Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Think I'm at the end of the line with school, please tell me I am doing the right thing!

12 replies

Sahkoora · 03/10/2013 14:55

Sorry to repeat this for anyone who has read my other thread in the last few days, but I'll do a brief recap.

DS (5) has a dx of ASD and we are expecting a proposed statement sometime this week. He was on a reduced timetable most of last year (as little as 6hrs a week for most of it). He's still only in from 10.45-3.00 at the moment, though they finally stumped up for a consistent 1:1 for him.

This term, it has been extremely difficult to get him to go into school. He's ok at home and all the way there he's fine, it's just like he clams up when he has to leave me. The school's policy up until last week has been to drag him in. Cue much distress for both of us, and lots of kicking and swearing.

I had a home visit from the behaviour support team last week and we talked it all through. She told me they would never recommend dragging a kid in like that as it sets a bad precedent, and won't be possible in a few years when he's a bigger boy.

So this week, I have refused. I don't see the problem in calming DS down and getting him in when he's ready. At the moment, he's not participating in classroom activities very often, it's not disrupting any other teachers or kids, so who is it really hurting? They have offered him some wind-down time inside the school before he starts, why can't we have that outside instead?

He's not even going in a public entrance, I have to take him round the back, so it disrupts precisely no one.

But school have been TOTALLY unreasonable about this. The first day, they came out mob-handed: the 1:1, the CT and the SENCO, which of course terrified DS. The Senco told me to go home immediately, which I refused. I explained that DS and I had worked on a social story about coming to school, and that he was expecting to have some time to chat and talk until he felt ready to go in.

I sat DS down and tried to calm him down. The SENCO was really shitty with me and DS (not the first time she has shouted at him about not respecting adults) and told DS he had precisely five minutes. DS's anxiety went through the roof. She came back with a bloody sand timer! I promptly put the timer on its side.

The 1:1 tried valiantly with the First and Then board, but DS was too far gone. I suggested that I walk DS into the library, he leapt up straight away, went in, chose a book, had a 2min chat with me about it, kissed me goodbye and I left. As I was leaving, I saw him leave the library with his CT all smiles. When I picked him up at the end of the day, he had a good day, and nothing negative was mentioned.

So, thinking our case had been proved, I altered our social story to include a trip to the library and a chat outside with his 1:1. Yesterday, we turned up to find the HT waiting for us. He completely refused to let me come into the school, saying it had caused a huge disruption. (I checked with his 1:1 later and this was a COMPLETE lie, DS had indeed had a good day).

Again, there were several people badgering DS to come in straight away, timers were brought out and the First and Then board was pushed in his face. No one spoke to him like a human being, let alone a distressed 5yr old with difficulties. It was all "come on then!" like he's a dog. DS was CLEARLY distressed. I persuaded him to come in via a different door and again we were met mob-handed by the HT, the Senco, the specialist teacher, which made DS clam up again.

Eventually, after a masterpiece of scene-setting and calming down i talked DS into going in on the promise he could go to the school field and look for ants with his 1:1.

I went home and an hour later I had a call from school saying that DS had wet himself and wouldn't let anyone help him change, so could I come and pick him up. DS has NEVER wet himself at school, and when i got him home, he was wet to his socks and very pale.

It took the rest of the afternoon to get him back to himself again. He was up half the night with a tummy ache so I have kept him at home today.

Me and DH have a meeting with the HT tomorrow. To say that I am ready to explode is an understatement. I am not at all a confrontational person but I feel as though I have completely lost faith in school's ability to look after DS. They seem so hung up on the idea that he has to obey them that there just isn't any flexibility. DS has difficulties with feeling under pressure and it seems that this is all they are prepared to do. There's no compassion from anyone.

If DS was disabled in another way, say, in a wheelchair, would they be badgering him if he couldn't get through the door?

I just never want him to go there again right now. We are going to have a look round the local ss in a couple of weeks, but I don't know if they have places.

Sorry this is so long, but tbh, it just makes me feel better to have written it all out. DS really should be allowed to take his time, shouldn't he? I'm not being precious about it?

OP posts:
PolterGoose · 03/10/2013 16:07

This reply has been deleted

Message withdrawn at poster's request.

LilTreacle · 03/10/2013 16:07

I am so sorry you having this trouble.

It seems common sense to want DS to walk into school willlingly having had the chance to talk through the next steps, be prepared for what is going to happen, had a chance to read a book or whatever clams him doen, and had time to chill etc.

If you are the person being with him to faciltate this, or his 1:1 is doing this (that is her job after all) how is this disruptive to anyone?

By doing this he will be in a good mental state to learn, and be less likley to have problems later in the day (not caused by an upset at the start of the day anyway).

If school are basically seeing DS behaviour as defiance and disobedience, and not part of his ASD then they are missing the point entriely. Are they lacking experience in dealing with anxiety based behaviour? Have the behvaiour support provided any advice to school? if not, ask that they do.

Can you ask school to empathise? How would they feel about being physically forced to do something really scary, and despite their protestations and evident fear everyone around them made them do it (and probably made them feel stupid for being scared too)? Doesn't that sound cruel?

The impending statement will undoubtedly refer to 'differentiated approaches' to support learnining....that would include different ways of managing anxiety to allow DS to get into school in a calm state. They should have a transition plan, with different strategies to try depending on DS receptiveness that day - which ultimately needs flexibility and creativity and a willlingness/capability to read the situation and modify approach in real time. Canthey do that?

Manhandling him in against his will would not appear in the list of strategies at all IMO....

I hope the meeting with HT helps clarify what is needed and thinsg get better.

BigBoobiedBertha · 03/10/2013 16:22

I bet that given time your DS would go into school with a lot less fuss and on time if he were allowed to gradually find his way rather than being forced to do something he isn't capable of doing.

Would they take a non-swimmer to a swimming lesson and throw them in at the deep end because that is effectively what they are doing to your DS. They are trying to make him do things that he as yet can't do. That isn't to say he won't ever being able to do it but he needs to be able to take it at him pace.

So no you are not being precious and yes he should be allowed time.

Is the SENCO actually qualified? I can't believe her attitude. She should be the one taking control here and telling the head to back off. Shame she doesn't appear to have the first idea what to do with a small child with ASD and all the issues it brings. I am also Angry on your behalf.

Ineedmorepatience · 03/10/2013 17:02

No you are not over reacting or being precious, he is just a little boy who needs careful handling not to be bullied by adults who are supposed to be looking after him.

I wouldnt send him back either Sad

Sahkoora · 03/10/2013 19:25

Thanks everyone.

The Head is a bombastic arse who has been the single most unhelpful person on our journey with DS. Had a few clashes with him over things that we requested. Thought since the dx and change of Senco that things might get better.

DH and I have been talking and neither of us feels happy sending DS back into their care.

Thanks for all your opinions. off to war we go ...

OP posts:
lougle · 03/10/2013 19:29

How awful Sad Nothing else to add.

Ineedmorepatience · 03/10/2013 20:03

The Headteacher/senco at Dd3's old school was a nightmare, she never for one minute believed that Dd3 had Asd, she lied on reports and made our lives hell, especially poor Dd3 Sad

With the support of the amazing people on this board we moved her to a lovely inclusive school and within one term she had the diagnosis she so badly needed and started to get some support.

Go with you gut instinct about your son, you know what is best for him and dont let anyone tell you different.

Good luckSmile

claw2 · 03/10/2013 20:09

You are doing the right thing is all I have to add.

float62 · 05/10/2013 07:13

How did the meeting go? Complete empathy for your situation.

marchduck · 05/10/2013 08:11

Sahkoora, this sounds so awful for your DS and you, I wish you both well. The HT sounds incredibly obstructive.

sammythemummy · 05/10/2013 11:11

You are doing the right thing

zzzzz · 05/10/2013 15:25

This reply has been deleted

Message withdrawn at poster's request.

New posts on this thread. Refresh page