How did you feel when you got a dx?

[essbee]

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Hi essbee, sorry to hear of your sons diagnosis and hopefully it helps get him the support he needs education wise etc. I felt gutted both times when my sons were diagnosed that is the only word i can use to describe it even though i knew what was coming. The only thing i can say is it takes time to get used to the diagnosis, its been 4 months since my youngest sons diagnosis and im stil getting used to it. Hope things get easier for you as time goes on.

Hi Esbee, hearing a dx is hard even if it is exactly what you were expecting. We received our sons dx in January, although it was no suprise a few days after I was very tearful, totally unlike me & it shocked me a bit that I felt that way.
As 2mumsays it just takes a bit of getting used to.
Try to see it as a positive & having a development paed as a contact (rather than hospital consultants )has been really helpful in getting all parties together.
Your son is still your son & that hasn't changed just try to use the dx to get the help that he may need.
Best wishes

my son was diagnosed with high functioning autism as well essbee,.To be honest I'm still coming to terms with it.To me he's just my little boy ,ok he has a few problems but doesn't everyone in some form or another.What does worry me is how to tell him. I hope your son gets all the help he needs and that you get the support you need.How old is he ?

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Now that you have DX's you should look into going on the Early Bird course which is run by the NAS, it's great and every professional I speak to recomends it. I am currently on it and it is very helpful with lots of good info and tips/advice, you also get to hear other parents stories which is great cause you feel you're not alone.

I got a lot of info from the autisic society which was very helpful and gave some answers to some of our queries. I read a couple of books they recommended which gave me some understanding of what he may be feeling when situations happen. Does your son go to mainstream school essbee? We also have access to a physcologist, our son sees her every now & then to help him deal with school problems

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When I got a dx for ds1 I felt relieved that I finally had some answers and that I wasn't just being paranoid, but also very sad that my little boy had SN. It's also hard when the SN (like autism) is invisible because you find yourself watching your child and thinking "but he doesn't look autistic". There's also an element of wondering if things would be different if they'd been dx'ed earlier. When ds2 got his provisional dx and intervention at 2yrs I felt inexplicably guilty that ds1 hadn't had access to the same help at the same age. Completely illogical of course but you find yourself thinking the strangest things.

I think the Earlybird course is for pre-school children but there is also an Earlybird Plus course for 4-8yr-olds and a HELP course.

Getting in touch with your local NAS group can be helpful too. I don't often get to go to support meetings but the group holds lectures/talks about all kinds of ASD-related issues. They also organise evenings out for the families together, where it doesn't matter if your child has meltdowns or behaves differently. The group also sends out useful local info for parents.

absolutely gutted, both times.

Still am about DD, cant say too much or ill start the waterworks off again.

hi, we're getting to this point also, Essbee. DH and I are disagreeing on whether or not to pursue a full diagnsois, with a v. likely outcome of Aspergers, although he is poss. only mildly affected. I feel that the whole process since Nov has been v. turbulent and difficult to come to terms with, although I knew in my heart that things were not quite right. I really want a diagnosis because I think it will benefit DS as school will hopefully be able to offer appropriate support and understaning. Also, for myself I am hoping to get some kind of closure on and clarity from the whole diagnostic experience. I think I might feel relieved by getting a diagnosis - if that doesn't sound too wierd. I dno't know if that is part of your feelings Essbee or anyone else? DH says he doesn't need a diagnosis, doesn't see it will esp. benefit DS and that at 5 it is too young and we should at least wait, poss. never bother. I feel v. drained by both going through this process and now disagreeing with DH not being happy with it. I don't feel we can continue if DH is so opposed. Has anyone else experienced this disagreement bet. parents re. diagnosis?

Sorry, this really wasn't meant to be a thread hijack.

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