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Support/Information sharing thread for parents of children with CP - part 3

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itsnothingoriginal · 29/03/2014 17:11

So here we are - thread number 3 to provide information and a source of support for parents whose children have been diagnosed (or not yet dx) with Cerebral Palsy.

Welcome to parents finding us for the first time and welcome back to any who have posted before Smile

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MNHQ

TheOnlyOliviaMumsnet · 24/01/2015 09:20

@Albaba

Hi everyone. I see that some people have been asking about DFG for home improvements well I can provide information! We have been assessed and approved for DFG. We had an OT out to the house who discussed our needs and looked around the house at things like how wide our doorframes were and the fact that we had stairs and a high step to get in to the house. Our main problem for us though is that we have no downstairs toilet facilities and our upstairs bathroom is tiny. She took measurements too and as far as I know the case was then discussed by a panel and we have just been told that we have been approved for a full DFG! We have someone coming to the house next week to take measurements and draw up plans of exactly what we need. I feel sad in one way that my dd does need adaptations made to the house to make things easier for her but at the end of the day it is the reality.

Our house is quite boxy. For a 4 bedroom house none of the rooms are big. What we plan to do is a side extension to the house which will be downstairs living and bathroom - toilet and shower room. We also plan to have our kitchen and dining room which are two small rooms knocked in to one.

Also we requested a Disability Social Worker who was really useful. She was out with us during the week and we got more useful information and help out of her in 2 hours than we have got out of most people in the last 2 years! She actually had a child with cp herself so had been through everything herself and knew exactly were we were coming from. Anyway she said that the hardest part was actually being approved for the DFG and we had been. She said that after that things move pretty quickly and we could be looking about a year to completion.

Let me know if anyone has any questions of DFG and I will try my best to help. Thanks Albaba.

Forgive the intrusion: Albaba started a new thread by mistake this post was meant to be here.
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