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can asperegrs come and go??

5 replies

peppajay · 02/02/2014 07:43

My son his 5.5 and last year in reception the SALT picked up a few issues with social communication and routine rituals. In class he wasn't very social and would have huge meltdowns if things went wrong and he couldn't cope with the free play and lack of structure in reception. I had always had my suspicions as had pre school that there was something different about him. We were referred to a community paediatrician last summer and we filled in the questionaires and he scored very highly. We then had another appointment just after October half term when he had done half term of year 1 and he had settled in brilliantly considering it was a new class of children and job share teachers we were prepared for problems but everything went smoothly. He loves year 1 because it is much more structured and academic and he is very bright and he loves structure. So when we went to his appt in October he was doing so well we decided that we would leave the next referral stage. However fast forward to now and he is really bad again, we are supposed to be moving house and it isn't going to plan and he is getting really anxious about where and when we are going, also one of his job share teachers is pregnant so he had just got used to the teacher arrangement and now one has left and he is finding it all too much with a new teacher. Then this weekend he had won the class mascot for the weekend for good work and behavior but the child who had it the night before he was due to take him home forgot to bring him back to school so he never got him and he was distraught on Friday so they gave him a replacement but it isn't the same and he has been uncontrollable all weekend. Anywaay my question is Aspergers present all the time or can the symptoms totally disappear when all is going to plan. If everything goes perfect he has no issues the issues only rear there ugly head when things go wrong!!?? thanks

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PolterGoose · 02/02/2014 08:43

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Ineedmorepatience · 02/02/2014 10:13

Dd3's honeymoon period is always at the end of the school yr when she has taken months to get used to a new room and new staff.

The first term is always awful due to rubbish transition arrangement and then by the time we get to summer everyone has forgotten how awful September was and so dont bother with transition!!

Dd3's boat can be rocked by the tiniest things such as a timetable change or the cooks running out of roast potatoes, but when her day is going well and her needs are met at school many people would not notice her Asd.

The truth is many people dont notice it even when she is having an awful day because she is able to cope with the work (mostly) and she keeps her head down. Many more able children with Asd get missed in the school system.

Good luck Smile

Levantine · 02/02/2014 21:15

That's really interesting that other peoples DCs have honeymoon periods. Ds1 always seems to have a good first term at school too. He is very very difficult at the moment, and it all fell apart for him at exactly this time last year too

Hellosquiffy · 03/02/2014 09:53

Same here for DS. Sometimes he can appear NT but that is because we use so many strategies without even realizing which help him to cope. Then we will forget ourselves for want of better words and that's when his differences come to light, we call this a suckerpunch!.

Funnily enough DS copes well from Sept to Nov (because he has additional support for transition) but after that it's a downward spiral because CT's see him as NT so remove the support and they then receive the suckerpunch but sadly can't understand why Hmm

peppajay · 03/02/2014 15:18

thanks everyone. Exactly what happens with my son he had additional support to help him settle in and everything was going to plan he was even ok with the teacher being pregnant but she was supposed to be staying for a couple more months and this is what set him over the edge her having to leave and get a new teacher with very little notice. I have agreed to see his other teacher after school tomorrow as she said that something does have to be done because if something unexpected happens he cant cope. Just so annoying that when we went for ASD assessement he was doing so well everyone thought that he was doing much better and not to refer any further!!! But how wrong we all were!!!

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