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After *everything* we finally and I mean finally have a dx. Feel sad but relieved and could do with some help input...

28 replies

MrsGerrard · 11/07/2006 18:13

Well things have been officially diagnosed today.

After "everything" we have been through the cp rang me tonight and has officially diagnosed dd with Aspergers. She is 100% that this is the case (good enough for me!)

The Aspergers is a primary need, followed by Adhd, language disorder and then developmental co-ordination difficulties.

I have been really upset but am so, so relieved. No more is she or isn't she.

Apparently girls are much harder to diagnose and dd with all her complexities has been even harder.

She said that after gathering all her reports together and seeing all the info it was very plain to see.

At least now we can move on and at the end of the day if the senior high school isn't right because of this dx then so be it.

Anyone else with a child with AS or asd who has any advice I would really appreciate it.

Thanks and thanks everyone for all your support, the rollercoaster of dx is finally over!
Blossomhill xxxxxx

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MrsGerrard · 14/07/2006 18:05

Thanks socci and dinosaur

I think my whole perception of dd has changed enormously now I have answers

Wheras before (this sounds awful I know) if we were out and she put her fingers in her ears I would take them out. Now I am leaving them. I know it's part of the condition and makes me feel so much better knowing there is a reason she does the things she does!

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Davros · 14/07/2006 18:55

Sorry to hear you are feeling so crap BH so they have dropped the Language Delay thing then? Was it just an error? Its no surprise that you and DH feel like you do, if you tried NOT to feel like that and cover it up it would be much worse. You need to feel bad before you can move on. I highly recommend that you contact the NAS Surrey branch which is a fantastic branch. They have a great website of their own, there's a link on the NAS website. The man who runs it, John Muggleton, has more than one child on the spectrum. I saw his son Josh give a talk at an NAS meeting, he is about 16/17, all about having AS and going to m/s school, he is amazing. Dare I say, we should arrange a meet up after the SUmmer?

MrsGerrard · 15/07/2006 09:50

Hi Davros

A meet up is definitely in order very soon!

In many ways it's great as I think lots of people at school suspected asd but couldn't say so now there is no beating around the bush. We can talk openly about dd's difficulties. I have also been on a site with adults with AS and lots of them haven't been dx until later on in life. Knowing how desperate they all were to receive a dx has also added to the feeling of knowing that this is right for dd.

Ds is a funny little thing. He is the most unasd child you would ever know but does get on with quite a few boys with Aspergers that we have met on the "sn circuit". When I told him that dd had the same as "Peter - his friend" he was like "oh that's not too bad". I asked him if he wanted me to get him a book to explain more and he said "no thanks mum she is just dd". So I won't push it.

Thanks, I have looked on the NAS Surrey website and it's great as I live in Surrey. Lots of useful information. I think the NAS are great. Have rang them a few times and they have gone out of their way to help and send me useful info.

I think the language delay was just a mix up. Even though I was worried as I wanted dd to go to the high school with the language unit the cp has said that she feels dd will be far too vunerable to go to a large ms high school (even with a unit).

I think the finallity (is that a word?) is in a way very good as I was driving myself mad as I always knew but yet wanted to believe all the pros that didn't think she did. I guess I held on to the hope that it would all go away

She was dx by the best so I have no doubt that the dx is correct. Here is the site here of the cp that dx her. The support I have receieved from this lady has made it not so hard to take.

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