Children with no head control

[twistyfeet]

dd has severe cerebral palsy and cannot sit and has little to no head control. A couple of weeks ago the OT came round with a peice of equipment I'd only seen online. A head pod that fits in a band around her head with a thingy that goes out of the top to a bar that supports her head so she can look around. Its amazing. Hence me sharing because most OT's havent heard of it. She can now sit in her supportive seating and instead of her head slumped to one side its up and she is using her limited vision to look around the room. dd thinks its wonderful too although at the momet she has a tolerance of about 2 hours.
Hopefully this means she will be able to start using eye gaze on a VOCA or at least use her headswitch more accurately.
I've got a link to a video if anyone is interested.

Please share - while Bee currently has good head control, her condition is degenerative... and knowing about adaptive devices before we need them is much appreciated.

here

Ignore the dire music. I was sceptical when I first saw the video but it is as good as it looks. dd is like the 3rd child shown in the blue tumbleform chair (but without the arm function. She has none). She just flops to the left.
Also, while R82 has the UK contract it can be got cheaper through other suppliers.
Dd can, with it on, look around rather than sit flopped to the left with her head totally down. I can now see her face! She can now use what vision she has to see stuff. It does press against her forehead as it does hold the head tight (and its more equipment and more staring but fuck 'em).