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Developmental Delay/Hydrocephalus, anyone?

59 replies

Arabica · 13/06/2006 13:26

Hello!
I'm 33 wks pg with a baby who's currently got too much fluid on its brain (ventriculomegaly). Have been told that because the amount of fluid, and that fact that it's increasing, baby is highly likely to need a shunt operation straight after birth and there is also a 'significant risk' of developmental delay.
Just wondered if there is anyone who's been in a similar situation and/or who can tell me how you were able to cope with your newborn being whisked off for tests and intrusive procedures straight after birth (am dreading it).
I'll know for sure whether baby neds the op at 36wks when I have yet another scan, but I want to prepare myself, preferably by hearing from someone who's been there, and the hydrocephalus website haven't got back to me.
Thanks for reading this--sorry it's turned into a thesis.

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bundle · 06/07/2006 14:22

oh arabica, only just seen this, great news xxxx

Arabica · 07/07/2006 10:28

Got another consultant appt today, with my obstetrician. I think it's just to finalise the arrangements for the birth and tell me about what the neurologist will be looking for when the baby goes to special care. Even though I had good news at my last appt I still don't really fancy going to the hospital. I know Emkana will know what I mean!

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CristinaTheAstonishing · 07/07/2006 10:46

Good luck, Arabica. I hope today's appt will at least reassure you about the birth itself and what happens after.

emkana · 07/07/2006 10:46

I certainly do! Good luck!

Arabica · 07/07/2006 10:55

I'm off now to get my bus, would rather be on my way to Wimbledon to watch Nadal's sexy ass. Might go to Primark later, too...woo hoo!

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emkana · 07/07/2006 19:05

How did it go?

Arabica · 08/07/2006 11:52

It was fine. Have got slightly low iron levels and they wanted to have a look at my swollen legs and feet and test for protein in urine--but all looking good.

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CristinaTheAstonishing · 08/07/2006 15:59

Glad to hear it went well. How long have you got? The swollen legs must be partly due to the heat too.

Arabica · 09/07/2006 22:40

C-section 27 July! Hoping the legs won't get any worse before then, I can hardly walk--and I have big shopping trip before then to get all the things I've been in denial about needing, like a bra that fits.

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