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Here are some suggested organisations that offer expert advice on special needs.

Original poster

son been diagnosed with aspergers

18 replies

sniff · 18/08/2006 11:36

I dont know if this post is in the right place but my son has been diagnosed with AS aged 8 I have the letter of diagnosis have read freeks geeks and aspergers and a book by tony attwood but to be honest I have no idea where to go from here the educational psychologist hasnt said anything else just that the shcool will deal with it in September but I want to know what I can do to make it easier for all of us

my DH is his step father and until this diagnosis came through thought he was spoilt and naughty and needed to be told off more and I kept telling him something was wrong.
I have 2 other children ans they just arent the same now I know I was right. I really resent my DH for shouting at and punishing with removal of treats etc my DS

I want to make it up to him and try to help him at school to make friends not just the wrong ones and enjoy things

I know this is rambling I am so confused that he is unable to show his feeling I havnt told him yet either what they have said I think he is in the lower end of the spectrum as his symptoms arent to severe will telling him upset and make him sad that he is different in someway or make him understand why he has problems in some areas

he is a lovely lad but people comment on how blunt he is as a bad point but most of the time he is trying to be friendly
to anyone who has read this thanks writing it has actually helped

OP posts:
coppertop · 18/08/2006 11:48

Hi, Sniff. Welcome to MN and the SN board.

I have 2 boys with HFA/AS - aged 6 and 3.

It sounds as though you're having a tough time. Have you been offered any help by the person who made the diagnosis or have you just been left to get on with it? The NAS site is a good place to start when looking for ways to help etc.

In September you should see if you can get an appointment with the school SENCO. What happens next will depend on how much help your ds needs.In any case he should be given an IEP (Individual Education Plan) which sets out some targets for him to work towards. You may also need to apply for a statement (legal document setting out the help your ds needs). You will get lots of help on here with that.

You might also want to think about applying for DLA. It may help take off some of the financial pressure. Again you will get a lot of help here.

I don't know when/if you want to tell your ds about his diagnosis. I haven't told my 2 boys yet but I know that my dh was relieved when he was told he had AS as he felt that he finally knew why he'd always felt different to everyone else.

Keep posting. xxx

Original poster
sniff · 18/08/2006 12:01

Hi thanks for your help can you tell me what DLA is. sorry really new to all this we have been given no other ifo apart from 'In our opinion your son has AS or DAMP! but we would err on the side of Aspergers@ I rang the NAS society and DAmp is apparently not really recognised so I presume it must be aspergers

OP posts:
coppertop · 18/08/2006 13:43

DLA = Disability Living Allowance.

It sounds like a diagnosis of Aspergers to me. If in doubt I would contact whoever made the diagnosis and ask them to give it to you in writing more clearly. My ds2's Paediatrician did that for us.

Hopefully more people will be along soon. The SN board gets pretty quiet during the holidays so don't be put off by the lack of people replying.

mummyhill · 18/08/2006 14:31

Hi sniff

No advice, just bumping this for you. Love to your family and I will see you soon. Give me a shout if I can do anything to help.

mummyhill · 18/08/2006 14:34

Found a link to another thread that might be useful for you hun here

mummyhill · 18/08/2006 16:11

Bump

mummyhill · 18/08/2006 23:51

Bump.

Will keep on bumping this for you sniff so that the right people can find you.

mummyhill · 20/08/2006 09:56

Bump

Tiggiwinkle · 20/08/2006 11:09

Who made the diagnosis sniff? Has he seen anyone other than the educational psychologist? You do not seem to have been offered anything in the way of back-up support.
There may be a local support group for parents of children with autism in your area.You would get a lot of advice and support from other parents there.
AS far as telling your DS, I would wait until things are a little clearer in your own mind. I have told my DS-he is 7 and was diagnosed with AS last year. He has accepted it and seems to find it helpful to understand where his problems come from.

coppertop · 20/08/2006 21:32

A local support group is an excellent idea. As well as general real-life support you will also be able to find out useful local info, eg schools to avoid, people to contact etc.

I hope you're okay (or at least as well as could be expected considering what you're going through). xxx

Original poster
sniff · 21/08/2006 09:07

thanks for your messages no one else has seen him all I have is this letter and the a write up about Aspergers that the EP wrote and I bought the book I was hoping he would tell me what I do now but he doesnt seem very forthcoming I will try and find a group id might be nice for my son to find other children with the same interests as well as giving me some advice on what to do next !

OP posts:
jenk1 · 21/08/2006 11:07

Hello sniff.

I have Asperger Syndrome and so does my DS (he,s 9).
This is a very good site to ask questions but like someone said is fairly quiet at the moment.
Another good site to do with Autism is krism.org.uk.

Feel free to ask any questions.

Davros · 21/08/2006 11:54

When you contact the NAS ask about a local branch, or you can look at what branches they have on their website. There may well also be other, non-NAS, support groups in your area. Good luck.

springgreens · 21/08/2006 13:40

Hello sniff,
it's really harsh when you get a diagnosis and feel stranded. Where do you live? I'm in Kent and am involved with a really nice ASD parent support group locally. Having parent connections makes all the difference in moving forwardso try to find these as soon as you can. I think that your son functions very differently to my ds (who is fairly severely autistic I think, tho he's only 3), but this is not to say that the issues for you are any less difficult. This forum here is a wonderful source of information and support, so you've done good in posting Stay strong xsg

springgreens · 21/08/2006 13:42

p.s. you share my ds's nickname. I must stop calling him sniffy...these things tend to stick!

Original poster
sniff · 22/08/2006 21:28

its my sons nickname too I live in st helens nr liverpool but unfortunatly all family and friends live in brum this website is being a life line of sanity thanks ever so much

OP posts:
threebob · 22/08/2006 21:39

Would reading the curious incident of the dog in the nightime help your DH? It's a good read anyway and might help him to understand.

Original poster
sniff · 23/08/2006 06:13

Thats a great idea I have it here its a good read I shall start reading it to him (he cant read its the one thing he has big problems with)

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