Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Dont know how much more of this we can take

9 replies

jenk1 · 11/06/2006 09:20

DD was admitted to hospital early this morning.
She had temperature of 40.1 and was fitting.

This keeps happening and when she gets a temperature we cant get it down.

DH has just rang, they have taken some blood and are waiting for the results.

Why does this keep happening?

Is this normal with kids who have CP?

I keep thinking its something that Im doing wrong although i cant think of anything.

Its just so frustrating. Sad

OP posts:
Twiglett · 11/06/2006 09:24

oh Jenk .. some kids just get febrile problems .. they should grow out of it eventually as the body gets bigger

I'm sorry you're having such a tough time atm .. can appreciate your frustration

do you do cyber hugs? [{{}}}}

Blandmum · 11/06/2006 09:24

It must be awful for you.....i'm so sorry that you are all having to go through this....hope that the temperature comes down soon.

A friend of mine has an NT ds who is like this. any bug he gets , he throws a massive and very scary temperature....horrid.

Hugs

chonky · 11/06/2006 09:26

Jenk, my dd was admitted repeatedly last year with 40+ degree temps. She has CP, but no real diagnosis IYSWIM. My suspicion is that her brain, due to it's subtle structural abnormalities, struggles to control temperature very well. Therefore ANY virus she contracted would make her temp skew wildly. Just a hunch.

Sorry to hear that you're having a rough time of it, but hopefully it makes you feel a little better that someone else's dd is like it. Small consolation I know.
My dd does seem to be getting better with age , so hopefully they grow out of it.

Pages · 11/06/2006 10:03

So sorry Chonky. DS1 had a febrile convulsion at age 9 months and it is so scary. It has not ever happened since but I am petrified every time one of the children gets a temparature and probably overdose them on nurofen and paracetamol but the alternatives are to scary for me to contemplate. Do you try alternating the two? Paracetamol (calpol) alone doesn't work for either of mine, I have to give them junior nurofen as well and I swaddle them in wet cold sheets or put them in the bath. You probably do all this already so sorry if teaching to suck eggs, etc.

Hopefully your DD will grow out of it.

Pages · 11/06/2006 10:04

Sorry< I meant Jenk1 but chonky too!

2shoes · 11/06/2006 11:25

do hope your dd is better now.
dd has cp and we have been told(pead) at the slightest sign of a cold/virus to give her paracemol to keep her tempature down. as she has epilepsy. have they ruled epilepsy out??

stapo1 · 11/06/2006 22:12

Sorry to hear dd is poorly,
Our ds2 has CP does get repeated infections & struggles with 40+ temp which don't come down easily; although luckily has not fitted, he tends to become difficult to rouse instead.
I had never associated it with CP but maybe Chonkys' theory is correct makes sense to me anyway! Ds1 doesn't suffer in the same way.
Hope your dd is feeling better soon & I am sure you are doing everytning right so don't be too hard on yourself.

reiver · 12/06/2006 20:14

So sorry to hear your little one is having a bad spell again. How is she doing today?

chonky · 12/06/2006 20:49

was just thinking the same thing reiver. Hope she's feeling better jenk.

New posts on this thread. Refresh page