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Congenital limb defects..

6 replies

PerksOfBeingMe · 15/02/2014 16:17

Hello, I'm nearly 20 weeks pregnant with boy/girl twins and at the 18 week ultrasound they couldn't see my sons legs. I had another ultrasound yesterday to try and confirm it. They think that his legs stop just after the knees. We're obviously in shock, but have been amazed by the support we've received. Luckily my daughter has no defects and is completely healthy. I was wondering if anyone else has children with congenital limb defects? And how you coped..? Any advise would be welcome!

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autumnsmum · 15/02/2014 16:36

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PolterGoose · 15/02/2014 17:30

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theDudesmummy · 15/02/2014 17:35

Yes, welcome and please keep posting here, it is a very supportive community, whatever your individual journey is, and whatever the specific difficulties there are many things we share, whether our children have physical, developmental or mental difficulties...

emmaand3 · 15/02/2014 20:41

Hi, my daughter has hip dysplasia - different obviously but Steps charity are a brilliant resource for children with a lower limb conditions. They are be able to support or point you to someone who can.

bluebirdonmyshoulder · 16/02/2014 08:50

Very sorry to hear this, it must have been a horrible shock for you.

No practical advice I'm afraid but just wanted to say please keep posting.

My Dd has a chromosome abnormality and I promise you, these little people will surprise you with what they're capable of. And you'll surprise yourself too.

PerksOfBeingMe · 16/02/2014 16:12

Thanks everyone! I shall keep posting.

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