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Aspergers Child

22 replies

CandyJournal · 29/01/2014 11:21

Hi

My youngest DS has Aspergers, I was just wondering if anyone could give me some advice/strategies on how to get him to try new foods/new things and how to take him to new places without having to prepare him which usually takes a week - 10 days.

He is a very well behaved child he always listens, but he is extremely emotional, he cries a lot and the reason could be e.g I left the room without telling him, if we are not home in a certain time space. So many to name.

Also he is very paranoid about his privacy e.g even to put on his coat or take it off, he has to go and do it in the bathroom (alone)

I work with him on a daily routine which can't be broken without preparation, I haven't received any support from anyone since we got the private diagnosis.

What I have written is only 20% of his disorder, so feel free to ask more.

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PolterGoose · 29/01/2014 11:26

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CandyJournal · 29/01/2014 11:37

PolterGoose - He has just turned 7 the reason why I am asking for advice because he does apologise a lot I tell him he doesn't have to keep apologises but he insists he has to and he will often say that he isn't the same as others, I assure him he is and he just gets upset. I love him the way he is and I wouldn't change him for the world but I do want to make some changes in hopefully he will benefit from, especially his privacy concern because it can be a nightmare at times.

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Marne · 29/01/2014 13:06

Hi, I have a dd1 with Aspergers, she is now 10, we have problems with food too ,we have just made a food reward chart containing 7 new foods ( one for each day ) to try, she then ticks off if she has liked it, not liked it or wasn't sure, when she has tried all 7 she gets a reward ( pokemon card ). Dd1 is also a very tearful child but it has improved as she has got older, she's slowly learning to manage her emotions ( though there are still times when she cries about trivial things ).

CandyJournal · 29/01/2014 13:18

Marne - Every time I suggest new foods to DS he just gets upset, I have tried bribery but it isn't that simple giving him something new (Birthday and Christmas we can't buy him things and wrap them up, we have to tell him beforehand that it is going to be his birthday or Christmas, then we have to prepare him for going to the shops for new toys, pens & pencils etc, then he will decide he only wants one thing.

I hope as he gets older he won't be so emotional and teary because I worry for him when he gets to secondary school, I just have to take one day at a time, thanks for replying anyway :)

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Marne · 29/01/2014 13:46

We have only just been able to get her to agree to the chart, at your ds's age she would have just cried, she still cried over the baked beans on her chart ( no way she was going to try them ), we took her to the gp when she was 7 because of her food issues, the gp told me just to feed her what she likes ( pizza ) every night and not to make a fuss, we have her vitamins to make up for the lack of fruit and veg in her diet. Her diet is still pretty poor but we have managed to add a few extra things over the years, it does get easier, they do learn to control their emotions ( not cry as much ), dd1 starts high school in a year and a half and I feel quite confident that she will cope, a few years ago I didn't think she would at all. I also have another dd who is the same age as your ds, she has high functioning autism and has no control over her emotions at all ( will scream and cry overt he smallest of things ), she also struggles with Christmas and birthdays, she always knows what her presents will be before hand.

CandyJournal · 29/01/2014 16:05

Marne - Thanks for telling me this, I don't feel alone anymore and I don't know anyone who has a child with Aspergers so I don't have anyone to relate to. He cried all the way home from school today and won't tell me what is wrong (it's probably something minor) and still is upset, can be very frustrating as we both know.

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Marne · 29/01/2014 16:40

I have to say dd1 is harder work than dd2, she has been crying for days ( on and off ) because she is worried about dying one day . Small things seem to upset her like loosing a game on the computer ( this can cause days of sobbing and not being able to sleep ). These things do get easier and they happen less often as they get older, although I am dreading the teen years.

moosemama · 29/01/2014 16:45

My ds is now 11 - will be 12 in April and also has Aspergers. We had big problems with food when he was younger. Refusing to try new things, some foods he simply wouldn't entertain, usually due to the texture, rather than the taste and some, chocolate included, that he couldn't even bear the smell of. At your ds's age he basically lived on pasta and cheese sandwiches. (Not great since we later discovered he can't tolerate gluten.)

We just worked around it. Every now and then we'd try offering a new food, but didn't push it, as we were fed up of mealtimes being a battle. We found maybe 6-7 meals he could eat - which were all basically different ways of cooking the same constituent parts - and rotated them.

He gradually improved over the years and as he got older and wanted to fit in more, was more willing to try some things. He's gone from not eating any form of potato, to trying chips and liking them, then attempting one roast potato each Sunday to now liking half a plateful. He still won't even attempt some foods, but has learned to cope when others eat chocolate near him.

I do think some of it comes out of maturity and some from wanting to be like their peers and fit in.

My ds is also highly emotional. It has been said about ASD that, contrary to what many people believe, it isn't a lack of empathy or emotion, but rather too much emotion that can result in overload and/or shut-down and that describes my ds perfectly.

Again though, he has learned to manage it more as he matures and at nearly 12, he manages his emotions much better. He still cries more easily than his peers, but has developed coping strategies so that he doesn't get teased for it. We did a lot of work around learning to scale his emotions to help him recognise that not everything is the end of the world and get some perspective on how good/bad things really are and that has really helped. There is a book about using feelings diaries for ASD on Amazon and there are quite a few on emotional scaling. We didn't use them ourselves, but someone else on here should be able to recommend a good one.

I do understand your worries re secondary school, I was just the same, imagining him bursting into tears all the time and ending up teased/bullied for it, but he started in September and it hasn't been like that. He matured quite a bit in years 5 and 6 and my fears for him re secondary when he started the juniors were mostly unfounded. It's not exactly been a smooth ride, but the things I was worrying about when he was 7 have, for the most part proven to be unfounded.

Keep posting, there are lots of people on here who have children who have ASD and there's a wealth of knowledge, support and strategies to share.

Ps, come over to Special Needs Chat and join in the weekly chat thread at the virtual Goose and Carrot pub. It's where a lot of people from MNSN get together to whinge, cheer, commiserate or celebrate whilst sharing virtual Wine cake and chocolate. There's a new thread that starts every Friday evening, but then it runs for the whole of the next week. The current one is here.

CandyJournal · 29/01/2014 16:47

Marne - Your DD and my DS sound so similar. Hopefully I'll find a few new strategies that will work, maybe someone else is going through the same that you and I and came offer some advice. Thanks again for replying.

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Hellosquiffy · 29/01/2014 16:54

My Ds hasn't really had any issues with his diet it is more to do with food touching on the plate so I don't know if this will help. We try the gradual approach for most things with Ds being sure his anxiety levels aren't too high when we do. Could you find a way of doing this with his food?

Not exactly food BUT It took us 7 months to get DS to have a shower...started with shower running while he was down stairs, then he sat on the stairs with dad while I had a shower, then on the landing while I showered, in bathroom, hand under shower while still dressed and left when he had enough and so on. Now he loves having a shower and we can't get him out!

Again I'm not sure if it will help Smile

CandyJournal · 29/01/2014 17:21

Moosemama - Thanks :) what you wrote is very useful and it gives me hope that he will eventually get better.

Hellosquiffy - Thanks for replying we can't even get him to touch or smell new foods I will look for some new strategies but it will all take preparation

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moosemama · 29/01/2014 17:34

Candy, ds used to get upset if someone at chocolate in the next room. Now he sits at the table while his siblings eat chocolate and can even cope with them eating it in the car while he's in there.

Of course me being a chocoholic Blush that one was a bit of a priority for me to deal with! Shock Wink

CandyJournal · 02/02/2014 09:08

DS has been having a lot of meltdowns over the past few days ranging from 1-5 hours, I lost it with him yesterday, he had another during the night I'm finding it hard to hold my temper because he is just running around the house crying and is eating very little, Just some advice please on how you deal with it?

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Ineedmorepatience · 02/02/2014 10:23

Being hungry is going to effect his mood candy, Dd3 is horrid when she is hungry. What does he actually eat?? Sorry if you have already written it.

I would just give him what he will eat and get his meltdowns undercontrol and revisit the food thing later.

Also make sure he is drinking, Dd3 is 11 and still doesnt recognise that she is thirsty! Dehydration can effect mood too.

CandyJournal · 02/02/2014 10:35

Ineedmorepatience - We can only get him to eat Scallops & Mushrooms, terrible diet I know. He will only drink water which he drinks a lot of.

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Ineedmorepatience · 02/02/2014 10:48

Go with scallops amd mushrooms then for a while, some children only eat chocolate or custard cream biscuits!!

You need to lower the anxiety levels before you can move forward.

Will he tolerate new foods (tiny bits) on a plate next to his on the table. He needs to see new foods 20+times before it isnt new anymore and before you have much chance of him trying it. Only introduce one thing at a time and let him have some control over what the new thing is.

Food =Control, children have very little that they can control in their lives but food intake is something that they can control easily.

Good luck Smile

CandyJournal · 02/02/2014 10:59

Ineedmorepatience - He won't eat crisps, chocolates, sweets etc. I have tried to get him to touch and smell new foods but he won't, we all eat together but he is never interested in what others have on their plates.

I will try and introduce other foods to him, thanks

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PolterGoose · 02/02/2014 11:15

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Ineedmorepatience · 02/02/2014 11:25

I agree with polter about seeing a dietician.

While you are waiting, try to reduce any verbal encouragment at the table as it can just make the table into a war zone. I would pretend you dont care what he eats during mealtimes and use other times to talk about trying new things.

CandyJournal · 02/02/2014 11:42

PolterGoose - He is not taking any supplements, that is all he will eat, for breakfast he will have some fried mushrooms with water to drink, lunch he will have scallops and mushrooms, if we are at home. The school he attends are trying to help, they advise me to send him to school with a regular pack lunch, sandwich, snack and fruit. Everyday he comes back with his lunch box filled only the bottles of waters are missing. And Dinner time he will have scallops and mushrooms. Have booked appointment with dieticians before, only managed to get him there once couldn't stay for long as he got upset whenever I mentioned going back he would freak out.

I do not restrict any foods, I'd be more than happy to give him what he wants.

Ineedmorepatience - Lunch is soon he wouldn't have breakfast today, so I will try and get him to have some lunch, I will speak to him about trying other foods.

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PolterGoose · 02/02/2014 11:56

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CandyJournal · 02/02/2014 12:23

PolterGoose - No OT input in regards to food, when she next visits the school I will make her aware. He has some sensory issues, he is not too bad with smells.

He is just not interested in new foods, when I have asked him if he wants to try new foods he has said 'no thank you' asking him too many questions or the same thing tends to upset him.

He has never eaten more than he does now I try and encourage him to help prepare meals but he wont.

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