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Proposed Statement - any help appreciated

76 replies

sweetteamum · 21/02/2014 20:11

Ds's proposed statement has come through. I'm not very good at reading between the lines and picking out the bits that need questioning. I'd really appreciate your help. Thanks in advance:

Ds is year 6, is age 11 and has PDA, ADHD, dyslexia, fine motor difficulties and anxiety issues.

Objective -- to enable ds to make appropriate progress within the national curriculum (with a particular focus on literacy development)

Provision -- info to be presented visually and verbally where possible. The use of pics and symbols as well as the visual representation of words could help ds frame info and make new (simple and linear) so as to minimise the need for scanning.

Info to be concrete rather than abstract.

Presenting info in manageable time periods (eg 10-15 mins then a break)

Multi sensory approach to learning ie accessing the visual, auditory and kinaesthetic senses concurrently to enhance learning.

Access to profs who are experienced with working with students with additional needs, including those linked to asc (including language, communication and anxieties), ADHD, literacy and coordination.

Objectives -- to use strategies to support difficulties with attention, concentration and listening.

Provision -- ds will require prompting both visually and verbally so that he remains on task. Reduce oral info to small chunks with teaching staff ensuring his attention is focused when giving instructions, and frequently checking understanding of new info.

Allow ds to take frequent breaks from working eg low level physical activities that do not involve info processing.

Allowing ds extra time to process info.

Ensuring ds has grasped explanations and instructions eg by asking him to relay these before task.

Classroom could use multi media tools and creative methods to enhance ds chances of processing, storing, retaining and retrieving info.

Objectives -- to communicate and manage his anxieties, increase his confidence and improve his self esteem

Provision -- staff should capitalise on ds ability and special interests throughout the curriculum, this will provide further opportunities to build up confidence and self esteem.

Strategies to promote calm and general well being to help reduce ds anxieties.

Regular time set aside to speak to a named adult about areas of concern, difficulty or success.

Building up positive and trusting relationships with staff eg ta/mentor so that he can openly express opinions, explore feelings and consider useful strategies, resolving and difficulties in an acceptable manner.

Objectives -- to conform to normal routines and behavioural expectations in school.

Provision -- for ds to learn coping strategies for situations where his wishes are frustrated and to develop him ability to manage negative emotions.

Instructions shod be given in a non confrontational style. Choices should be given to ds so that he feels in control of the situation.

Access to strategies to assist ds when facing stressful situations.

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sweetteamum · 24/02/2014 16:15

Do you think I should state that in my proposed amendments?

That's probably the best solution. I'll try their callback service.

I feel I'm not going to do Ds justice. I know realistically I am but at the moment I can't see the wood for the trees!

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MariaNotChristmas · 24/02/2014 16:29

If your ds hates being different, might he accept special school as a 2-3 year catchup option? No authority minds transferring a child back to mainstream if they're later able to access it for less than the cost of SS.

sweetteamum · 24/02/2014 16:56

That sounds interesting Maria. What would that mean for Ds? (Sorry, but I'm not up on a lot of these terms! :)

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sweetteamum · 25/02/2014 08:23

I'm going to call ipsea or sossen today

Is there anything I need to focus the time on? Or will we go through all reports and wording in the proposed statement. It's my first time getting someone else to go through the statement with me.

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StarlightMcKingsThree · 25/02/2014 08:56

Tbh if he needs that much support I'd be looking at a special school. This is because the school have been given permission to spend his money how they like and if they decide his biggest need is a new library so be it.

If you get the support specified you'll have to police it as the school is used to non-specific and will work how they always have and ignore the statement wording justifying it by saying it is unrealistic or the consequence of a pushy parent when other more needy kids need the resources more.

A special school can be 'sold'. Woukd he like a school that teaches clever kids without the costant yakity yack from the teacher and kids? Woukd he like things explain in his superior logic and language? Would he like to go to a posher school that costs twice as much as his current? Woukd he prefer to interact with more adults and less children? If independent, woukd he like more school holidays?

KOKOagainandagain · 25/02/2014 09:47

One of the (many) reasons for naming Indi ss was that DS1 could cope in that environment without 1:1 whereas the LA alternative was 1:1 in mainstream. He hates to stand out and he saw this as tantamount to putting a target on his back.

I would extract the need for a similar peer group and experienced, qualified staff and the hating to be seen to be different to argue for a particular setting.

A lot of the DC at DS1's school have co-morbid ASD, dyslexia, ADHD and anxiety.

1:1 was one of the biggest selling points. Ds1 had been out of school for most of year 7 and even though we had won Indi ss I was not at all confident that he would cross the threshold. But Indi ss was his best opportunity to join the school and blend in and it was fear of the alternative that made him willing to take a leap.

sweetteamum · 25/02/2014 11:00

Could I not get the la to change the wording about the school having the power to spend how they liked?

I honestly don't know how he would cope and I could only see Indy ss as a last resort after mainstream have failed.

Am I just putting off the inevitable ss?

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sweetteamum · 25/02/2014 11:02

I'd like to think Ds would cross the ss threshold for the same reason as yours, however his PDA seems to have really kicked in and to even bring the subject up leads to meltdowns :(

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StarlightMcKingsThree · 25/02/2014 11:30

You can get the LA to change the wording, even go to tribunal to ensure it, but what happens behind the schools closed doors and your child's communication disorder would be impossible for you to know.

The reality is that most schools think statements are unrealistic to deliver, written by people who don't understand the pressures of the classroom, given to children with pushy parents instead of those who really need it and they see themselves as having to share resources equally and fairly according to their professional opinion as a front-line deliverer.

This isn't helped by most statements they see being so
vague and meaningless as well as contradictory they have learned to disregard the wording.

Add to that they don't want to be obligated to use resources for just one child who won't achieve much when they could use them to get a further 10 pupils their level 4s SATS.

It isn't that our children coukdn't be supported in mainstream. It is that they woukdn't be.

Some schools, usually small ones, and rarely 'outstanding' who have not learned to milk the SEN system, will read the statement and do their very best to adhere to it. Those schools are rare and relatively impossible to recognise until you've been in them for a bit.

KOKOagainandagain · 25/02/2014 11:34

From the LA pov the person writing the statement does not have the expertise to judge severity and impact and so specify and quantify a wishy washy report. They cut and paste quote and reference the entire contents of parts 2 and 3 based on reports. Plus they will use the reports to argue that he prefers to work independently. Good argument for indi where there is no 1:1 as his preference increases the risk that m/s will fail.

btw I would not want to go to tribunal with transition to secondary just around the corner. Actual failure at transition is much more powerful than predicted failure.

sweetteamum · 25/02/2014 12:04

Thank you both. I can see what you're saying. The thought of having to go to tribunal, on top of everything else seems terrifying!

I have tried to get as much info from the proposed statement. These are what the authority are saying is ds's SEN.

Part 2 - Special Educational Needs

Background

Ds is 11 years old. Lives at home with x, y, z.

Ds has been dx'd with ASC, specifically PDA

Been seen and discharged by Camhs in 2013

Educational

Ds has strengths in his working memory and personal weakness in verbal comprehension

Ds believes he can't do or isn't good at anything

Ds has a negative attitude to learning

Ds gave fleeting eye contact and shared enjoyment and tolerated change. He was unable to integrate eye contact, social communication and gesture.

Initially very motivated however as tasks increased he became fatigued.

During assessment Ds was fidgety

Processing speed is assessed as average ability. However Ds ADHD will challenge him in visual scanning and coordination of simple abstract info together with sustained concentration and attention to detail.

Given his dx of ADHD, the learning process is likely to require more mental effort for Ds and he will find it difficult to concentrate and attend for long periods.

Communication

Ds parents report he has wider communication difficulties ie he does not know how to begin a conversation or make appropriate comments. Referral to salt for any subtle difficulties.

School state when calm and happy Ds can articulate. If he is angry or feels someone is doing him an injustice he is unable to verbalise and just repeats his view over and again. He may also refer to past events.

He often looks past the person he is speaking to ie avoiding eye contact

Ds tends to monologue at all times and likes to talk at length regardless of whether he is boring anyone or hogging attention. He will only listen if it relates to one of his preferred topics

Ds does not understand jokes and copes better if conversation is straight forward

Personal, social and emotional

Ds does not grasp sarcasm and can become annoyed about this.

There are times when he will smirk, which could be interpreted as cheeky and result in difficulties with other children, or adults who are unfamiliar with him

Ds is reported by parents to have unpredictable moods and he can suddenly flip with emotion, this usually happens when he is asked to do something or told no or if he is experiencing life outside his routine

Ds is becoming increasingly violent at home, especially after a school day and more so if he's had a bad day at school. He is physically aggressive. Has a good relationship with mum, who he turns to when things are bothering him

Ds appears to become extra anxious when asked to do everyday tasks although he may be hiding these issues at school. However his anxieties build up over the day then finds a release at home. Children with PDA May be compliant and tolerant at school then behave much worse at home

Clinical psychologist reports that it has been established that Ds presented with early avoidance of other children and relied very much on his sister. He did make friends at nursery and infant school, however these fizzled out during junior school.

Ds appeared to flit from friend to friend always looking for someone who would engage in sporting activities with him.

Obsessions are temporary and all consuming. He likes rugby, wrestling and bey blades

Ds cannot compromise and would rather abandon and fall out with that friend rather than give in and play something they want to do. He always likes to be in charge

Parents state that Ds avoidance of everyday tasks increasingly becomes a problem. He needs encouragement, prompting or physical help when washing or cleaning his teeth

Physical sensory and medical

Ds medical report states a diagnosis of ADHD and sleeping difficulties. He is prescribed concerta xl and melatonin - all med is reviewed by community Paed and can change any time

Report states that Ds is impulsive and lacks concentration, which can affect his learning and achieving potential

Clinical psychology and neuropsychological report states that Ds is rigid, social interaction and social communication difficulties are consistent with ASD, specifically PDA

Parents report Ds had delayed head control, crawled at 11 months and walked late at 19 months. He is clumsy and will often spill things. Was late to ride a bike and is still unable to tie shoelaces

Encourage to use a gym ball when anxious and stressed, which has a calming effect and allows him to continue either watching tv or play on xbox. Uses a wobble cushion at mealtimes

The views of Ds parents (we sent a huge report, which they've narrowed down to this)

Has always required a strict routine and behaviour was always better when he attended nursery

Picture cards and lists are used at home. However due to his demand avoidance, this becomes a long task as he gets older, individual tasks and routines are becoming longer and his avoidance is increasing

Ds can be aggressive and this can take the form of verbal and physical. Parents describe Ds as Jekyll and Hyde

Difficulty controlling emotions, which can often lead to a meltdown.

Very intimidating and controlling

Ds perception can be very difficult and he will believe the very worst in most situations

He will almost definitely feel aggrieved and cannot see that there are consequences to his actions

Lacks confidence and self esteem, he struggles to keep a conversation going, unless he is interested and knows what he is talking about.

Ds requires a lot of reassurance and encouragement sand genuinely feels no one likes him

Ds has built up an internal picture of himself being rubbish at tasks,

With appropriate support it is hoped that his self esteem can be built up

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StarlightMcKingsThree · 25/02/2014 12:16

Ffs. Pm me with your email address and I'll send you mine.

Do you have an electronic copy of that pile of shite.

How DARE they say ds has a negative attitude to learning. Negative attitude to crap teaching more like. Bet he could 'learn' to make Nutella sandwiches or build Lego cars.

StarlightMcKingsThree · 25/02/2014 12:21

Tbh I don't even know where to start with ripping it apart. Has anybody ever even seen him? Why all the assumptions based on his DX?

sweetteamum · 25/02/2014 12:45

Star I would really appreciate that. I could always scan it in and email if needed

I really don't know where to start and am ashamed about that. :(

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sweetteamum · 25/02/2014 12:46

The EP has met him once and school have had their say. They've taken little bits out of the private reports too.

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sweetteamum · 25/02/2014 12:47

Argh I can't find the button to pm you star!

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AttilaTheMeerkat · 25/02/2014 12:53

Go to any one of Star's posts and click on where it says "Message Poster".

sweetteamum · 25/02/2014 13:10

Thanks Attila, it wasn't showing on my iPhone but I managed it through the iPad.

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StarlightMcKingsThree · 25/02/2014 13:22

Sweet,

I don't usually do things privately as off the board you lose the different perspectives and challenge and I also haven't the time to go into the detail of every report you have which you will have to do.

I can make your statement much better but I'm not an expert and you'd be wise to run it by a charity. Hopefully though I can get it into a state a charity coukd actually work with it.

sweetteamum · 25/02/2014 13:27

I completely understand and would be grateful for any insight you could give me. I'm just on redial to IPSEA at the moment but they're very clearly busy.

I've just called the la and asked for it to be emailed over. I'll respond as soon as I get it.

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sweetteamum · 25/02/2014 14:06

Does anyone have the details for sossen as I'm sure I've got the wrong number. I'm trying 020 8538 3731 but it's just a continuous tone.

Any other charities you can think of?

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StarlightMcKingsThree · 25/02/2014 14:14

You can book a call back with IPSEA. Alternatively 3pm and 7pm are better times as they clash with the school run and bedtimes.

Don't panic. When did you receive the statement,"?

sweetteamum · 25/02/2014 14:21

Last Thursday - 20 February

Sossen lines don't open till 2pm so I'm just redialling them too! ;)

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StarlightMcKingsThree · 25/02/2014 14:38

Iirc you have 15 days to respond. Your response can be a complete rewrite or it can be 'don't be silly. It isn't specified or quantified. I'll be sendin my comments shortly'.

sweetteamum · 25/02/2014 15:27

Oh which one to choose. I may send the brief one first, so they'll know there's more to come.

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