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How is autism diagnosed?

17 replies

SwayingBranches · 28/01/2014 10:44

After finally admitting ds2 probably has autism, what can I expect? ds is 2 years 3 months old.

I'm taking him to the doctors tomorrow to ask for a referral. I'm taking with me the m-chat checklist I printed out of which he has a risk score of 16, including failing 5 of the critical questions, it says on it failing two critical or three in total means a child needs to be assessed. Our childminder says she also thinks it probably is and will write a report if necessary.

So what happens after that? Who is it he sees? Is it questions/observations? How often? I suppose length of time is going to vary by area? I feel absolutely clueless.

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zzzzz · 28/01/2014 10:58

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PolterGoose · 28/01/2014 11:00

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chocnomore · 28/01/2014 11:02

we were referred from GP to developmental paed. We saw the paed a couple of times and a SALT as well. It was then decided to put DD on a list for the ADOS and DD was diagnosed through the ADOS. it took 9 months from seeing the paed for the first time to getting the dx.

SwayingBranches · 28/01/2014 11:13

We took him at the end of December for a referral for a hearing test as we were "sure" it was this and he'd get grommets and it would sort everything out. Though we haven't had a letter yet. I was going to wait until we'd been to that, but I can't. Besides, I really don't know how on earth they're going to get him to co-operate in any way for a hearing test.

So it looks to be lots of visits to different things and lots of months then! I guess I just want it to be quick so I can say this is the reason for X instead of feeling like a bad parent with a naughty child Sad

Really appreciate the answers.

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PolterGoose · 28/01/2014 11:16

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mymatemax · 28/01/2014 11:30

here, pre school children are referred to a child development centre at the hospital where they have a block of assessment sessions involving a multi disciplinary team. At the end of the sessions you have a feedback meeting & if appropriate dx is given. Ds2 also had disco assessment & a home visit before CDC assessment as had pre existing dx.

zzzzz · 28/01/2014 11:32

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SwayingBranches · 28/01/2014 11:32

I can imagine that.

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SwayingBranches · 28/01/2014 11:32

About it being liberating

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SwayingBranches · 28/01/2014 11:41

zzzzz You are so right. We're not doing anything differently than with ds1, in fact I felt we were doing better since we'd already had a child and weren't so clueless! And ds2 also has his big brother interacting with him.

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SwayingBranches · 29/01/2014 12:06

Saw doc today, didn't realise she was the child development doctor. Anyway, no argument, he has been referred to paediatrician. She even kept my mchat checklist print out which I had used a highlighter on. Organised, me! She's going to attach to letter to paediatrician.

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zzzzz · 29/01/2014 12:12

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PolterGoose · 29/01/2014 12:14

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SwayingBranches · 29/01/2014 12:26

I thought I had it all sorted in my head but I babbled here there and everywhere so a diary is a good idea - or a bullet point Word doc or a PowerPoint presentation Wink

I'm not usually good at being organised. All this going on and ds1 leaves for France at 3am Friday with school. Have I even made a packing list, not at all!

I feel weirdly giddy but also really exhausted.

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PolterGoose · 29/01/2014 12:47

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SwayingBranches · 30/01/2014 00:44

Here I am with insomnia. Need time to process things and it's my only people free time today. At least I'm finally doing the list for ds1's trip and I imagine I'll get it packed shortly.

I felt so relieved for a few hours and now, I don't know. It's so uncertain how he'll develop. Though I had more patience with him today. He just needs time to process things. Like a nappy change, he understands when it's time for one and will either come willingly, or throw himself down on the floor, wail for a bit, and then grudgingly drag himself over like one of those cartoons of a man in a desert pulling himself to an oasis. But tell him it's nappy change and then pick him up will result in a big tantrum and possibly kicking the crap out of you if you attempt to do anything. And the five minutes it took for me to cajole him to walk after he got out of the pushchair felt like me being a good parent. But then I think, there isn't always time to patiently tell him and wait for him to decide to walk...

Rambling on I know.

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claw2 · 30/01/2014 08:07

At age 2, ds was initially referred to community pead and SALT. Paed then referred to OT. We then had 6 monthly follow up appointments with Paed and weekly input from OT. Follow up appointments in nursery from SALT. This area were very bad with professionals communicating, making follow up appointments or doing what they should. I had to make a complaint.

By age 5 ds had started school and his difficulties quickly became more obvious. Following my complaint, ds was assessed in school by specialist ASD SALT who suspected ASD and referred to Paed in our borough, as we had moved house by then.

Ds was seen by specialist Paed, who was part of the CDC and a 'team' including SALT and EP and ASD specialist. Ds was assessed by specialist SALT in February and history taken from me. Follow up appointment in June where he was assessed again by SALT, which was observed by EP and ASD Specialist. He received his dx same day. So from start to finish by a team who knew what they were doing it took 5 months.

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