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10 replies

POPPYGIRL3 · 31/08/2013 16:20

hi again, can I ask for advice please my ds yesterday was diagnosed with ASD , we have been assigned a care worker and see her on the 10th sept, he also has hemiplegic cp, any help is welcome :)

OP posts:
sickofsocalledexperts · 31/08/2013 19:19

I do not know much about the CP but there are lots of improvements possible with the autism. How old is he and what school plans are you thinking?

Eagleeye13 · 31/08/2013 23:58

My son has an ASD and his behaviour is very confusing
He has for a few months decided to use selective muteness (especially when it suits him) he uses it alot at school even though he knows the adults well it is driving me crazy!
It does seem worse through the summer holidays
He has also decided to switch off from listening to anything you say to him and my main concern is he is due to go back to school next week and I afraid he will get into trouble with this behaviour

Eagleeye13 · 01/09/2013 00:00

If any one has any tips I would be very grateful as I'm starting to worry that I'm a bad mum

POPPYGIRL3 · 01/09/2013 12:38

hi there my ds is 9, he has had a IEP in place since y1 , also the ed psyc has been involved since then , he was declined a statement at the beginning of the year , therefore had to wait 6mnths to reaply which we did before the hols , had to go to assessment still have heard nothing as yet, we have had a lot of peoblems with ds , the last 6wks have been really bad at breaking point:( he was only diagnosed last Friday with ASD so we need to work a lot out bless him , I feel really bad as I knew there was more to it with the problems he has has , he has a lot of learning diff, global motor skill problems , memory problems too, its just getting my head around it all xx

OP posts:
sickofsocalledexperts · 01/09/2013 15:54

I highly recommend ABA for sorting out behaviours and helping autistic kids to learn. There is a yahoo chat room called ABA-UK to find tutors

KOKOagainandagain · 01/09/2013 16:25

Eagle I can understand your frustration but you really do need to understand that DS is not 'deciding' to be selectively mute or not attend to verbal cues. Years ago I remember reading a book called 'why zebras don 't get ulcers '. Extreme anxiety leads to a shutting down of non-essential functions - including ability to vocalise.

Katastrofee · 01/09/2013 17:14

Sorry for a very ignorant question. Would ABA be of any use for a teenager with Asperger syndrome?

Ineedmorepatience · 01/09/2013 17:38

When I first started coming on here someone recommended using more visual prompts with Dd3 who was around 8 at the time. She is now nearly 11 and we use a mixture of written visual timetables, makaton for stop and wait and a red and yellow card system similar to footballers for challenging behaviour.

Dd3 hasnt really changed a huge amout in 3 years but the way we manage her has and consequently she is much more manageable.

I recommend visuals, routines and stress reduction for everyone. Reduce shouting and use a calm voice. Choose your battles and keep coming on here. It has kept me almost sane Grin

Good luck Smile

sickofsocalledexperts · 01/09/2013 18:26

Katastrofee, ABA principles could work for any age group imho. It is really about rewarding the behaviours you do want and ignoring or giving consequences to the bad behaviour. I absolutely do not tolerate my boy being aggressive to me or others, so if (for instance) he goes to pinch me I hold his hand firmly down, say "no pinching " in a firm but calm tone, and give him no eye contact (ie give no attention to the behaviour. ) But i do that every single time, so he sees that a) there is always the same, quite boring consequence and b) I am boss, and violence is not to be tolerated. I am doing this now, as quite soon he is going to overtake me in height and strength, and it will be too late. I also think aggression is the one thing that is going to seriously narrow down his life options.

I realise this won't work for all, but it has for us, as has ABA overall.

Katastrofee · 03/09/2013 17:24

Another ignorant question. I wasn't looking into ABA as something related to school placement and extremely pricey. Are there any more accessible options? Where to get started, find some information?

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