Monday back at work after dyspraxia dx - feel like....

[2boysnamedR]

Poo. Just read the nhs choices fact sheet as I will have lots of questions today ( so many hospital apps and missed days). Dyspraxia normally goes hand in hand with asd and ADHD? Ok I knew this but now I just want up curl up and cry. Why him? Why!

I just don't want to cry anymore. People are still telling me 'oh that's ok then' like he will grow out of it

Some one please slap me and tell me to get a grip. Being a mess isn't helping anyone

Aw, 2boys. Easier to give advice than to follow it, but please remember you are grieving for the DC you thought you had and it's a proper grief cycle. Your DS hasn't changed because of his DX. He's still the same lovely boy he always was, it's your aspirations and dreams that have changed. But be kind to yourself, it's a very difficult time.

Dyspraxia is sometimes co-morbid (goes with) ASD but definitely not always. It's more that ASD often goes with dyspraxia, IYSWIM, ASD Dxed first. And the dyspraxia DX alone often accounts for any social skills issues.

I guess you have to come to terms with the fact it will mean 'different' but not 'less.' He may have more challenges and you'll have to be on the ball with school etc, but your DS will have a new and different perspective on life that can be a positive thing.

My DS2 has ASD, lots of things are more challenging for him and for us as a family, but I wouldn't change him now, I can't imagine that child he was 'supposed' to be anymore.

I can only offer sympathy and say that I think it is very usual to feel really down after a dx. When my DD got her dx of social communication disorder I felt really low. Then one of my friends said that I should always remember that DD was the same sweet gorgeous girl that day as she was the day before - that helped.

Also, you need to allow yourself some time to feel upset - its only natural. Given that you have pushed for his appointments and diagnosis to get this far, you will soon be ready to move onwards and upwards and help him in the way he needs.

I think for many of us, the future is somewhat uncertain (they told me my DD may get a full disgnosis of ASD when she is 6 or 7). But it doesnt do any good to worry about what might happen two years down the line. I sometimes feel that I have wasted too much of the time that I have so far had with my DD, 4, in worrying and projecting those worries. Needless really - when it is the doing and spending time together now that really counts.

As others have said, easier to say than do though!

Hi OP
I'm a bit of a lurker on this board, but wanted to post and offer my support. My DS was diagnosed with dyspraxia 18months ago, he's now 5 1/2 and I remember feeling very down and had the same 'why him'
However with lots of salt and OT he's doing really great, seeing such an improvement in him, and he's not showing any signs of ADHD or aspergers.
Have you been in touch with the dyspraxia foundation? They are a great charity and there are local support groups which really helped us. I recently a charity run with them and met some really inspirational young people who have dyspraxia, which really gave me hope that my boy will still be able to achieve everything he wants.
Hope this has been of some help
Xx

Thank you helsf I have been in touch with the dyspraxia foundation this week and hope to get involved with my local group. I also had the charity iCan phone me today so I am planning to get some private salt going as my nhs one is quite frankly useless. I feel a bit more positive, it's just feeling that I should be doing more for him. I also had sure start today tell me they may have a volunteer for us so I will take this as a opportunity to re gain some positive control in our family life. Thank you for your positive words

Home start - not sure start! With all the ot, salt exercises and school work I am drowning trying to fit it all in