CAF Advice Needed - Not-Working-For-Us-Thinking-Of-Dropping-It-Possible-Reprecussions?

[RockinHippy]

No replies & after searching CAF topics, think I put it in the wrong section

Sorry its a bit of a rant, in my defence I felt a bit cross about it & dealing with migraine

Since writing it, I've emailed insisting the LP retract her advice given without my knowledge or consent & I've told the school to ignore it as its bad advice - not sure if that was such a good idea after reading some threads on here , but I'm also seeing from those threads, that I've no idea either why it was suggested in the first place - money ?
or that its ever been done properly - only ever been me, 2 school nurses & HT - 2 class teachers at the last one I was excluded from

I'd be grateful if you would take a look

TIA :)

Medical professionals meeting with school staff minus parent rings alarm bells for me. This is simply because often only the parent has the FULL history and picture.

Anytime I ceded any kind of control, (usually totally unknowingly!) over DS's medical stuff it's created real problems my son, as school staff are not medically trained so often don't understand the fine print and jump to their own conclusions. Nor do they attend all the crucial specialist medical appointments where certain things are thrashed out.

The best example I can give is that my son has a sleeping disorder, that's not the same as I can't be bothered to introduce a decent bedtime routine. Yet that conclusion has been repeatedly drawn by various school staff over the years iyswim when the help DS has needed has been a reduction in his anxiety triggers at school, something I have no control over at all.

I worry that sometimes CAF's can be used to delay access to specialist NHS diagnostic assessments, though I do recognise their value in some cases. Legally you are entitled to a copy of the minutes of the meeting you couldn't attend, I'd put a written request in ASAP.

Thank you bochead I did put in a written request for the minutes of the meeting as soon as I found out, only to have to school nurse/LP come back saying that she was sorry that I thought the meeting had gone ahead without me, but it wasn't a CAF meeting, just that they happened to be in the school & DDs teachers & HT were available to "have a chat"

& yes alarm bells ringing here big time, even if its just that the LP is completely useless & a bullshitter of the highest order

As a family we've no worries at all, DD is the centre of both DH & Is world & we have no housing worries, my time is dedicated to her as I am at home, i do have some not insignificant health problems, but that has meant I am always available for DD, whatever her needs, where as I was a workaholic pre health problems, we have a fantastic relationship, she is a model pupil in school & an all round great kid, I've a pile of school reports that back that too - but having read more about what CAF should be, its never happened that way & I don't see any benefit from it at all, if anything this silly woman gets in the way of the good relationship Ive previously had with the school - they were better pre CAF, because I spoke to them directly, meetings could be arranged anyway, just without the LP taking minutes that are always wrong anyway & I have to then go through & correct them & she's now undermining advice I pass onto the school. -

hell the second Nurse who is often in the meeting & second LP told me she was a trained nutritionalist & then wrote notes listing DDs intolerances & couldn't get a single one correct, that's when they are common intolerances - for example she wrote Benio 8 instead of benzoate

I do feel there is an agenda, that's my gut instinct on this & Ive decided I want out all together & maybe look at it again for high school if its of benefit, which I doubt if we get our chosen HS - the only thing I can think of is DD has been a bullying victim in the past, some quite extreme & I've banged heads & gone right to the very top as a result at times to get things resolved - Ive made it known that I don't think they dealt effectively with the bullying, certainly not fast enough, they still don't, but DD is fine with it now, but I do believe part of her anxiety problems stem from that - DD even says that herself & I have told them that - I'm starting to think that could be the real route of all this & it pees me off big time