Dd had dx of ASD yesterday

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We were told verbally yesterday that dd does have ASD, it's been a long 2 years since first going to HV with concerns. It's sad to hear but also a huge relief as I feel like we can really move forwards now and stop going back and for in our minds about it.

Hi, we have just had a diagnosis for ds (aged 6) this week, too. How old is your dd? I know what you mean about the feeling of relief. I feel like I've spent the last three years googling his every symptom and convincing myself one way or the other about what it means.

I was refused a verbal diagnosis and have been waiting over 2 weeks to see the paed to get the written diagnosis. I will get it on Monday. I feel the same way you did, I havent been able to stop thinking about it and I am really keen to know and move forwards.

Best wishes to you and your dd x

Thanks both, dd is 4 in a couple of weeks, hope the dx helps you both too. It has helped me decide what I need to fight for with regards to school and support for DD

Glad you finally got a dx for your Dd oso I also have a Dd with Asd, she is a lot older than yours. It took us along time to get her a diagnosis but it has been very helpful in terms of us understanding her.
She copes really well at school alot of the time but gets support when she needs it.

Good luck

Oso, was that from the appointment that you were asking about last week?

I hope it was a helpful appointment and not just the dx alone.

I'm very sorry, but hope you can find relief in no longer being on that frustrating and helpless 'is she-isn't she' bus that can drive you to distraction, and that you can now begin working on the solutions and support.

Thanks ineedmore I'm glad your dd copes well at school and gets the support when needed. I hope this dx will lead to the right support for dd

Yes starlight it was and it was a very helpful appointment and I'm really glad we went. I do feel relived that I know for sure now and can help dd accordingly. It also helped me understand asd in girls a bit more, dd didn't 'tick all the boxes' when it came to some things I'd read about asd and routines in particular and this had confused me but I understand that more now

Oso, well done for getting things moved on, your DD is lucky to have you. And all the best for her birthday coming up soon; hope you both have a lovely day

I concur. Diagnosis of ASD is painful to hear but the relief is greater. To be finally given permission, if you like, to now grieve for the loss of 'normality' is replaced with hope for now being able to move forward - both for you and your child. So much good advice, help and support is out there - Mumsnet is one such vital lifeline for this. Be assured, you are not alone and so many other mums, myself included, are always here even if you just wish to vent.

Good luck with it all and congratulations, strange as it may sound, for getting this diagnosis fairly early, (same age as my son), when so many still remain without it. x

Thanks marchduck
And thanks sophj mumsnet has been by far the best support for the last 18months or so, I don't know where I would be without all the amazing advice I have had and read on here, it has helped me understand and help dd and I'm so glad I found it.

When our children are labelled 'Special Needs', it's easy to forget that we are too. Our needs are to be given a voice and this site is fastly becoming my new addiction. "Hello, my name's Sophie and I'm addicted to Mumsnet"...

This is the kind of group therapy, which has far-outreaching hel, advice and comments on offer, better than any face-to-face group - for me, for now, at least. x

Yes you are right, it has helped me so much to speak to others that are in the same boat as you, it is like therapy for us, it also helps reading others stories and realising sometimes that things could be a lot worse as well, dd may be different and have difficulties but I always think I'm so lucky that she is such a happy little girl and she is healthy that's the most important thing.
It is nice to be able to vent frustrations that we all seem to experience at the lack of/delay in support in the outside world also.

I actually quite like face to face contact with people in similar situations to me. I am involved with a parent support group and we get together to talk and we take our children out as a group. We have had some great days out and no one judges our children because we are all in it together.

I also use this forum alot and have had some amazing support on here over the last few years

I think my fear of the face to face group is that I will feel compelled to make friends with people, who I may not otherwise be friends with, simply because we have children with similar needs. Actually, now I read this, it sounds really snobbish and it's not meant like that at all.

In truth, I guess I'm not brave enough to meet in person plus have got used to keeping things to myself, except in this forum where it is just the written word - a medium I find much easier to use, being an unpublished author to-date and with a love of writing!

Who knows, one day soon, now that I have my youngest due to start school in September, I may brave the more personal contact. x

I keep things to myself a lot too and I am quite shy in person when it comes to talking about feelings so I find it a lot easier to talk on here. I also do have a fab couple of childhood friends that also have a few young dc so we have nice days out and they always try and include dd

I actually told one of them yest about dd dx of asd as I hadn't really spoken to her much about it (not that I suspected asd anyway, she knew about dds difficulties) as she was great so that was nice

Hello all DS aged 3 also got an ASD diagnosis this week. Amazing all the different reactions you get! Also becoming a bit of a mumsnet addict, there are so many lovely people willing to offer their advice and support. I got some really reassuring comments and helpful advice to my thread about how other kids will treat DS.

I'm also not sure about going to the SN support groups but it's early days I guess.

Take care all

Hi Ahhh
Glad you found helpful advice, it is something that worries me too, how other kids will treat dd. some stare at dd now when we are out and she is acting a bit odd but she is oblivious and I suppose they are just curious, my friends DC are great with her though and are used to her ways. It's definitely the adults I find the worst!