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Developmental Verbal Dyspraxia?

4 replies

jellylegwobble · 08/11/2013 21:23

It's not diagnosed, only mooted at the moment, but I was looking into this regarding ds.

One aspect I'm finding hard to find information on is prognosis as there is disagreement. It varies from a child 'outgrowing' it to other websites that seem to speak of a more stable neurological problem.

As anyone had a 2/3 year diagnosed with this? Thank you

OP posts:
osospecial · 10/11/2013 20:19

Hi jelly, my dd does not have a dx of this but has ASD with significant speech problems (acquiring new words and pronouncing them properly)

Have you looked at this website

www.dyspraxiafoundation.org.uk/wp-content/uploads/2013/10/Developmental_Verbal_Dyspraxia.pdf

I don't know about prognosis as my dd is only 4 and has ASD aswell but I find it helpful to search old threads on here sometimes, this seems to have some input from people with DC diagnosed with DVD at a young age and how they have progressed if that's any help?

www.mumsnet.com/Talk/behaviour_development/998582-Does-anyone-have-a-child-with-verbal-apraxia-Really-worried/AllOnOnePage

Ahhhcantthinkofagoodname · 10/11/2013 21:20

Hiya jelly
My DS was diagnosed soon after his 3rd bday with verbal dyspraxia and ASD. I also had a speech disorder as a child and was apparently finally discharged from speech and language service when I was 5.5. Apparently DS is similar to how I was. The other day we went to look round a mainstream primary which has a speech and language unit attached and were told kids are typically with them for 2-3 years. My understanding is that most kids do talk eventually, it just takes a while and lots of "regular and intensive therapy". I for one talk fine now and no one would ever know I couldn't talk till I was 4 or 5! I found a good thread on verbal dyspraxia net mums a while ago.

jellylegwobble · 10/11/2013 22:36

thank you!

He could talk all the day long... I think I've been in denial about the fact only I understand him, and even I struggle. He's hit nursery and can't communicate the most basic needs.

I'm not sure about it, to me he's in a place where it's all coming together very rapidly. I'm sure to SALT seeing him now it's high need BUT at his current rate of progress I'm ok. At two he had no words at all, at 2.5 he had the basics Like 'Mama' to get attention or one word utterances but used mainly gesture. Now at 3.5 he's talking in sentences, rabbiting on in fact, it's just there are so many substitutions/ swaps he's not intelligible to others. He not only changes sounds but adds/ removes syllables or rearranges them. Being used to him I find some pattern, eg tama-a-pipo is hippopotamus. He's relaxed with me and talks loads, I understand enough to get his meaning most the time but with others he seems to be unable to retrieve words once under pressure, or use particular phrases rather than free flow chatter. He'll observe the world go by and chat away with what's in his head, but when questioned goes mute or changes the topic by distraction. Obviously he has a way to go, but the change in six months is MASSIVE.

I'll look for that thread.

OP posts:
Jellyandjam · 11/11/2013 11:45

Hiya Jelly, my Ds is 4.11, he doesn't have a diagnosis of verbal dyspraxia but has significant phonological and articulation disorder and is not intelligible to those outside the family. He is similar to your ds as in he had/has lots of substitutions and misses syllables out and also there are some sounds he is not (or was not as making progress now) able to articulate properly. He is now in individual therapy (had group therapy for a few months earlier in the year before we moved). He had he sounds re-screened again this morning. He has had 6 NHS sessions (with a three week gap and 6 private sessions and today she said his profile has improved massively since the last screening. So I am feeling positive today. I have my up and down days with it as I can see how far he has come in six months but to others they just see a little boy who they can't understand. I have to keep reminding myself how far he has actually come.

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