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ABA experiences please

7 replies

sammythemummy · 15/12/2013 16:08

Thinking of starting an ABA programme, well I'm pretty sure I will. It's obviously really time consuming and costly so I wanted to hear your experiences, especially so I can show my husband who's not on board with it(doesn't believe that our dd has any kind of disability).

What were the main problems u wanted to tackle?

Did you achieve what you set out to do?

How long did it take?
TIA

OP posts:
sammythemummy · 16/12/2013 09:31

Anyone?

OP posts:
salondon · 16/12/2013 11:12

Hi Sammy

I would address this in a multi-pronged manner..

1 - My husband was in denial too. I knew ~18mths old that something was not right. It took me another 18 months to convince him. However, you already have a diagnosis. Is dad saying that he doesnt trust the diagnosis given by a multi-diciplinary team of professionals or he thinks your daughter has been mis-diagnosed(both of these can happen by the way)?

2 - ABA - Now, that one was easy. Once he accepted that our daughter was on the spectrum it was easy for him to see that ABA is the only way she is ever going to learn. I simply said to him that if SLT was enough, she would have learnt by now. Have you shown him videos of ABA (there was one posted on this board last week - very informative)?

3 - We met some families similar to ours who were teaching their kids using ABA. To be honest, once the 1st two hurdles were crossed, meeting the families isn't always needed. But that helps in a lot of cases

4 - I started doing as much ABA as I could on my own(I now know I was doing some of it wrong). I know a lot of families (myself included) use consultants and tutors. However, I am sure you can have someone come and train you for a few hours every few weeks and do it yourself. I know you have a small baby to look after. Delegate whatever you can. What you do with your child now will made a huge difference in her quality of life in coming years.

5 - Video her - keep a diary of what her hinderances to learning are. Take Daddy to nursery meetings. I always have a list of things I want to tackle and list of interventions I want to try

6 - Start the statementing process asap.

7 - Your daughter starts reception in Sept 2014? If yes, have you started looking at schools?

8 - Work out the finances with your husband

Good Luck!

bialystockandbloom · 16/12/2013 12:58

We started when ds was 3.6, just before he was diagnosed. I had met someone locally who was doing it with her ds and even though ds hadn't been dx I a) knew he would be, and b) even if he wasn't I thought he needed some help.

It was really helpful seeing another programme in action - maybe you could try and find other families locally?

We did VB, which is rather more Natural Environment Teaching than 'traditional' ABA which can be more table-top based, though in reality there's not much difference. We chose VB as ds is pretty high-functioning and the main focus of his programme was teaching play and social interaction (he had many copying skills already).

The main problems were play skills, social interaction and social communication - he had some functional speech but it was limited, and no conversation, and his interaction with other children and unfamiliar adults was extremely limited. He had no imaginative play at all, and his play was repetitive and limited. He had rigid behaviour and tantrums as a result of either not being able to communicate, or being forced into situations which he wasn't ready for.

We started off with 4 days a week (24 hours), then down to 18 hours, and 2 of the days were at nursery where his tutor shadowed him. He is now over 6 and a half (7 in April) and we currently don't have any formal teaching since our last tutor left in November on maternity.

It achieved everything we thought possible, and more. It's only now actually that I can see how impaired he was at the time (compared to now), even though he was always high-functioning. He is hugely interactive and engaged, is able to communicate effectively, plays really well, has genuine friendships, is at mainstream school and top of his class with no academic support needed, and his behaviour is fantastic. He is also now motivated to do things and try new things simply because he can see that they're fun and now has the skills to do them - eg before he would not attempt social interaction because he simply wasn't equipped with the skills he needed. I remember asking our consultant very early on how it would be possible to teach a child to want to interact as I coulnd't see how you could, and the consultant said it was like learning to play the piano - you just need to be taught the right skills. And honestly, it happened before our eyes.

He does still need help with things like understanding other's intentions, realisng the impact of his behaviour on others or their behaviour towards him, and he can still get obsessional about things (eg measurements of time/units/size) and can launch into conversation without caring or noticing if the other person is interested, but these are things we can continue to help him with. His pragmatic language also needs work, as he does take things at face value, so can't always work out something by inference.

But he was genuinely transformed within 6 months-a year of starting. And most importantly, he is also 100% happier than before - his world has opened up and as his skills have increased, so has his confidence to try things, so he is now able to make decisions for himself to do things which he will enjoy, whether that's activities (he does loads of clubs etc) or just having a playdate at a friend's house.

I know not everyone has such dramatic results as us, depending on the severity of the ASD I guess, and we were also lucky that ds didn't have too many severe behaviours that might really make it harder to teach (eg stimming, language, sensory) but honestly no-one I know who has done ABA, both in RL and online, has regretted it for a second.

The setting up of a prgramme, finding good tutors, and of course the cost is difficult, but once you have the programme set up it runs itself really. Also getting everyone else on board (DH, family etc) is crucial as you all need to be consistent.

If you have a consultant or programme provider already maybe they could find a local family who would let you & DH sit in on a few sessions? Like you my DP wasn't convinced at all to start with but it was obvious simply by the results after just a few weeks that it was the best thing to do.

HTH.

salondon · 16/12/2013 13:22

oh yes, we do VB too.. I am not sure many people do ABA anymore - am I right?

sammythemummy · 16/12/2013 15:08

Thank you you've both been helpful.

Sal

OP posts:
sammythemummy · 16/12/2013 15:12

Oops,

Salondon, my husband is a mixture of both, but he generally believes she behaves like a normal 3yo.

I should be starting it with an organisation who will give me 3 days of training and will take it from there.

baily was your son fully verbal?

OP posts:
bialystockandbloom · 16/12/2013 18:16

Oh DH/DPs

When I first mentioned my fears to DP (and it took me months to even voice them aloud to anyone) he told me I didn't take him to enough playgroups Hmm

Does your DH see much of her amongst her peers? Even birthday parties etc? Has she actually been diagnosed?

In answer to your question, at 3yo ds was verbal but not fully. I probably thought he understood more than he did - one of the first things the ABA team did was teach him "when, why, who, how" and it was a real shock to me when I realised he hadn't actually understand/used them before. His language was primarily functional, no conversation whatsoever.

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