got the consent form through for asd assesment ! do I cancel?

[happyanyounoitflapyourhands]

My son as some of you may know shows signs of ASD but school don't apparently see anything and is now discharged from salt . salt observed in school and said all was fine but at home he's a different child .
Stimming, spinning, repetitive, won't speak to us unless he chooses to mostly about thomas, gets extremely emotional the list goes on and on .

I just wonder is there any point in the assessment when school are saying fine ??? He's 4 in January. We see a different child and it upsets me, so mite just cancel it as probably be a waste of time anyway.

Gggrrrrr fighting with myself

School are not medically qualified to say whether he is fine or not.

If school are saying fine when he obviously isn't you might be able to use that as evidence as to how they do not have the resources (i.e. knowledge, skills, expertise etc.) to meet his needs adequately which will help you if you go for a statement.

And you know, you don't actually have to share the diagnosis with anyone if you get one and decide you'd rather not. BUT, a diagnosis of a disability offers protection under the Disability Discrimination Act and for that it is worth it imo.

I'd go ahead with the assessment. Apart from anything, if you cancel, but later decided to go through with it, then you'll probably start the entire process of booking the appointment all over again (meaning more time will be lost whilst you wait for an appointment).

ime most teachers lack skills of observation or are wilfully blind and/or lie.

Don't listen to them

Thank you , it seems (Its not severe I know that ) I'm confused with what's our normality if you know what I mean ? I can't find a level balance to either be obsessed and home in on it or just go day by day but then I wouldn't fill in his diary =( just having a low day ! Huuufffdd

Don't cancel. School are not diagnostic experts. There are many reasons why he may present differently at school than he does at home - or he might not be, but no one is noticing or caring. Let the experts work it out.

happy ASD does not appear severe in most children at age 4 and most parents at this stage are convinced it isn't. Many are right of course, so I'm not trying to panic you, but at 4 it is very difficult to project into the future.

It is worth having a through investigation by a paed and team to get a good profile to just check that even if he isn't severe overall, there isn't an aspect to his development that either does, or could affect him severely and that needs some decent early intervention.

I would keep the assessment appt. Those things are like gold dust.

Many schools would not actually recognise ASD in all its myriad of guises because the staff there are simply not medically qualified, trained or skilled enough to spot children with ASD, let alone any other additional need.

He's been seen by pead then reffered to clinical psy who he has seen a few times she said enough evidence in the clinical setting to warrant the referral for ASD assessment on that itself I think I'm doing the right thing. And I've suspected ASD maybe coming up two years now things started . he's two different children though,

And the clinical psychologist told me they need to hold a threshold and be consistent in behaviour so if he was coping at school thats great and its unlikely ?? I also disagree as it effects our daily life but it becomes normal doesn't it ? Especially because he's my first so its all I've ever known

X

Definitely keep the appt.

It is not uncommon for a child with autism to 'hold it together' at school, but then blow up at home where they feel 'safe' to.

happy don't cancel! My Ds was a happy flappy little NT boy at school in nursery and reception this all changed when he went into YR 1.

As said before up top ^ teachers as they like to tell us all of the time have more than 1 Dc in the class so don't have the time to notice anything which doesn't involve a kick in the shin are not psychologists trained to pick up on the subtle differences.