Hi this is my first post here. I have 3 children, our youngest daughter who is 6, was diagnosed with EDS in October 2012, after being diganosed privately by Professor Grahame and Dr Ninis in London. This was after the worst year of our life, as the local hospital had referred us to social services, this was purely based on the hospital saying there had been 15 missed hospital admissions, when in fact it was only 2 and they had accepted why we had missed those, it has been nearly 2 years since we were forced to take our daughter to the hospital as a in patient, for two weeks, and they denied us a second opinion for 10 months. We had wanted to take her privately and had a appointment worked out with my husbands BUPA via work for the week after they came round our home. This was also denied to us. We have two complaints with the local authority and also the local nhs hospital trust. the hospital admitted it was only 2 missed admissions. It has taken 2 years of going through the complaints procedure so far. the health complaint as they missed our daughters diagnosis, (and the consultant was fixated with one symptom with her, her "constipation" as he saw it, which was really slow gut motility, delayed transit, and gastronintestinal failure) is with the ombudsman and the local authority complaint is with the second stage independant officers. our daughter has a multitude of complex medical problems. It has been a long slow battle to clear our names. Has anyone seen any gastro specialists for EDS? We have so far paid out a lot of money to get her seen privately. and we have a appointment tomorrow to see Dr Rawat as well. Has anyone else seen him and if so what happens at a appointment and is he good to children with EDS etc? many thanks for any help in this matter. Emma :)