Developmental delay

[gingwhing]

My son is 4 and has moderate developmental delays. I'm pleased with the intervention he has received from SALT, paed, etc and the school he is starting in Sept seems to be great. it's not something that constantly worries me, he can be a handful but he is generally a happy, busy and very characterful little boy. However I do sometimes feel a little lost especially when I'm not being kept busy by him. There seems so very little on the web about dev delay. For other sn there are case studies and parents perspectives. I also think that some of his abilities don't quite fit in with the 'general' bit of the developmental delay. For example, if he is functioning at the level of a two year old and has quite an extended vocab now of probably 300 words and is using 3 word sentences does he still get animal noises wrong, can't say his sisters or his own name and will answer 4 if you ask him his name. Is there anyone out there with experience of this?

Hi my middle son is delayed in just about every aspect of life. It has really been a hard road with him. but he is happy loving and very cute. It's been hard finding out what exactly is wrong with him and I thought it may be a global development delay but after seeing ot who found out he has a lot more issues than I had noticed, he has dyspraxia. I recently asked his pead if he would get a dx. Maybe ask your pead what they think the main issues are and how best to help? My sons problems are many and from what I understand neurological but his visible problem is his language so I know that needs more help. Then his co ordination and SPd which we do at home. Also I know now he's never to wake up one day and have catched up. I guess you need more advise from the doctors.

I think it is the question of what the future holds for him that concerns me the most. If you don't mind me asking how old is your son and have you received quite explicit information on how his condition now might effect him as an adult. Also , my Ds is the middle child, how do your other kids cope (is it an issue?). Thanks for replying

Mine's now 25 and has only now reached the terrible teenage years - which tallies with what we've always been told - that they function at 2/3 their chronological age.

You might also want to look into some mito testing. Found this old thread a while back - www.mumsnet.com/Talk/special_needs/904555-mitochondrial-disorders-amp-autism-are-there-enough-of-us-for/AllOnOnePage

WetAugust - What interventions did you try?