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Official ASD diagnosis today

11 replies

PoshCat · 24/09/2013 16:46

Title says it all. ADOS assessment confirmed a clear diagnosis of ASD.
Had a cry when they told us even though I have long suspected it.
OH in shock. He thought he'd given the panel the "right" answers to result in a non diagnosis.
Feeling sad, tearful, frightened and angry. Don't know who or what I'm even angry at!!

What do I do now? I have a handful of NAS and support group flyers.

OP posts:
Igottaproblem · 24/09/2013 16:56

Hello
This happened to us 6months ago
I know how you are feeling
We are in a much better place with it all now
Didn't want to read & run
Just wanted to offer you some hope you will feel better
And will post later when more time

Sunnymeg · 24/09/2013 18:37

Today is not a full stop. Your child is still your child. Work through your feelings, don't put them on one side. Diagnosis is the key that will unlock doors to people who will help you, it just doesn't feel that way and it might not for sometime to come. DS was diagnosed nearly six years ago, at the time I was angry, upset and sad. Time and space are needed ((hugs)).

PoshCat · 24/09/2013 19:15

I have been expecting this for so long but at the back of my mind there was still the shred of hope that all she needed was some fish oil and better parenting.

Tomorrow is another day. Tonight I will wallow.

OP posts:
wibbleweed · 24/09/2013 20:24

Just wanted to say that I feel for you and I've been there too. DS2 was dx 18months ago - even though I knew that he'd be diagnosed and I thought I'd feel relieved, I just felt numb... DS1 was then diagnosed just over a year later - again, I felt numb, though probably not to the extent I was with DS2.

But we are now in a MUCH better place. Take time to wallow, cry, scream, whatever, but, as Sunnymeg has said above, your child is still your child and the clouds will start to lift eventually xx

Ahhhcantthinkofagoodname · 24/09/2013 20:34

Same stuff really, got diagnosis a month ago, hardest thing was me and DP dealing with it in different ways, we had some major clashes. But I guess in a way it's good one of us was positive and the other more concerned and focused on ensuring we are doing everything we could to help DS. Try to focus on the positives, eg our DS is a v affectionate and cheeky little boy and quite clever in his own way. Reading books on autism actully made me very thankful DS isn't severely autistic, all things are relative i guess. Brace yourself for a whole host of reactions from family and friends, some people clearly don't want to face it or just expose their ignorance when talking to you about it! But actually we have also received a lot of kindness and support and it's good to know there's a reason for the issues we've been dealing with.
Take care, things will get easier.

Ahhhcantthinkofagoodname · 24/09/2013 20:36

Ps we've left it a bit before engaging in the support groups wtc, think its better for us to wait till its not so raw and we're able to take in the advice and support rather than just blubbing!

mrsbaffled · 24/09/2013 22:20

(((Hugs))) posh x

Hope it starts to settle in for both of you soon.

Nothing really changes today. It is hopefully the start of better understanding and support from all corners.

We were left with no dx after our appt on Monday ( fell just short of AS dx)....I think a dx would have been more helpful, for us tbh. We are left with a recognition of a problem, but an unnamed one.

Ineedmorepatience · 24/09/2013 22:34

Hi posh today has been a hard day, take some time to absorb the information. Its is fine to have those emotions that you have and its fine to feel down!

When you have allowed yourself to have those feelings, come back ready to take on the world and advocate for your son, he so needs you to be his voice and get him the best support.

You can do this because your lovely son needs you to, he is still the same lovely son that he was yesterday but today you have been given the knowledge that you need to get him the right support.

Be kind to yourself and Good luck Smile

marchduck · 24/09/2013 23:02

Posh, thinking of you. I know things feel horrible now, but it does get better.
Your DD is lucky to have you. Look after yourself over the next few days.

Igottaproblem · 24/09/2013 23:24

Poshcat
Wallowing is a normal reaction
I wallowed for a week, I couldn't take it in, I just didn't want to leave the house
It took a long time for me to come to terms with it
And I never thought that life would feel as good as it does now, DS is in school, with support & that has taken a load off me to be honest; it is 100 times better
Back then I posted on here & people replied with replies like mine (it gets better) which I couldn't really understand at the time but it is so true
But I think the key is getting the right support around you and posting or reading on here has helped me make that happen - so to answer your question of what to do next I would say once you start to feel like it focus on getting the support around him & you

ocarolina · 28/09/2013 11:47

Hi everyone, this is my first post on Mumsnet and I'd love to join this thread as my son was diagnosed as ASD a couple of weeks ago. Also a bit of a shock as the ed.psych and another ASD professional had felt that he had sensory processing issues but not ASD.
OH and I felt a mixture of upset and relief: worry about the future but relief that we have an 'excuse' for DS's issues and no worries about support at school being withdrawn.
When I asked if we should tell people DS has AS he said, 'No, he's too young (7) to diagnose with that, AS is a specific diagnosis. You say he is autistic.' But, having done some reading, I prefer to say he has autism, or is on the autistic spectrum, as that seems to convey better that it's a part of him, not a summation of all that he is. The distinction is probably only noticed by me, but it feels important!
Can I ask, have you discussed dx with your child? We haven't yet, but it feels wrong that I have told a couple of mums at school, and his teacher, but not DS himself.
Thanks.

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