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Here are some suggested organisations that offer expert advice on special needs.

Some help please

9 replies

AlwaysBeTrue · 13/03/2014 20:45

Even a little bit of help would be more than appreciated. I am a mother of a 7yo, when my DS was 4 he suffered from a stroke which has effected his speech dramatically. In order for him to speak he has to think about what he wants to say then process how he is going to say it in his head, and when he says it 8 times out of 10 he gets all the words jumbled up which always reduces him to tears, it has gotten to a stage where he no longer wants to speak and would rather write down what he wants to say.

He has no confidence or self believe what so ever. I always encourage him and praise him even for the littlest things he does. He doesn't like going out, tears every night before bed because he knows he has got school in the morning and tears every morning before school.

He attends a school for children with learning difficulties because he just wasn't managing in mainstream school as they couldn't cater for his needs, I must say the school is brilliant their main concern is that he doesn't interact with any of the teachers or his peers, they told me today that he might have some form of autism.

No matter how much I try he always looks so sad it is breaking my heart, and dad just doesn't want to know him anymore.

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zzzzz · 13/03/2014 20:55

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WilsonFrickett · 13/03/2014 20:59

That sounds really hard. I do wonder how easy it would be to separate the communication difficulties something like ASD would bring from something like a stroke. I know adults who had strokes and it's really hard for them and of course they'd had the chance to 'buy in' to the concept of speech/language/communication etc before they had it. It's a lot of hurdles for a child to climb - probably easier to not bother communicating iyswim.

What was his communication like pre-stroke, can you remember?

That said, it sounds like whatever the root cause, some of the autism strategies could help. Have you ever been on/been offered a Hanen course?

AlwaysBeTrue · 13/03/2014 21:13

Zzzzz I have no idea why they are thinking ASD. Dad is very horrid he should be helping :(. His written communication is way above average. WilsonFrickett before he had the stroke everything was fine we still don't know the cause of the stroke and we haven't been offered anything. I was thinking of taking him to speech therapy.

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PinkShark · 13/03/2014 21:24

DS had a head (brain) injury from an accident when he was 2. It affected his speech, gross and fine motor and his hyperactivity hit the roof overnight. He does have dx od ASD as it was based on observing his behavior and only highly qualified experienced (private) consultants have dx with speech aphasia which is similar to stroke I believe and the cranio said he had swelling in his head.

Dx or not, the most important is his needs being met, the environment is right and the child is happy.

AlwaysBeTrue · 13/03/2014 21:52

PinkShark my child isn't happy

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StarlightMcKingsThree · 13/03/2014 22:37

Yes, He needs the attention of a speech therapist. A proper assessment into the causes of his speech difficulties for a start. Then a programme to follow to help.

Outside of that you need to focus on communication rather than speech. Whatever happens don't allow the communication to stop or be stalled. Don't insist it can only happen through speech.

wonderwhattodo · 13/03/2014 23:04

Could you contact this organisation for advice?
www.afasic.org.uk/

zzzzz · 14/03/2014 03:03

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Message withdrawn at poster's request.

AlwaysBeTrue · 14/03/2014 06:31

StarlightMcKingsThree I am going to take him to a speech therapist I have faith in my son that one day he will be able to speak normally. Wonderwhatttodo I am going to copy and paste that link thanks. Zzzzz he doesn't see SALT he doesn't do any activities he spends most of his time playing on the iPad or playing The Sims on the laptop, I must say he is a very good drawer also. Unfortunately he doesn't have any friends :(

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