Medical in one county, education in an other...any one else

[Hedgyhoggy]

Ds is in the final process of stat assess and whilst I am generally pleased with provision in both counties the communication between the two is pretty rubbish. School nurse turned up as school on Monday so that she might advise the panel. She tried to carry out an auditory assessment but ds did not understand the concept of test. I didn't know she was coming and after ringing and ringing I finally spoke to her today and she said that because she didn't have any of his medical notes she had advised the panel that he be seen by the paed and have a hearing test. We have done all that and more and he has regular reviews from all professionals involved. I am concerned this will jeapordise the decision re stat ass which is due next tues. ah. Never ever expected the amount of work and bother parents have to go through just to get what their kids are entitled to. Any advise please...should i move everything to one county?

We live in one county and DS, who has an ASD, goes to school in a different county.

At the start of the process of getting a diagnosis it got a bit complicated with one conty saying it wasn't their responsibility as he went to school elsewhere and then the other county refusing to help as he lived elsewhere.

Luckily for me my GP's PA kicked some butt and we got sorted.

I don't know what to suggest but am jus toffering my support.

We had this in london boroughs. We live on the border of 3 boroughs. So we lived in A, she went to nursery in B and GP was in C. I kept trying to get the three to help us didn't work. In the end I changed GP and her nursery. I always knew services won't change much. But atleast we got a diagnosis and now statement. I changed this very early on - within a few weeks of realising that this isn't going to get sorted by my calling around.

After we had everything in the same borough A, I called people to give me appointments asap

Until recently, our county was divided into 3 administrative districts and we live literally 50 yards from one of the borders. Our HVs changes sides twice, since DS1 was born (and I was so glad when they changed back because the one we had when DS2 was born was disorganised and a bit clueless) DS1's diagnosis was handled in the central district, but then had to be transferred over to our own, post diagnosis. Some of our services come from Durham & Darlington, while some are Tees and Esk.

I think it's common for different services not to have full sets of medical notes, though. Every new practitioner we see has to take a full history again (and now DS1 is almost 10, remembering exact details of when he was a baby gets a bit woolly!)

I did have 2 different areas supplying me with nappies for the boys for a while. DS1's ran smoothly, DS2's always got it wrong. I was so glad when they were combined - partly because they became easier to contact.

I've had a couple of cases of someone surly asking "why are you coming here?" and having to explain that this is where we were referred to and it's not like I had any say in it.