I have a 6yr old DS with ASD who is currently not at school, and a 2yr old DS who is currently waking every morning between 3am and 5am.
DS1 is such hard work. Love him so much but he is very very difficult. Needs constant watching as he is fearless, when I go out of the room to even go to the loo there is always a fight of some sort as DS1 has no empathy and finds sharing impossible. If DS2 comes near him he freaks out and gets angry and sometimes physical with him. DS2 ofc does not understand, loves his big bro and just wants to play with him.
DH works long hours at a physical job and when he comes home DS1 tends to be horrible to him. DH deals with this very well, he is very patient and kind, but I know it upsets him. He also has classes two night a week so is not around then either.
At weekends DH is pretty exhausted, and he has to do all the supermarket runs and sort everything in town because at the moment, DS1 just can't handle anything like that. I can't drive (though am learning) so it would be impossible for me to go, but it's gotten to the stage now where I have had no time away from the DC for months. I've even been taking them on my driving lessons as we just don't have anyone who can cope with DS1.
When we go out at weekends, we always do it as a family.
I don't want to say I am not coping, but I really really need a break. Not even out somewhere, I just need some time alone. I can't even have a shower without the door open and having to get out five or six times to break up fights. We live in a small flat and DH's family live far away, so it's hard for him to take both of them out alone for any significant length of time.
In the past I have had half an hour at max before the DC got cold/tired/bored/missed me. Or DH will just take DS1 somewhere and leave me with DS2.
Got fed up of no sleep last weekend and asked DH to get up with the DC at 5am on Sat. Woke him up and went back to bed, only to get woken by the kids an hour later when DH went to the loo.
I realise I am rambling a bit now, but I just want to know if this is just what it's like to raise an ASD child. Still coming to terms with it I guess. Hopefully DS can get into an SS soon and I will at least be able to take DS2 to playgroups and things.