Price of DD's drug

[2old2beamum]

Door bell rang at 19.00hrs pharmacy delivery service.
Brought DD's Glycopyorrolate Tabs included was the bill for our GP ( and I am sure it was by mistake) £130 for a months supply just to stop her drooling. Am feeling guilty as this is cosmetic. Does anyone know of anything cheaper?

don't feel guilty, its not cosmetic. Its about quality of life.
If she drools she'll become sore & then have to treat that. So its also preventative.
Also, I am sure your GP will have looked at the best value (not always cheapest) treatment so don't worry!

Don't be bloody ridiculous.

If there was something cheaper your GP would be prescribing it for a start, and as for the rest of it, it's an excellent use of my tax, and much more effective than our local Autism Advisory Service at doing what it is supposed to.

Yes OK I am bloody stupid
So thanks to you both.....Blame the media etc and politicians who keep ramming down our throats how expensive things for SN are costing this country!!
She bless her is so much more socially acceptable without continuing massive dribble. BTW GP is fantastic
PS Did not dare post this on AIBU

Cheaper than choking on the dribble and getting hospitalised with a chest infection. She's saving the country a fortune, Dave should be grateful

The molecule is simple Expensive drugs are often company profiteering. Not your dd's fault, and anyway, cross-subsidised by people paying full prescription charges for cheapie inhalers etc.

It's not cosmetic. DS2 often gets very sore from his drooling, particularly when it's cold. And it's sometimes just plain revolting - cold drool on bare feet is yucky! I'm his mum and love him to bits, but others aren't necessarily so understanding. (We don't give him anything to stop it, mind, since this is a pretty accurate description of the process of giving him any medication!)

DS2 has diabetes and his testing strips and needles alone for a month probably cost that. And he's going to get an insulin pump which is about £3000.

Its because this isn't SN, this is medical, which is an entirely different universe.

I know its weird after fighting for every scrap for help with SN to get this stuff just handed out. It just makes you realise how much of a ghetto SN is.

When DS2 was in hospital being diagnosed with diabetes we saw the consultant, registrar, 2 nurses and dietician on the first day. And they apologised profusely because the childrens diabetic nurse was on holiday that week but they rustled up the adult diabetes nurse to see us instead. And then they handed us about 8 glossy booklets about diabetes and kit and a free bag to carry it in and puzzle books about diabetes (all funded by drug companies). And I just sat there with my mouth hanging open that this was what it was supposed to be like when you needed help, and telling every one of them that when we got an autism diagnosis we were given the phone number of a defunct support group and no-one came to see us or offered help for months.

It shows up the horrible truth about the society we live in that disabled people who need education and care come a lot lower down the ladder than non disabled people who get old or sick. And more of the latter vote so the NHS is more important politically than SN will ever be.

But its hard when it hits you between the eyes like that how one of your children is considered deserving of ££ and help, and the other is not.

Agnes that you're not wrong.

Though that's probably why they're now attempting to merge health & social services: so 'service users' (ie any very old, disabled, or mentally ill people) reduce the use of secondary care, ie lose access to hospital beds, to the same standard of healthcare as the general population.

2old, ds has medication to stop/lessen his drooling.

Yes it is partly cosmetic, I don't want him to soak through 5 tshirts a day, which start to smell, and have other children look at a toy with disgust because it is covered in drool. I don't want to constantly be dabbing the drool away and applying barrier cream to stop his skin getting infected. Ds also chokes on his drool, especially at night, and as he aspirates, the less liquid involved the better.

If it is the best drug to help your dd, for whatever reason, then it is not too expensive. Please don't worry.

It's already happened in adult learning disability services in lots of places. An apparently good idea has been intepreted in such a way that a LA-employed social work manager manages a combined budget.

This means a SW inspects NHS referrals (from the GP, say, or perhaps a general mental health crisis team) to specialist NHS LD psychiatrists and nurses, and that SW decides if the NHS staff can see the patient. And quite often, social services refuse the specialist medical nursing/input, because the patient 'doesn't meet criteria for Nutshire adult social care'

Sorry to de-rail the thread.