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Really struggling - 3 year old with very sensitive hearing (possible hyperacusis/ASD?) hysterically upset by cries of 3 wk old brother. Very long, sorry.

11 replies

Jezabella · 23/08/2013 13:52

Hi, I am wondering if anyone has had experience of my situation. If so I would love to know if/how you survived, and how long it took for things to improve, or if there is anything I could do to manage it better!

DD is 3.2 and is not managing well with the arrival of her little brother 3 weeks ago. It's not simply a case of sibling rivalry or her nose being put out of joint, although there is certainly an element of this as we have had some impressive tantrums, on a scale we have not previously experienced. These I can ride out, but the real issue, which is making me feel quite desperate, is her very sensitive hearing and hyper-sensitivity to certain sounds - in particular small children squealing and babies crying. She has always been badly affected by certain loud noises - sirens, hand dryers - and as a baby even someone laughing very loudly would really distress her. Her reaction to noises has generally improved over time, but an increasing fixation (and it really does seem like a fixation, whereby she can get almost as distressed by the anticipation of the sound as by the sound itself), is with other kids and babies making noise. This has caused issues in her childcare situation, where on a number of occasions she has become inconsolable when the other kids at her childminder's get excited or a bit boisterous, and also at social events like birthday parties, where she cries and wants to leave as soon as the volume and level of excitement creeps up a bit. She is often anxious about group activities as 'there will be children there, and they will be screaming/shrieking'. All this has concerned me for some time, and she has had a development assessment for ASD, which I would not be entirely surprised if she is diagnosed as being, and at the very least she ticks all the boxes for the Highly Sensitive Child. Thus far, assessments for ASD indicate that she doesn't seem to be on the spectrum, but that she is clearly suffering at the moment from social anxiety, possibly caused by, and certainly exacerbated by, her hearing hyper-sensitivity. We are being referred on to a hyperacusis specialist and are waiting for the appointment letter.

Whatever the end diagnosis is, my current predicament is that at the smallest peep or gurgle from her little brother she bolts from the room, announcing that 'he is crying', and when he does actually cry she almost immediately becomes very upset, crying and near hysterical. This is my first week of managing 2 kids on my own as DH's paternity leave is over, and I'm finding it really hard. Yesterday we had to turn round and go home 50 yards from the house because she became hysterical when the baby started to grumble in the pram, and this morning we had 3 episodes of her getting very distressed by him crying, which almost finished me off. I think some of the drama is undoubtedly just because she's a 3 year old adjusting to a new sibling, but much of the time her distress at his noise is genuine and, as frustrating as it is to put up with, I am also worried it may be actually damaging for her to go through this emotional trauma many times on a daily basis, and also may have negative impact on her forming a relationship with her brother. She seems to have accepted the fact that he is here, and here to stay, but she is anxious around him much of the time (due to anticipating his cries), and her behaviour is generally avoidant. This makes me very sad, also because it means I am not enjoying these precious first weeks with him as much because I am so preoccupied and upset about how it's affecting her (and life in general at the moment). Just for the record, while we have always acknowledged her distress at the sounds she is sensitive to, we have always tried to play down their significance and encouraged her not to be worried or afraid of them, but in the case of her little brother it is just not working. It also means that I am spending enormous amounts of time breastfeeding him as it keeps him quiet!

Thanks for reading and hoping someone may have some advice for me...

OP posts:
PolterGoose · 23/08/2013 13:59

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Jezabella · 23/08/2013 14:37

Thanks for replying. We have been referred to Occupational Therapy but may be waiting a while for our appointment to come through (in London and everything seems to take 12-16 wks). I don't know what we should expect at an OT appointment - how does sensory therapy work? Am praying something will work at some point as otherwise this maternity leave is going to be pretty bleak!

OP posts:
HotheadPaisan · 23/08/2013 14:47

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PolterGoose · 23/08/2013 15:08

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Jezabella · 23/08/2013 15:15

I haven't read those books but perhaps I should get them fast! And thanks also for recommendations for ear defenders. I will look into the ones HotheadPaisan recommends. Thanks for your replies.

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ouryve · 23/08/2013 15:24

Definitely seconding (thirding?) the suggestion of ear defenders.

We have this exact problem with DS1. It started when DS2 was a baby and never entirely went away, but it's a real problem, now. Typically, DS2 will become frustrated with something or hurt himself and cry, or else he'll be excitable and shrieky. In either case, this is intolerable to DS1. If DS2 is a bit upset, DS1 becomes hysterical and starts yelling "He's crying for nothing" over and over. DS1's yelling upsets DS2 (he also has ASD) and I end up with both of them either yelling or screeching. It takes DS1 a long time to recover, too. He used to wear ear defenders, but finds them uncomfortable with his glasses, now and i can't persuade him to try earplugs (he's 9).

Sensory integration therapy can be quite variable in its availability, so you're best off finding out as much as possible about how to tackle the issues yourself. If you're offered help, then it will be a nice surprise.

ouryve · 23/08/2013 15:25

And i cross posted with Polter there! (yes, the boys have been keeping me busy and sitting down for 5 minutes at a stretch just isn't happening, today!)

boobybum · 23/08/2013 21:10

Hi, DS (ASD) was almost 2.5 when DD3 was born and he seemed to take an instant dislike to her noises. He had never shown any problems before with noise but he would get upset if she was squealing and very upset if she was crying. What we did was try to actually acknowledge when she was making noise in a fun way, saying things like 'what's your silly sister doing? What is she talking about? What does goo goo mean?'
This really seemed to help with the happy noises and he would even occasionally laugh along although he could only tolerate it for so long. The crying took longer for him to tolerate and even now he can become upset if she is crying, particularly if its mealtime but it is loads better.
We thought it may be the unpredictability of the baby noises that he really didn't like and as the baby has gotten older that is not a problem.
It does sound like ear defenders may be worth a try for the short term at least.
Good luck

Jezabella · 23/08/2013 21:58

Thanks for sharing your own experiences, Ouryve and Boobybum (great user name, btw!) - it's helpful to read about others who have dealt with the same thing. I am so hoping it improves with time and some OT (we can get her giggling over things like his hiccups, sneezes and wind, and she finds it very funny when we say he is having 3 breakfasts/5 dinners etc - because he feeds all the time - but I think the response to him crying will be harder to crack). I will read the suggested books as it sounds like there is likely to be a wait for OT and I feel like we need some tools of our own to start trying to help her cope better ASAP. Thanks once again for everyone's replies.

OP posts:
Andro · 24/08/2013 19:21

I've never posted in here before, but I have masses of sympathy for your daughter. The kind of hyper-sensitivity that makes a baby's cray acutely painful is horrific - I've lived with it for over 30 years.

You said this;

Just for the record, while we have always acknowledged her distress at the sounds she is sensitive to, we have always tried to play down their significance and encouraged her not to be worried or afraid of them, but in the case of her little brother it is just not working.

Now let me ask you a question; would you be scared if, at any point in time, someone could push a red hot poker into your head? I obviously don't know how the pain is manifesting for your DD, but for me it's an overwhelming, searing pain that pushes everything else out of my head - I have to walk away. Your DD's fear is very logical; as she gets older she will learn that not every noise is a pre-curser to the noise that hurts, but right now she is probably too little to understand that. That your DD is avoiding is good, at least in the sense that she's not attacking the source of her pain.

If you're worried about the noise traumatizing her, don't try and push her into being around noises that distress her - explain and encourage with non-cry sounds but remember that right now her brother is a live in torturer for her. Try warning her when he's setting up to cry so that she can remove herself, it might help to reduce her anxiety when she is around him generally. Please don't try and force her to be around him when he's crying though, that was done to me and it was the worst kind of torture (I ended up banging my head against the wall to try and make it stop!).

You've played down the significance of noises in the past with some success, have these always been in transient situations where painful noise may or may not occur? Living with the threat of that kind of pain is very different to a situation where you can be easily removed.

I really hope you manage to get some help that works for your DD, nothing has ever worked for me and the pain is as bad now as it was when I was a child. One other thing; for me it wasn't about volume, the painful tones hurt at any volume. Ear defenders help, but don't solve the problem entirely.

I'm sorry, this has turned into an epic post but I wanted to give some views from the POV of someone who has lived with this type of pain.

Cailinrua · 24/08/2013 21:09

This must be very difficult you. My DS (asd) has quite sensitive hearing and we have found ear defenders useful when out and about. Maybe if she knows she has a way of escaping the noise , e.g by using defenders, going to a quiet place in your house etc., it may help reduce her anxiety about the noise and crying.

It might help to set up a nice quiet area in your home where your DD can freely go to when the baby starts to cry etc. Maybe a little tent with cushions and one of those CD players with earphones with CDs of music she finds comforting. My DS likes to go into his wee tent with his animal collection when things get too noisy in our home or when visitors arrive unexpectedly. Since, he understands he can do this any time he needs to, his anxiety about such issues has reduced. It's as if it acts as a security blanket for him iykwim.

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