Who do you ask when need of some quick advice (apart from your good selves)?

[Hedgyhoggy]

Ds is getting increasingly difficult. He has previously been in a booster seat but tonight he had a meltdown and wouldn't stay in it. Ended up repeatedly stopping (on the cold bleak moors) to cajole him back in. Needless to say we ended up limping home and I fear that if this is anything like how his behaviour is going then it's going to be his new trick. Who do you ask for some practical/professional advice, quickly! Also growing out of nappies. At the mo am feeling increasingly out of my depth, as he is getting bigger his problems are becoming more obvious and less easy to deal with. Can't throw him over my shoulder anymore and have baby to . I have so many questions And they seem to be constantly changing. Help

My ds has autism. I come on here for advice but have also phoned the helpline number for NAS. They take a few days to phone back but the advice I received was excellent. I also have access to a drop in clinic where I can go for advice and a support group (though not keen on the support group).

There is also a new help line which has recently started in my area. There does seem to be quite a lot of support available for me. I hope you can find some too. But no where is as good as on here x

Thanks tacal. My ds has moderate learning disabilities amongst some physical problems. I have trawled the Internet for support groups/advice but there is hardly anything out there. I feel like learning disability is a bit of a vague dx especially as no cause has been found. I think your right though, the best advice has got to be from those who have experienced it first hand x

If I can't find it in the archives, here, then I consult aunty google.

How old is your DS?

4 and a half and big. Not thought about archives,I shall have a look. Thanks ouryve

Hi, you can get something called a Crelling harness which is harder for children to get out of.
Also for larger nappies I would recommend using Tena Direct. My DS uses their size 7 Libero nappies and pull ups - They do free delivery and if you contact them they should send you out some free samples so you can make sure you get the sizing correct.
As your son is over 4 you may be entitled to free nappies from your local continence service and your HV should be able to advise you on this.

I was going to suggest a Crelling harness.

You could also have a look her at Houdini straps and other things.

You mentioned that you were going over the cold, dark moors. Just a thought, but has this behaviour started or become worse since the dark nights set in? Could he be scared of travelling in the dark> If this is the case, then light-up toys in the car, or even a little set of battery operated fairy lights draped somewhere out of reach might help him (check the legality of this though!).

Sorry, I've not answered your OP, just given advice

I go to other mums. I'm really lucky in that I've built up a great support network through the local Parent Carer Council, and my great friend and neighbour is also a parent of a disabled child, although I don't know anyone in RL who's in exactly the same boat as me, it's nice to meet up with people who 'get it'.

Do you have a carers centre in your area? They can be a good place for getting advice and meeting other parents.

I get most of my advice from here, if you ask very specific questions someone will usually be around to help.

Just occasionally the family support worker at my local sure start centre has a good idea. We are not on his case load but he can have families with children with SN's upto 18 I think.

Agree about the free nappies though, you should be able to get them delivered.

When children get too big to scoop and run you need to try to find some negotiation tactics that work eg, bribery

It isnt easy and you have to choose your battles.

Good luck