3Di....not quite AS

[mrsbaffled]

We are back from our 3Di. I said I would feedback how it went.

It was just over 2 hours long. The paed had already entered a lot of our responses from the questionnaire into the computer. We spent two hours going over more questions.

At the end she pressed a button, and it gave us scores.

So......DS1 does not have AS. He is just on the lower edge of the Spectrum, just under the diagnostic criteria. He scored highly on one of the the three necessary criteria (routines and obsessions), just missing out by 0.5 points on the other two!!!

The paed will write to school and hopefully ask for him to be included in some things to help in the area of struggle, including transition to secondary. Also we will be invited onto an ASD course as it will all be relevant to him anyway.

Bit cheesed off as school didn't answer the questionnaire they were sent very thoroughly, scoring zero for a lot of things, meaning we fell just short. Had they highlighted the issues they told me they saw then he might have got the AS dx :/

How do you feel? tbh the reason I went private to obtain dx was because the school kept blocking the process by submitting negative questionnaires (ASD/ADD/APD) which were given huge weight.

It was only when comparing the subjective answers given by school with the objective results of audiology assessment at GOSH that it became clear that their responses were in no way accurate. Even if they were not deliberately minimising they lacked skills of observation unless difficulties were obvious.

My understanding was that this assessment is based on parental diagnostic interview of current rather than historical data like the CCC. How much weight was given to school responses?

Quite honestly not sure how I feel!
I don't know the weight given to the school responses.
It looks at current and history.

Nonetheless I want to leave it now. If what the paed says is correct about help being given on need rather than diagnosis then he should still benefit from today.

I don't think they like giving labels round here ....

Hopefully we will still get some support, just without dx.
He definitely has SPD too, but again undiagnosed.

Not sure I have the energy to go any further with this.

Oh. You are in the same position as me now, mrsb that a diagnosis can't quite be given. I hope that you feel able to settle for this, only time will tell. When I dd2 had her assessment I was so overjoyed that someone had taken an overall view of her development I felt very happy. But now that I continue see dd2's poor understanding of her world and her inflexible thinking and social communication impairments daily, the questions are back again in my mind. It does seem a bit. 'Computer Says No' doesn't it? Especially if the school info was not of sufficient quality.

Forgot to say thank you so much for updating. And have one of these for getting through the day

sympathies, it is a bit worrying to come out without the expected diagnosis, when you have niggles about whether the procedure was thorough enough/accurate.a few years back, my lad got a sort of DX of language delay with subtle social communication difficulties after an MDA lasting a princely 1.5 hours (including 20 minutes behind closed doors discussion). My advice is not to let anything ride, and make sure all that you were offered in terms of support actually materialises!

tbh MrsB I would ask for referral from your hospital paed to Lorna Wing/GOSH wherever to a tertiary referral team that deal with complexity.

Thank you, all. I need to mull this over for a few days/weeks....I will have a virtual as I don't drink the real thing. Actually sounds good!

Ok.....what difference would an actual AS dx make over and above a letter highlighting problems (assuming the help and course I have been promised actually materialise)?

Just wondering how old is your ds? I did the 3di when ds was 3, he got a dx at 4, but the 3di was not fully conclusive. Now his nearly 8 he ticks significantly more boxes. Luckily I had a get paed.

He is 9.