Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Exactly 8 months after seeing the Paed for the first time

17 replies

lougle · 02/09/2013 11:06

DD2 is No. 20 on the waiting list for OT assessment.

The poor woman was so apologetic.

I also queried why, 8 weeks after her first SALT assessment, I hadn't had a single phone call, summary, report, communication from the SALT. She's chasing it.

The Paed wanted to see us again in July, but we postponed because nothing had happened. He suggested November. At this rate, I can see us having to postpone again.

OP posts:
StarlightMcKenzie · 02/09/2013 11:41

How long was the waiting list 8 months ago?

Grrrrrrr. So sorry Lougle.

HugAndRoll · 02/09/2013 11:50

How frustrating! We haven't had a letter even confirming the referral to OT and our follow up is in early December. Doubt it will happen tbh. Waiting lists are ridiculous.

Handywoman · 02/09/2013 13:33

Been waiting 15 months now for NHS ADOS. Feels like forever. This morning my dd2 suddenly flipped out of nowhere and started screaming and screeching and shaking and crying and ranting, her eyes went bloodshot. Her whole body shook. She stuck her fingers in her ears and ranted that it wa the fault of her sister. My ears were ringing. All because she suddenly didn't want to listen to the CD. It's crazy.

lougle · 02/09/2013 13:56

Well DD2 didn't even reach the waiting list until March because the child joins the waiting once the referral letter gets to the SALT department and the Paediatric department made lots of secretaries redundant, so it took 2 months for the letter to be typed.

When I phoned in February I was told '18 weeks from referral'.

Then, 3 OTs left and had to be replaced. So they've just started induction and will be 'tackling the waiting lists' from next week.

OP posts:
StarlightMcKenzie · 02/09/2013 14:50

Lougle That may all very well be true. But these departments are in a constant state of reorganisation and isn't an unlucky 'blip'. Grandma eggs I expect

No need to be rude, but make sure you make just enough fuss to not be on the fobbing off list the next time they delay/mess up/reorganise.

Send a letter to someone somewhere clarifying what happened. So if it becomes routine you'll have a list of failures to buy your way through a mess sometime in the future.

lougle · 02/09/2013 16:04

The helpful lady did say she'd put a note on DD2's file saying I had chased the referral.

DD2 made me laugh out loud today when she said 'Brrrr, I'm colding up!' She looked very skeptical when I said that 'colding up' wasn't a phrase we use, until I visually showed her that 'normal' temperature is in the middle, hot temperature is above 'normal' and cold temperature is below normal, so she couldn't possibly be 'colding up' because cold is down.

OP posts:
StarlightMcKenzie · 02/09/2013 16:09

Excellent. Then you can send her a thank you letter, detailing what she has offered to do and exactly why.

lol at your dd.

DS always asks where the 'Low Street' is and still thinks a 3 pronged 'fourk' should be called a 'Threek'

Handywoman · 02/09/2013 23:35

LOL at those. My two demanded pancake this evening. It was already getting late. I said they could have pancakes if there were no arguments, shouting, crying or cross words. dd2, looking rather confused, pipes up: 'no crosswords?'

zzzzz · 02/09/2013 23:47

This reply has been deleted

Message withdrawn at poster's request.

lougle · 03/09/2013 15:01

Can one get three-pronged forks? I'd love to own a threek.

OP posts:
StarlightMcKenzie · 03/09/2013 15:21

Loving the 'crosswords'.

Absolutely NO crosswords with your pancakes!!!!

StarlightMcKenzie · 03/09/2013 15:22

It gets worse Lougle because if we come to a fork in the path, and there is a choice of two ways to go.............

Twook

TBH, I think his words are much better descriptors, but alas, he has to live in a world with mere 'boring brains' and far too many words to describe things so inefficiently!!

KOKOagainandagain · 03/09/2013 15:44

Lougle - my knowledge of grammar is appalling but it strikes me that 'young people' tend to take adjectives and making them active verbs (?) Hence colding up is the same as powering up - ie an increase of cold/power. Makes perfect sense to me Grin (coz I iz down wiv the yuf)

zzzzz · 03/09/2013 17:06

This reply has been deleted

Message withdrawn at poster's request.

StarlightMcKenzie · 03/09/2013 17:10

Yep. And you don't even want to know what a one-pronged fork is called.

Sadly not a 'spear'!

zzzzz · 03/09/2013 17:31

This reply has been deleted

Message withdrawn at poster's request.

Handywoman · 03/09/2013 18:22

KeepOn wow you iz down wiv the yuf and no mistake.....

wawk? Hmm (complicated)

New posts on this thread. Refresh page