Famous parents with kids with SN

[ntt]

I can only think of 3 - Jordan, David Cameron and India Knight. Can anyone add to this list? I'm really curious and I'd like to know what sort of care and education they choose (presuming money's not a big problem)

I think maybe the wessex's may just be parents enjoying the first few years with their young family trying to keep their family life as private as it can be if you are a royal.
I can't say I have seen any fewer photos of their daughter than I have of any of the other lesser royals!
If their daughter does have some kind of sn then it is entirely their choice if & when they chose to share that info with the world, perhaps they may be waiting until she is old enouhg to understand & make her own choices she is entitled to confidentiality. They don't have to tell us anything & are entitled to be parents before public property.

Ironically Sophie opened our excellent local cdc a few years ago - I might suggest tapping her up for a few bob when she "comes out"

BTW albatross - think it was 3.5p per person, that's everyone, not just tax payers

Where did the fact that Prince Charles recieves 3.5p per person per day (£16.50 ish per year from each individual) come from? Royal accounts show that the whole royal family costs us 62p each per year. £16.50 per person per year would mean Prince charles alone costs us about £1billion per year!

I might be wrong but I don't think Prince Charles gets anything from the royal list and he definitely pays taxes on his Duchy of Cornwall income like the rest of us.

I'm not either pro- or anti- royal but just wondered where the info came from?

Have just checked this myself as I'm now fascinated...

Charles and Camilla do not receive any money from the Civil List. But the prince received funding to partly cover the official costs of items like his official residence and travel, this works out at 3.5p per year per person and includes William and Harry.

I didnt know there may be something wrong with prince edwards daughter. Has anyone heard anything about this? And can anyone remember about the birth?

Prince also had a child with sn who died shortly after birth in 1996. Pfeiffer syndrome, according to wikipedia.

Thats awful, i didnt even know that. The baby must have been very poorly at birth and possibly could have after effects from a difficult birth then.

I did wonder if Louise Windsor may have had hypoxic ischaemic encephalopathy after that delivery, in which case it could take a long time to determine the severity of any lasting neurological problems.

I'm not very up on celebrity gossip - what happened during the birth of Louise Windsor?

I think TC's pride in her lovely daughter is admirable and we all agree it is helpful to us to hear of celebs with kids with SN. But everyone deals with things in different ways, and I totally understand people wishing to be private about it and/or finding it all very hard too.

After giving it some thought, I can understand Sophie and Edward wanting to keep it away from the media as long as possible because once they go public, they're going to have lots of pressure for the rest of their lives to become ambassadors for disabilities, champion charitable causes, get involved in campaigns etc etc. My first instinct was annoyance because I want them out their showing off her daughter to the world - bringing disability that little bit closer to being accepted and embraced by society. Of course that would be wonderful, and I'm sure they will eventually, but I guess they're allowed a bit of breathing space before embarking on all this extra emotionally draining hard work.

Also, she's probably still in the dog house from that mega tabloid faux pas with the queen a few years ago and doesn't want to upset her. And we all know how queenie likes to keep a "clean" house (killing off pg Diana)

Was Diana pg? And again, what happened with Louise Windsor's birth? I know I should get with it and read the papers.

I also think you can only go so much into the reality. No-one wants to hear the reality of life with ds1 and if I tell them they don't believe it. It can also sound very negative, and I wouldn't want that in print publically. He's my son and I love him. OTOH I don't see the point in standing up saying how great and fantastic it and how life is just so rosy when it means that the mother with the newly diagnosed toddler is going to read it and feel like slitting her wrists because it doesn't relate to her reality.

Thanks Fio, must have missed that first time. Poor Sophie, she also had an eptopic pg, I think. Seems some people are just burdened with difficult lives. Jimjams, Fio you lot are such an inspiration to me. (Still haven't got to watch that video clip the "they have no idea" one because my media player not working but plan to watch it at work in a quiet moment when it doesn't matter if I cry).

Not that I don't realise of course that there are different degrees of "difficult" depending upon how priveleged the world is that you were born into....

BTW Pages the video has moved- same website but you have to go to their list of video clips and scroll down to our community- you'll find it there- autism every day at 13 mins long.

Thanks Jimjams, and OMG that was so well put about it not relating to our reality - that is exactly how I feel, when my brother raves about his NT kids and the conversations he has with his DD who is the same age (3.9) as my DS1 who has never even called me mummy. And yet he has no sense of this and how I might be feeling. (Well, he has no sense of anything anyway, as we have now fallen out - as those who have read my thread will know) but I just really like the way you phrased that Jimjams.

That's why I love the video Pages- the way the mum says (or the mums say actually) People have no idea, no idea, really captures it. I don't think any article could change that really, because the challenges are outside people's comprehension.

Hello,I am new to this and I must admit I am finding it difficult to understand how to use it.Thank you to the kind person who tried to help me by asking me to start a new thread,still can`t work it out.
I really loved the threads about famous people with sn children.
I met David Cameron not so long ago,he was out and about with his Ivor,who is severely disabled.
David was immensely proud of him.I just wish he would have a few photos of himself with his little boy in the press,but it is upto him. Anyway DC was really lovely,very friendly and exactly how he was on Desert Island Discs!
I am the mum of an 18 year old young man who is severely brain damaged and can be extremely difficult to manage,although adorable.I think this site could help me to feel less isolated

Hello time4me and welcome. It can be a bit confusing at first I agree.

If you look just above my message in the section "Mumsnet Talk" it says "Click here to start a new conversation in the Special Needs Section". It's just above the paragraph which starts "NB".

Just click where it says and start a new thread to introduce yourself. Good luck!