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19 month old see multidisciplinary on Monday - honks needed

8 replies

2boysnamedR · 05/10/2013 19:49

So after what felt like the week from hell this week with posting ds2 evidence for statutory assessment and meeting with senco, though I could relax and enjoy my kids for a while until we get refused. Now this comes through the door yesterday. Ds2 has dyspraxia ( but no formal dx - why I don't know as he has lots of ot).

The baby is very like ds was. About four words, late to hit milestones, walks but falls over, spins in curled for no reason, runs / crawls into furniture to stop. Never raises hands to be picked up. Does not play with toys - just eats them and throws them. Doesn't respond to his name. Hates books. All in all he seems a bit better than than ds2 was as he climbs and is very strong.

Still I just don't know if I can handle this again. I will as I will have too but I don't want to do this again. It's been 4.5 ongoing hard years of fighting for my son and I have NOTHING to show for it ( bar the ot over the last three months). No dx, little understanding or support at school. Zero understanding at nursery.

Just hoping the baby isn't hyper mobile ( but doubt it - all the kids are)

OP posts:
MariaBoredOfLurking · 05/10/2013 20:11

Horrible, that déjà vu thing. Especially when you don't know if the profs will see it (yet). Fingers crossed you'll get an OT within the meeting; in my experience they tend to bring pragmatism and common sense.

PolterGoose · 05/10/2013 20:50

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Message withdrawn at poster's request.

2boysnamedR · 05/10/2013 21:17

Thanks, I am in 95% denial - surely we can't be that unlucky.

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2boysnamedR · 07/10/2013 10:47

Well that wasn't good news. Baby is delayed. Talk of portage, eye tests, hearing tests. Blood test for syndromes so all in all it went worse Than I imagined! Don't want to talk to anyone now or even tell dh. God I hate being right!

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magso · 07/10/2013 12:19

((Hugs))

MariaBoredOfLurking · 07/10/2013 12:56

Not good being right Sad. But 'Delayed' is useful to get the ball rolling (and not too dismal if the portage helps him catch up)

No harm in posh eye/ear test. Blood test for 'syndromes': well if his brother hasn't got a syndrome-with-a-name, it's unlikely he will either.

2boysnamedR · 07/10/2013 13:31

I know your right. It would just be nice for a change to hear 'he is fine' and for him to be fine. Still he's not and that's that. I guess I worry they might find a syndrome but its unlikely. Dyspraxia is pretty random. I am glad they are sitting up and taking notice, and I do know what I'm sound now I guess

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lougle · 07/10/2013 21:25
Flowers
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