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About to lodge my second appeal

8 replies

2boysnamedR · 08/04/2014 18:37

Another day in paradise. More tears. Beginning to wonder if my son really does have learning dificulties as the more the school and lea test test him, the deeper they dig but no answers.

Ok so he's dyspraxic but what the hells wrong with him? I don't know any other child like him but I'm told he defiantly doesn't need a statement dispite being universally bad at every aspect of life.

Can I resign now? This SN mum jobs sucks, I hate it, more years of fighting and pain to get nowhere.

Got to raise a Foi or DPA request for his nhs records now. Fed up of fighting to prove he needs more help when he can even turn on a tap or wipe his own arse.

If one more person tells me that's all normal at six I am going to explode.

That's it really. Just want see some end to this one way or another.

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bjkmummy · 08/04/2014 19:07

Hang in there 2 boys. It is draining and I say that as a mum with 3 with sen. Sadly if we don't fit for them no one else will and you will hear people dismiss his difficulties which is hard but as I always say a mums instinct is never wrong, you know your son better than anyone, you've come this far, I know it's crap having to yet again appeal just to get his support but that's what they want us to do - give up and the. It saves them the money having to fund the support. Remember you have us all on here ready to help and listen as you continue on the journey.

2boysnamedR · 08/04/2014 21:25

I would feel so much better just having a date for the tribunal. I could relax at bit then. Got a call booked with ipsea on Thursday. I can't get any more evidence apart from a indi ed pyhsc and getting his nhs data.

Must remember I have been told I don't stand a chance before only to have the lea back down

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bjkmummy · 08/04/2014 22:07

I think being told you have no chance just makes you even more determined. I wish I had a £1 for every time I had heard it but 'touch wood' so far I've done okay for my kids

2boysnamedR · 08/04/2014 22:22

That's the thing isn't it? So many are told no statement and you don't stand a chance - yet get indi school settings.

I was told today it's not a filtering process / about money but really? Doesn't feel like it does it?

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amumtothree · 10/04/2014 07:53

I'm a mumsnet lurker, who has had a lot of reassurance from the various posts. My son is dyspraxic and dyslexic, and whilst school recognised the problem and were supportive they didn't expect to get much help. All through the process people underplayed the issues he faces and told us how lucky he was to have the support he had (OT and a school program - at school action plus). 18 months later his is now in an indi school with a specialist centre. The hard part is staying strong and taking all the rubbish they throw at you. Good luck

ToniQueensPark · 10/04/2014 15:03

well done - awful thing is that it appears that granting Statements and getting the funding is a postcode lottery which is TOTALLY wrong, thanks for sharing a positive outcome!

ToniQueensPark · 10/04/2014 15:21

2boys: would be really good if you could try and contact other Statemented families in your LA ....maybe contact local support groups/charities for Dyspraxia/ASD etc and ask them to put you in touch with people in your local area so you can find out what the tricks are and how they succeeded in getting the Statement. Worth a try...I got a huge amount of knowledge from local support group..

2boysnamedR · 10/04/2014 20:04

Thanks everyone. Had my ipsea call today and after giving a ten min background I was told we won't even get to tribunal. Amazing how great some sound advice can make you feel. Feel so much better today. I know I need to belive in my myself more. Nil came too but I can't face looking at it yet. Will photocopy and submit my appeal first.

I go to my local dyspraxia group and a specail needs group ( mostly asd there). Unfortunately it seems most kids are statemented at pre school age or not at all. It's very raw to find someone fighting for a statement like me. The few that do, win. They also win quite amazing support in specail placements. But that's only three people that I know have been down my path. None of those kids had dyspraxia, it was dyslexia and then dyspraxia with asd x 2

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