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I think its sensory processing disorder but my mum is having none of it!

11 replies

frankiebuns · 07/04/2014 09:41

My ds 3. 1/2 is caring stuborn and strong willed but since he was 2 he will only eat certain solids, refuses to wear certain clohes they have to have no pockets no badges etc, and toilet training is hard! We started a year ago wees fine poos no hates the look of them refuses to go on toilet / potty for it insists u scoop it out of pants tmi! He doesn't like food we had a mini party yesterday all food on the table we all sat down and he charged off and played, he went 9 dsys with out food as I decided to go cold turkey on him and only give him big boy food! Sumone has sugessted sensory processing disorder but my mum poo poos it saying its only child syndrome and he won't do it at 10! I'm sure he would if he had the chance! My brother was exactly the same when he was little and she didn't do what drs said my bro will eat chips cake crisps burgers toast and chocolate. (He's 33). Soz for the rant all his friends are normal foodies and its getting embarassing having to break out a pot when we are out!

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FuckyNell · 07/04/2014 09:52

First off don't starve your kid for 9 days.

Second stop scooping poo out of his pants, he either wears them dirty or uses the toilet or potty.

I wouldn't give him anything else at a party etc, he will know he hasn't got to try any if the food because you have 'a pot' of something else

No idea about the other stuff though sorry :)

FuckyNell · 07/04/2014 09:55

Re the potty.

Has he seen you poo? Or anyone else ? Some kids think they're unique and don't believe everyone does it.

JJXM · 07/04/2014 10:08

My son has ASD and therefore lots of sensory stuff. He doesn't feel the urge to go to the toilet as he is hyposensitive and therefore he is still in nappies at almost 4. He won't ask to be changed if he has soiled himself. If I left him to wear his clothes dirty, then he would get terrible nappy rash but that wouldn't make him learn not to soil himself.

My son also has fixations on food - he only really eats bread regularly - no meat, vegetables, fruit - some butter and cheese (which we give him lots of when he requests it to build up his calcium). My son would just not eat if he was forced to have what we have - we are grateful that he eats anything at all.

For children who have sensory issues - imagine if your clothes felt like they had itching powder in and you were in terrible pain - would anyone expect you to keep wearing them? That's what it can feel like to a child with sensory issues.

Ignore your mum - you are your son's mother and I'd go with your gut - take him to a sensitive GP and get a referral to a paed who will helpfully confirm your gut and offer ways to help your DS manage. There's lots of misinformation about this kind of thing - I was once asked if having an ASD child was like having a normal three year old just naughtier Shock

frankiebuns · 07/04/2014 10:25

Fuckynell my dr told me do it! He said go cold turkey he will eat when he's hungry!

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frankiebuns · 07/04/2014 10:28

Thankyou jjxm being abit baby brain what is asd? I'm just at my wits end! And fuckynell he would pick at biscuits and I gave him solids he would eat but not meals!

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Jacksterbear · 07/04/2014 11:48

ASD = autism spectrum disorder.

I have a 7yo DS with diagnosed SPD (and ASD), and a 3.6 yo DD who shows lots of signs of sensory difficulties (if anything, more so than DS).

Have you done any reading about SPD? "The out of sync child" is really good. It would be worth getting together a list of things you've noticed, including any unusual behaviours. Reading up on the subject could help you identify things you might not otherwise have noticed, or might have thought were just quirks or annoying habits!

Do you have concerns about other aspects of your DS' development or behaviour?

coppertop · 07/04/2014 12:02

"but my mum poo poos it saying its only child syndrome and he won't do it at 10!"

Newsflash for your mum but my ds (ASD) is nearly 14 and still has a very limited diet. I think he felt hunger for the first time in his life a few months ago when the teenage growth spurts started. Even so, a 'hungry' ds still eats less than even his 8yr-old sister does. A million miles from all those starving teenage boys I read about on MN who empty the fridges and cupboards!

I would speak to either your health visitor or GP and ask for a referral for an assessment. If it's a sensory processing issue then there is a lot that can be done to help.

NiceCupOfTeaAndASitDown · 07/04/2014 12:06

this book helped me when I had concerns about DS and sensory issues. we've gone no further than a chat with the HV so far which wasn't much help. I think the usual advice is keep a diary and ask your GP for a referral to a developmental pediatrician. does he attend playschool or nursery at all? it might be worth asking if they've noticed anything out of the ordinary. WRT to your mum I wouldn't let it bother you, you know your own child. I'm already expecting negative reactions if we push for diagnosis so I won't be discussing it with anyone in RL until I know what we're dealing with and feel confident with how to handle it

PolterGoose · 07/04/2014 16:02

This reply has been deleted

Message withdrawn at poster's request.

Ineedmorepatience · 07/04/2014 17:01

Your doctor is an idiot!!

Children with serious eating issues do not eventually eat whatever you give them because they are hungry!!

What on earth made you keep going for 9 days!!

Go back to your doctor tell him he is being ridiculous and ask for a referral to a paediatrician and dietician.

My Dr is also an idiot, he thought it was OK for my Dd3 to go 13 days without food after she had been ill and antibiotics had upset her tummy!
I took her back the next day to see a locum who was not impressed and gave her medicine to stop the diarrhorea [sp]

You need to have confidence to stand up for your child and try to get some help.

fuckynell I dont think your advice about leaving a child with possible special needs in shitty pants is particularly helpful Hmm

frankiebuns · 07/04/2014 22:07

Thank u all I spoke to my mum and she seems to now understand what I'm on about after showing her a website, we did go to paeds and they said no autistic tendances but highly intelligent iq of 7 year old, I did it cos my dr told me to hell eat when he's hungry! I dnt think he recognises hunger only gets grumpy! He did take himself to the loo and did a poo for the first time I cried and phoned my mum too!

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