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I feel like I am completely f***ing this up but I don't know what to do...

3 replies

AngryFeet · 18/09/2013 17:55

I post every year about DS

www.mumsnet.com/Talk/primary/1321716-Problems-socialising-in-reception

www.mumsnet.com/Talk/special_needs/1404859-Autism-Dysphraxia-What-is-this

www.mumsnet.com/Talk/special_needs/1419058-My-DS-possible-SN-issues-and-problems-at-school

www.mumsnet.com/Talk/special_needs/1555754-Finally-got-to-see-the-OT-today-hypermobility-and-poor-body-awareness

www.mumsnet.com/Talk/primary/1620127-DS-STILL-has-no-friends-and-is-now-in-year-1

Sorry lot of links I know but just trying to give the back story.

Anyway DS is now 6.5 and in year 2. He still has no real friends although other children are trying to reach out to him but he often ignores them. He will generally ignore people if they speak to him which I pull him up on all the time but he doesn't seem to care. His motor skills are better but still not great. His handwriting is awful but he reads well. He confided in a TA last week that he is finding year 2 really hard and doesn't understand. He never talks to me about anything even if I ask him so I don't know if he is happy/struggling etc. He is happy but very immature and acts similar to a much younger child. He is very unaware of himself so will often walk around with his bum hanging out after using the loo and not care. If he gets himself dressed his clothes will all be inside out and back to front and he isn't interested in sorting it out. He is sensitive to loud noises. He used to flap his hands when excited but that seems to have stopped. When he eats it is mainly with his hands and he wipes them on his clothes (we have taught him to use a knife and fork) so noone wants to sit with him at lunch. He takes things literally and can never tell when we are joking then gets upset that we have "tricked" him. He is quite overweight and wants to eat all the time although I try very hard to keep him active and eat healthily with normal portion sizes (his sister is very slim and I treat them the same re feeding etc). His memory is awful - he doesn't remember most of the names of kids in his calss, calls body parts the wrong names, mixes up meals (i.e calls breakfast lunch etc).

School are great and give him extra help re socialising etc. Both teachers so far feel something is "wrong" but can't figure out what. The developmental paed we saw was useless and her report just parroted back my concerns and gave no attempt at diagnosis. SALT decided he was no longer eligible for help (his speech is better but a bit behind).

I feel like I am letting him down. I have no idea what I am doing and neither do the school so I don't know where to go and what to push for. I am worried he will struggle more the older he gets especially socially. I wish I had a vague idea if there is something wrong or if he is just a bit different and leave him to get on with it?

Anyway if anyone managed to get through all of that any advice is greatly appreciated :)

OP posts:
AngryFeet · 18/09/2013 18:59

Bump

OP posts:
Tambaboy · 18/09/2013 19:02

AngryFeet I recommend you try on the SN children forum, it's much busier than this one. Good luck

mattsmun · 05/11/2013 12:26

I had the same sort of problems you are experiencing. My son is now 17 yrs old but I can still remember all the things I had to go through to get him to where he is now. He was statemented in primary school, but even that was a struggle. I think it definitely helps if you have a SENCO who is up to speed on everything your child needs.

If you are not happy with a diagnosis demand a second opinion. I wasn't happy with the educational psychologists report as he only saw my son for about 10 mins and said he didn't think there was a problem. I demanded a second opinion and was told there was a problem

I had to go through the process of a tribuneral so that my son could have more one on one teaching. After months of letter writing and a lot of input from school he was eventually (but very reluctantly) given 13 and a half hours per week of extra help.

The other organisation that helped me get through this was 'The National Parent Partnership'.

I don't know what area you are in but maybe you can have a look at their website.

Just stay strong and remember you know your child better than anyone and don't let anyone tell you otherwise.

Hope all goes well.

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