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Regrettably I need to talk about daytime pull-ups for 6yr old DD (ASD/SPD)

8 replies

TheLeastAccomplishedBennetGirl · 07/12/2013 21:03

She's losing continence again, it's happened this time of year for the past 3 years, and most definitely NOT due to infection.

She's very recently had an indepth OT assessment to do with her sensory processing in relation to her anxiety. We've not had the feedback yet, but were sat in on the session. It's obvious her physical processing is inhibited when asked to complete a mental task (she couldn't answer a very simple question while putting on her shoes, in fact she couldn't even put on the shoes because the question was troubling her so much)

School have finally agreed she needs visual schedule to remind her to go to the toilet and drink during the day, but with all the upheaval and stuff that goes on at this time of year, she's having more frequent and heavier urinary accidents.

I've gently broached the subject with her, told her there are big girl padded pants that would be worn under school clothes so if she did have a big wet, that at least her clothes would be spared and she wouldn't piss right into her shoes/boots (thank fuck for DLA, she's only had this pair for 2 weeks, and they smell already Sad )

Has anyone else had experience of this at her age?

I feel awful that I'm having to accept this a regression, but can't bear to see her face when she realises she's wet again. I want to help her, but is this going to help?

Any recommendations of products we could try at home, can buy from asda etc?

thanks for reading

OP posts:
boobybum · 07/12/2013 21:23

Hello, no advice as such but my 4 year old DS is still in nappies. We use Libero pull ups from Tena Direct. You can order online for free delivery and they should also send you out some free samples to make sure you get the correct size. If you want something you can get at your local supermarket then maybe Drynites might be worth a try? They will also send out samples if you look at their website.
Lastly, have you contacted your local continence service because you may well be entitled to free nappies?

TheLeastAccomplishedBennetGirl · 07/12/2013 21:30

I haven't been in touch with local services, booby, thanks for the reminder.

Like I said in my OP, this has been an issue for 3+ years running now and the only advice we've had is 'take her for urine tests at GPs'

Drynites, that's the name I couldn't remember, so thanks for that too.

I think if I manage to persuade DD to wear them, I'll have to buy them in a shop, knowing the time it takes for any sort of referral she'll have ruined more shoes and it'll be February and this will all have blown over (for school etc) as her anxieties will drop after christmas

Thanks for reading and replying on a saturday night Grin

OP posts:
starofbethlehemfishmummy · 07/12/2013 21:44

Drynites are probably the most easily available type - can you buy her some pretty "big" pants to go over the top too? (we used boxers over ds's but obviously they wouldn't work for a girl).

Also have a word with the school nursing team to refer you to the specialist continence nurse.

Moomoomie · 07/12/2013 21:54

I too would recommend dry nights, they are expensive, but are more absorbent than Libero.
Large pants over the top of them or trousers, if she can wear them.
Yes, referral to continence nurse.
Is she dry at night yet?
My 6 year old FASD diagnosis, wears dry nights or Libero at night and sometimes during the day too. TBH she is not toilet trained. She has a timer at school that goes off hourly to remind her to go to the loo. She still comes home each day with at least three sets of wet or soiled clothes.... Sigh!

TheLeastAccomplishedBennetGirl · 07/12/2013 22:00

DD has been dry at night since 2.6yrs Sad this is a daytime problem, that manifests when she's stressed

yes, DD has her schedule for toiletting, she has 4 reminders a day, as well as opportunities to go during break/lunch etc

she still wets at times, but doesn't always feel able to speak up, so will sit in it and ask me to help her change when i pick her up at home time

she's also been chronically constipated recently too, we think also for the same sensory reasons.

she tells me she doesn't always know what the feelings in her tummy are for, so we set the clock each and every night for toilet time so she can sit and try to empty her bowels

it's like we've been potty training for 4 years, so indeed

OP posts:
Levantine · 08/12/2013 06:53

We have similair issues with my ds ie constipation and also wetting when stressed. Both our OT and our paed made referrals to specialist continence clinic - the OT one came through quickest. I think it is worth pushing for

Moomoomie · 08/12/2013 11:21

i know how you feel about toilet training for years.
Unfortunately my 13 year old dd is still having toileting difficulties.

ouryve · 08/12/2013 22:12

We use drynites/underjams round the clock with ds2 in between standard nappies, as theyvarevthe cheapest option, usually (and he is less inclined to rip them)

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