Hypermobility - ds struggling and doesn't seem to be much help available

[BeaWheesht]

Ds is 6 and about to go into p3, he really struggle at school :( there may be some visual perception issues but mainly he really struggles to write at any kind of speed - his writing is neat but it take him soooo long and hurts him.

Teacher had thought dyspraxia but after seeing OT she says he has hypermobile arms, legs and hands and is flat footed.

The hypermobile arms / hands do seem to be causing him real issues but he's been discharged and the school are going to let him use 'theraputty'. OT said she's send me a sheet of exercises.

I'm just concerned because its affecting all his learning because he takes so long to do anything, gets disheartened, can't draw like his friends can etc.

I don't really know what I want anyone to say here am just venting but I so want to help him as my confident happy wee boy is slowly disappearing :( any tips or anything would be greatly appreciated.

rabbit your Ds sounds scarily like my Dd3. Except for the early mobility stuff which oddly Dd3 had no apparent problems with. Other than falling alot and being obviously quirky she met most of her physical milestones. It is very odd that she has so many problems now

Another great post

We had no idea any of the DDs had hypermobility till dd2 started fainting aged 13, was eventually diagnosed with POTS, and I started researching. DD1 was diagnosed at 19, DD3 is a bit hypermobile but no issues.
However my mum aged 67 has just realised she has JHS/EDS despite having had a hip replacement at 50, and arthritis in loads of joints.
It doesn't always cause obvious problems early on, although now we look back and realise exactly why dd1 was so spectacular rubbish at PE and anything involving balls

I am reading all thiS and I really appreciate it.

We are waiting on a test re visual perception because for example he will copy a sentence, miss a word and not even be able to tell when it's pointed out and he isn't great at copying shapes / patterns etc.

OT said he wouldn't be referred for flat foot because he has no issues re stamina when walking etc.

He crawled at 7 months and walked at 10 months, spoke in sentences by 18 months. He was always so far ahead of his peers until he started school and this is all just so worrying

DS crawled at 6 months and walked at 12..his speech however was very delayed, and is still.

Can I just say that now, aged 13, even with all his dyspraxic issues he is a clever, humble and very funny person.

Just be his advocate. Labels are very useful. But your belief in your child will be the thing that counts. Although, having said that, once he had a diagnosis of dyspraxia, I could see the weight fall from Ds' shoulders almost immediately.

Best of luck to you and your ds.