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Diagnosis of dyspraxia

11 replies

2boysnamedR · 09/08/2013 17:23

Well I didn't really think the paediatrician would dx him but there you have it. I'm not at all surprised. He has other things going on so may get another dx as well.

Feel quite ok really - no new use to me

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bizzey · 10/08/2013 00:05

2boys may I ask how the pead dx'd it ? Had he seen a n ED Pyc.

Still awaiting news on my boy and everyone just keeps passing the buck !!

Glad you are feeling ok about it ...what other dx are you expecting?

Thanks.

2boysnamedR · 10/08/2013 15:02

I was shocked really. It was mentioned in a offhand way 'with children like x who have dyspraxia, dyspraxic symptoms, but he don't call it that anymore .....' She then told me that his speech and work finding and sending singles to and from his limbs is all part of the same thing as his brain connections are joined up enough.

He has been under her care for three years, salt for three years and just had three months of ot. I think it's the reports from ot and salt with his hypermobilty that clinched it.

Her waiting to see a ed phycologist and the pead is writing to school to confirm he must see one.

He has been very very slow to talk and now he is talking and and school he is showing impulsiveness so I suspect some asd also comes into play BUT learning difficulties are a symptom of dyspraxia.

I have also been told that doesn't really sit nicely into any one dx and he's a complex little thing. I can agree with that!

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2boysnamedR · 10/08/2013 15:03

Sorry my typing on the phones not too good!

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bizzey · 10/08/2013 16:51

he's a complex little thing is what I have been getting ...word for word almost what you have been getting !!!! Grin

My ds does not "tick all the boxes" either....He is under...

Pead (hypermomility and hypertonia )
child developmental pead
SALT
OT
Physio

At school he is on SA+
Lit support

Awaiting app at Moorefields for some eye tracking thing and CAHMS (?sp)

Comm pead has 2x requested school to sort out the Ed Pysc stuff...not happened yet.

Lit support lady has requested he uses ICT in school still waiting ....

I'd say quite a few boxes are being ticked there !!!

I was exhausted towards the end of the school year (and my dad was dx with stuff as well that i had to deal with and sort out ).....but come September my batteries will be re charged to fight again !!!

Thanks again for answering

2boysnamedR · 10/08/2013 17:00

Your son sounds very much like mine! Not seen cahms and its not been mentioned but I see the pead again in oct and I will ask. How olds your boy? Mines 5.8 ish

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bizzey · 10/08/2013 17:25

He was 9 a few weeks ago...going into yr 5 in sept!

2boysnamedR · 10/08/2013 22:22

What age did you suspect some thing was up? I think I knew things weren't right at 18 months and started then.

School and salt told me I probably wouldn't ever get a dx so I am surprised. I wonder if it will be on her report? In black and white?

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bizzey · 11/08/2013 02:46

before I post and you read ...get your self a cuppa !!!!!

I will tell you my "clues" but before I forget to ask ....she is 5.8...I thought they did not diagnoes/look into dyslexia tilll a child was 7 plus as they had to be proved to be 2+years behind inreading/writting ???

I am not doubting you ..but it seems such a flippant remark to make this young I can see how your head must have been in a tizz.

I am on 2 threads at the moment about my ds, the other one talking about Asperger signs/traits which I am going to bring up at our next meeting ,....so excuse me if I go off tangent sometimes ...but I feel they are all connected.

When did I suspect....

from birth Blush

0-24 months
Very serious babychild...would give me 1/2 a smile now and then ,but blanked everyone else...but in a passive way...no words...an odd grunt grunt that I acepted as thank you...19 months 1 step...22/23 walking...stuborness showing...liked isolation when eating....no I mean he liked to be ignored as in no faffing or helping ....it could take him up to an hour to eat ...but it got ate !!

(I should say I had a 3.1 and a 21 month when he was born so I did anything for the easy life !)

2-4 yrs

My mum has noticed lots (as if I haven't!!) but she is a bit "me me me " and thinks ds3 doesn't love her because he does not give her cuddles or is as loving to her as the other 2

Speech probs noted...nursery ask if he is under SALT (they know he is not !)
and selective mutisim is mentioned...I said he was shy but will talk to me ....and left it .I knew it would not work as he got very anxious if he was going to have to talk, and got very ANGRY if I did not understand him ....which leads me on to his tantrums....scarey !!!! did not help when paternal grandparents wound him up on purpose

(he is under physio by now and in piedro boots and exersises at home)

Reception years

What a friggin waste of space that year was...they did not understand him or help him ...but I applied for SALT via HV (blood is boiling about them now so wont say any more!! Grin

We moved (yes I LTB!)

Living now near my mum...got the boys into a school known to me.

Took them to meet HT ds3 clung to me

no place in yr1 for ds so it was suggested he repeat Reception as he was a late July birth ....he hated it for a whole year as it was boring ...I now know he needed structure not free play...he ended that year still unable to read or write....big alarm bells ringing now!!!

That September there was a place for him in his proper year group so he moved to yr2 !....By then I had had enough of teachers saying it was the move that was causing him to "be behind" he couldnt even write his name.

I filled in a CAF form (?) and he has had outside help with behaviour (confidence issues not naughty) Lit support ,and a TA works with him and the child she has.

He has had Lit suport by a specialist for a year and it has been amazing .40 mins with her and I do her homework with him every evening and he can read ....ok they are aimed at yr1/2 but the pain of having to listen to him read has gone Blush

He still cant write ...and that is the brutal fact of it ...the brain and hand are not connecting 1/2 hypermobility 1/2 something else no one is willing to say ???Weird thing is ...he loves writing me my shopping lists and things (cant read them while in the shop!!

Oh crikey what have I done !!!...bit of self therapy I think !!

Still ...How are you today 2boys hope you are well !!!Blush
What other dx are you thinking you will be getting?

I am tempted to put mine in a sealed envelope now and compare at the end !!!

2boysnamedR · 11/08/2013 12:52

Like I said it was mentioned but we will see if its in the report in black and white about the dyspraxia. As to dyslexia I have dyslexia and my eldest son 9 shows signs of it. Yes that they don't like to diagnose until they are older as its giving them time to catch up.

With dyspraxia - he is very hypermobile there is no deniging that. He has hypertona his vocabulary is severely delayed. He has word finding issues. He can not cross limbs over his mid line. He has poor balance. Learning delays. He ticks all boxes for symptoms ( plus some for asd I think but maybe it's just more dypraxia symptoms?)

I am very pushy I have complained to the head of virgin care about his salt provision. Believe me every manager of every carer who deals with him has had a telling off. Jeremy hunt was complained on my behalf.

So I am not sure I have a formal dx yet. But u have been told its that. Right now that's good enought for me. Maybe I will be fighting to get that in writing - I will wait and see!

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2boysnamedR · 11/08/2013 12:59

My son was on school action plus in reception also - because he was under more than one provision for his delays - again I have been pushing for this since 18 months
So I have no one now he can't denie these are real problems ( as they did a year ago before he started school!)
Oh they all catch up, don't comparing them, Einstein didn't talk till he was xyz!

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2boysnamedR · 11/08/2013 13:00

If you meet me son you would think him perfectly normal. Just shy with a stutter and babyish talk

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