Four hospital apps in three days. Heart already a bit broken

[2boysnamedR]

Salt said he was severely delayed in vocabulary and scored 4 where the norm is 8-12. He scored 7, 7, 4 so 7 for grammar, 7 for pronouncing I think. Anyone know what the test is?

On the good side my mp Jeremy hunt has replied to my email is taking action on my behalf

Tomorrow is ot, Friday pead and then ent. I already know the news, I just die inside when I hear it

Thank you. He's been with salt since 2.5 and he's in year r now. Since he started school he's had ot when they also pointed out hyper mobility, sonsory issues, he has learning delays, can't word find, under pead care, going to ent for recurrent ear infections.....

So symptoms like dyspraxia, asd and SPd

He's on school action plus but been told I may never get a dx. I knew something was wrong at 18 months

Can you get tshirts btw that tell people your story? I have told about five people today ( sure start fun day!)

Pead has brought his appointment forward by three months. I have been nagging for a dx, now I just don't to hear it ( not that I think she will give out a dx).

Ah inside I'm crushed, while I paint on a happy face and listen to mil woes of her bad skin.....

Sorry you have had such a hard day, for you tonight to help you through the next 3 appointments. Let us know how ds gets on.

I think a mind meld thing where you could instantly impart all the twists and turns of our dcs paths, with the touch of a finger, would be brilliant. Last time ds was in hospital, I ended up writing it all out on the iPad and giving it to role to read, because every single med student and dr appeared out of the woodwork to askfor his history.

I don't know if it helps but we were told we probably wouldn't get a diagnosis, but in the end (after two years) we've now got ASD/PDA, SPD and will prob get ADHD too by the end of the month. Diagnoses must be like buses, you wait for ages then two/three/four come along at once.
I've been moaning myself about other people telling me their petty problems when I feel like my own life is completely falling apart- it does get to you.
Loads of hugs and honks from me too.

Yes I feel like screaming 'my sons world is falling apart and your moaning about xyz!'

I am mastering keeping all inside - like a volcano about to blow....

I think hospital referrals are like buses too it seems. Poor kid having to sit there while I point how he sh*t he is coping with life. Thankfully he seems obvious to it, but I bet one day he will tell me how hearing me say those things upset him ( or he will still be off with fairys)

Oh poor you. I remember it all so well. We thought there was something wrong, were told there wasn't. Then DD1 started preschool and a few weeks later they asked to have someone observe her. They said she needed 1:1. Fair enough. 4 weeks later, she was falling over for no reason.

The day she was sent to the hospital; she was kept in overnight and I left the hospital the next day with a list of appointments - a tad overwhelming.

She's now a very happy 7 year old who thrives despite her difficulties.

Oh how scary lougle. My son tried to jump out my moving car last month.

Deep breath

I know that feeling, ds puts himself and others in serious danger so often and it is scary to think that one day he might see it through completely.
This place is a lifesaver though, here, you will always find someone who understands what you are going through.

Just wanted to offer a virtual shoulder squeeze - you were a great help on my thread. Sorry things are tough at the moment but this is the place to let off steam!

Thank you lovely ladies. You all are my only support network. I was asked today at sure start if I go to any support groups but as day has no dx we don't know where to go. There is a asd group twice a month but I can be sure he has asd, or anything really. He's just my enigma. A charming complex little mystery