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New to board: need advice re DS

6 replies

Fishandjam · 02/10/2013 13:29

Hello everyone,

I'm new to the SN board so please be gentle with me! And I apologise for the long post...

I'm a bit worried about my DS (aged 3 yrs 9 months). I can't really put my finger on anything concrete but I'm just uncomfortable. I've posted in Behaviour/Development and some lovely posters said I should come here Smile

DS was a really smiley, outgoing, sociable baby up to about 1 year old. But since then he's become a lot more introverted and shy, and it's beginning to interefere with life a little bit. For example:

  • he's not good in social situations with more than one other child. He plays pretty well on a 1:1 basis, but any more children and he withdraws and goes off on his own. We know a lot of children and their parents through the NCT antenatal classes I did, and we usually try to all meet up once a week, but increasingly I feel uncomfortable going because DS will be making a fuss about even sitting with the others to have lunch.
  • he gets very distressed by strangers coming to our house (or even people he's just not seen in a while). Last night the Avon lady knocked on the back door while he was in the kitchen having a snack, and he ended up cowering on the floor.
  • we used to go to Tiny Talk (baby signing and singing) with the other mums and children we met through NCT, and he never ever joined in with the songs or activities. He would just sit on my knee and watch.
  • DS goes to nursery three days a week (has done since he was 7 months old) and the staff there say he's much more likely to do his own thing than join in with the structured play. He's fine with story time or free play though.

He's also very late to toilet train (we're still not there), and he has always been very difficult to get dressed, get bathed, get nappy changed etc. We have had some fairly major problems with discipline in that often he just doesn't do as he's told; I know that's not uncommon with preschoolers but some days it extends to damn near anything I ask him (e.g. pick up the spoon you dropped... pick it up please... DS, can you hear me? I asked you to pick up the spoon please.... )

His speech is excellent (though he didn't really start talking properly until he was 18 months old). I think he's pretty bright too (though of course all parents think that!) - he knows all his letters and can write them all, and is beginning to recognise some simple words and do some very basic sums.

He can also be a bit obsessive about odd things e.g. he loves all things to do with toadstools (this one going on since this time last year - see my thread here in Behaviour/development). He will also draw the same thing over and over again, with little variation. He doesn't do much in the way of "let's pretend", dressing up or that sort of imaginative play.

Now both I and DH are introverts, and I know I've had to work very hard to overcome it where it's necessary to do so (trying to make new friends etc). So it's likely that DS will have inherited that tendency, I guess.

I'm just concerned that he'll end up the odd kid with no mates when he gets to school, like I did Sad And there's a niggle in my mind that all of this may not be quite...typical?

Would really like to hear your views!

OP posts:
AttilaTheMeerkat · 02/10/2013 13:38

I have read your other thread on this subject and would also like to reassure you that your fear of fierceness here on this particular part of the board is unfounded. (The fierceness is on AIBU!).

I would ask your GP now to refer your son to a developmental paediatrician. You have valid concerns and these need addressing for your sake as well as your son's.

The obsessive behaviours, poor social skills, social anxiety and lack of being toilet trained are enough to get you such a referral.

StarlightMcKenzie · 02/10/2013 14:40

Hi Fish,

The best place to start is to look up the symptoms of various developmental disabilities such as ASD, ADHD, Dyspraxia, Dyslexia, and any others that you can think of and write down all of the 'symptoms' that you recognise.

Then, next to each one, write one or two real life examples that support that symptom and take the list to your GP with the request for a referral to a developmental paediatrician.

GPs can find it hard to ignore paperwork, or 'evidence' that there is something that would be sensible to investigate.

You might also want to take this test www.autismspeaks.org/what-autism/diagnosis/screen-your-child as it is a recognised tool for screening for autism. However, I would advise at this stage to keep away from the rest of that site as some me find it a bit odd.

Good luck.

Fishandjam · 02/10/2013 22:34

Thanks Attila and starlight. I really appreciate you taking the time to respond!

DS scored 5 on the MCHAT which I guess is at the low end of the higher risk scale (IYSWIM) but some of the questions seem to relate to younger children and TBH I'm struggling to remember what he was like when he was a toddler! I think I'll go with starlight's suggestion of making a checklist of the various symptoms. I'm also going to talk to the nursery staff; when I've raised it in the past they've always said they've seen no issues, but I haven't had a review with them for a while.

Onwards...

OP posts:
Ahhhcantthinkofagoodname · 02/10/2013 22:55

Hi fish, I'm also relatively new to the board and am constantly bowled over by the excellent advice and support on offer. I would reiterate others advice about getting a referral to a community or developmental paediatrician. We got one cos we were worried about DS (now 3 and a bit) being clumsy. after examining him she ruled out any significant physical problems but she did pick up on his limited eye contact and what DH and I used to refer as his OCD tendencies, eg obsessions with light switches and traffic lights. She referred him to social communication clinic and 6 months on he has an ASD diagnosis.

I know all this might be scary to you but if your DS does have something like this it's best to get it picked up as early as possible to enable you to understand and help him better and put things in place for helping him at pre school or school.

On the plus side there's a good chance the paed would be able to reassure you hes fine and then you could stop worrying... Good luck!

Trigglesx · 02/10/2013 23:39

Definitely make a checklist of concerning behaviours or symptoms. Invaluable IMO.

The nursery staff will help as much as they can, hopefully, but I have to stress that the sooner he gets a decent assessment, if there is a problem, the sooner he can be getting support that will help him. Best thing is to get a referral to the paediatrician - they take months to go through. Then if there is a problem, diagnosis can take months (or years). And if there's a need for a statement that takes another 6 months minimum.

It's all a big waiting game, and if there are concerns, get your referral and an appointment as soon as you can. If there's no problem, then at least it's checked quicker and you can relax. But if there is a problem, you'll know you're making a timely intervention that will help.

Fishandjam · 03/10/2013 12:44

Thanks ahhh and triggle for the advice. I'm part way down my checklist already - trying not to feel anxious/sad about it. Though I've been re-reading a 2 year review that we had done by a private health visitor, who found no issues other than a slight lack of imaginative play, which has reassured me a little. But obviously that was nearly 2 years ago.

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