved

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zzzzz · 22/04/2014 12:33

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TheWorldAccordingToJC · 22/04/2014 13:02

He's probably got all three in varying forms. He's clumsy in that he couldn't hold a pencil for ages ( fine now ) and sometimes just falls over in front of you! He has what I think of as clumsy days.

The support in place at his holiday club was one to one adult help - so an adult sat with him . This worked. He calmed down and there were no problems . Previous to that he was hiding under tables and shouting and refusing to come out. Sigh!

I struggle to accept all this I think. He often stays with my parents - they have severe health issues and he's honestly as good as gold there. No issues at all. Which makes me think ' on he has control over himself ' ... So I then convince myself that he's just a normal little boy. But I suppose I know that his quirks are such that he has to be on the spectrum somewhere

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zzzzz · 22/04/2014 13:53

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Kleinzeit · 22/04/2014 16:23

I would go to the GP too with your list of concerns, and ask for your DS to be assessed. It will probably by a developmental paediatritian who will be able to look for ADD, any of the autism-spectrum conditions, dyspraxia, as well as other stuff; other professionals may be involved too. Even if his speech is fine a SALT may pick up things about his communication that are making it hard for him to make friends.

So don't assume that all they will see is a normal little boy, even if that's how he seems a lot of the time. They know what to check for and they will know what to ask him and you. My experience of the assessment was that they tried him with things that hadn't even occurred to me. Watching the paediatritian, speech therapist and psychologist do their assessments was quite an eye-opener for me, it made me understand a lot more about what my DS could and couldn't do.

And it will be a lot easier for you to make life easier for your DS and to give him discipline that works if you know exactly what difficulties he has (and doesn't have). The fact that he can be as good as gold sometimes, such as with your parents, is a good sign in itself, whether he has an autism-spectrum condition or not. It doesn't rule out an autism-spectrum condition (or other issues) though - a lot of children who have an ASC are at their best when dealing with adults, and at their worst when dealing with children of their own age. My DS (who has an ASC)was absolutely brilliant when we had to suddenly interrupt a holiday because my DH had to go to hospital in an emergency, usually a change of plan would send DS crazy but he understood DH was ill and he really to the occasion.

I'm sorry the school didn't talk to you about your DS. This is a difficult situation for you to be in and that wasn't helpful of them. Flowers

AttilaTheMeerkat · 22/04/2014 16:54

"He's been assessed for dyslexia and it's not that. He has no speech issues and no sight or hearing issues. He has just changed schools and I was shocked to learn in conversation with his new teacher that his old school were about to start assessments to have him statemented. Statemented for what exactly? I'm annoyed that this is news to me!"

His previous school were going to start the ball on statementing because they felt that his being on SAP was not enough to get his additional needs at school fully met. They should have told you this as a matter of course but they did not.

What are his new school going to do with this information?. Are they also aware that previous one to one help provided by an adult helped him a great deal?. This is also what a statement could give him; it is a legally binding document outlining support for him in school.

I would also go to the GP and ask for your son to be assessed by a developmental paediatrician.

You are learning, if you have not already done so, that you are his best and only advocate here.

Upandatem · 22/04/2014 17:02

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TheWorldAccordingToJC · 22/04/2014 17:51

thanks all

zzzzzzz I've done lots and of course have spoken to the GP a year or so ago on the phone. fobbed off and made to feel like I was over reacting. same at the old school - kept in the dark and given the runaround

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orangepudding · 22/04/2014 19:19

I think you need to spend a few days writing down things that concern you about your sons behaviour and that make him different from other children his age.

I am doing this at the moment as I feel something is not quite right with my nearly 6 year old. Also I took my son to a private ot recently and she found that he has issues I hadn't even realised. Hopefully the combination of my list and the report will get me somewhere!

As others have said you need to push to get help for your child.

PolterGoose · 22/04/2014 19:32

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zzzzz · 22/04/2014 19:55

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TheWorldAccordingToJC · 23/04/2014 10:30

Thank you all

Zzz - the ' plus' is something I've never agreed with. On day one in reception they asked me if he was a bit deaf. Err no. He's just 4 years old and needs firmly telling what you want him to do. They insisted I had his hearing checked - it was fine.

Six months later they tell me that they'd like me to take him to see a speech therapist. I tell them that there is nothing wrong with his speech. They say that because he pronounces ' flowers' as ' schlowers' there is cause for concern. I duly take him , and the therapist is most bemused at the end of the test as to why the school referred him - writes a report informing the school that there is nothing wrong with his speech and comprehension. The school are gob smacked. It was all very weird.

Then begins a campaign from the school, telling me that his difficulties are down to me not reading to him. Up until 6 months ago, it was an impossibility. He would hang upside down on the bed, fidget badly, talk , cry, ... It was absolutely not worth it and just meant I got cross and he screamed etc etc so I made the decision to not read to him but instead to point out words as we went along or to incorporate reading into a nature walk etc. the school told me that if only I read to him more then he'd be fine. I felt differently and refused to do it. He now loves being read to in the evening - providing its a Roald Dahl book!

So the old school never supported me in anything. I've suggested he may be dyslexic and they eye rolled at this. I've suggested Aspergers which the SEN head teacher dismissed. They had me in the school telling me that he gets very het up at break times and then is almost impossible to settle back down and his lack of concentration was disturbing the class to the extent that he was being removed to sit with the year 6s. I suggested that they bring him in a minute or two before the end of break and requested that a staff member ensured that he didn't race around screaming at break as obviously he then can't calm himself and they just looked at me like I was mad.

So yes, I've not always seen eye to eye with the school. This new school is a better fit for him ( he was the only SN child at his old school, believe it or not ) and he loved his first day!

He's not my only child so I know his behaviours are not quite normal. But he ticks lots of normal boxes too. He's quiet and transfixed in the cinema, he's great at my parents, he loves being cuddled and he's very capable of his own personal care but is a typical lazy child! He can sit in a restaurant on occasions and I could leave him in the car for five minutes if I popped in a shop and he'd be able to be trusted just fine.

The flip side of this is meltdowns when triggered, 'quirky' behaviour which many people tell me about, extreme stubbornness , easily embarrassed, reserved, inability to make friends and not actually all that bothered about that. Oh and he cannot read at all. He doesn't even have the ability of a child just entering reception which I can't believe is just down to him being a late learner. However he is ahead in maths and science. He has lots of passions such as space, the Egyptians and Greek mythology and can tell you lots about them all!

He probably ticks some Aspergers boxes.

I shall check out those links, thank you

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TheWorldAccordingToJC · 23/04/2014 10:31

Attila - the new school are going to make their own mind up about him and for now, sit back and observe him and see where he is according to them. Which I suppose is the best approach.

I was astounded yesterday to be told that the old school were considering assessing him for a statement. And then furious that I'd been left in the dark about this

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TheWorldAccordingToJC · 23/04/2014 10:35

Zzz - hmm. I think I do feel a bit embarrassed tbh. Unsure why. I would never and have never let him flounder alone. I will always back him and I will always fight for the best outcome for him so that's not in question. I can just imagine the eye rolling and sighing at ' oh another parent who thinks her child has autism'

The old school would speak to me like I was an idiot and that somehow my parenting was lacking. I have a much older child who is a grade A student and is head girl of her year and is impeccably behaved ( glossing over the teenage tantrums! Grin ) and as I've parented him the same way, I can't accept that this is my parenting

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zzzzz · 23/04/2014 11:03

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TheWorldAccordingToJC · 23/04/2014 11:17

Thanks zzz that would be so helpful . Thank you for taking the time Smile

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zzzzz · 23/04/2014 14:42

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zzzzz · 23/04/2014 14:46

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