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Here are some suggested organisations that offer expert advice on special needs.

No diagnosis

5 replies

Plus3 · 18/07/2013 14:38

So there we go. DS has been discharged from ADHD clinic. Dr didn't see any evidence of his anxious behaviour at the school visit, no noises no getting up constantly during the lesson. She acknowledges his sensory issues, and thinks these give him low self esteem & that we shouldn't label him.
She was very nice & will see us again in her normal clinic in November as this is when he struggles the most with the transition into a new class.

We have no date for the speech therapist to see him in school (he was assessed for a social communication disorder on a 1-1 basis - they said he struggles to understand the consequence of his actions to his peer group & the school should look at this, he doesn't actually have SCD Confused)

So...I only went through all this initially because I didn't want him to fail at school. Well he is. End of yr4 & he scored 95 in his Maths SATS & has been graded at below average for maths. Literacy is better, but still only 112.

Seriously - what the hell has the last couple of years achieved? I have been completely stressed out by the idea that he may have Aspergers/ADHD

I can't actually even begin to articulate everything.

OP posts:
Handywoman · 18/07/2013 15:58

Nothing to say ? except - yes... it is rubbish.

Just had private ADOS this week - no further in our four year journey here either. Happy to drink g&t all evening, in fact tempted to break into the Goose and Carrot (but won't really).

Plus3 · 18/07/2013 17:52

(Necks G&T gratefully) don't suppose you have a tissue as well handywoman ?

Gah. I am starting to feel like I am chasing something that isn't there only both DH & I know it is think we will aim for a private SALT to assess him at school.

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Handywoman · 18/07/2013 18:04

Good idea re: private SALT, ours has been an amazing advocate and a perceptive, skilled therapist. Hope you find someone like that. There are no guarantees in this life. But you gotta keep fighting. But neck a couple of G&Ts and shed a few tears along the way - that's also crucial.

Plus3 · 18/07/2013 18:16

Thing is...if he is borderline then maybe a label won't help BUT I & the school need to know the appropriate strategies to help him.

I know there are people who struggle with so much more, and I don't want to be a drain on already stretched to breaking point resources, but I just don't want to fail him.

Complicated,this child rearing lark.

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coff33pot · 19/07/2013 01:18

You are not failing him. You have noticed some issues pop up and have tried to seek out appropriate support and advice that is not a failing mum :)

ok so no DX at present. That doesn't alter the fact that there are still issues that school need support with. With regards to the sensory side can you self refer or the school refer to an OT who is sensory awareness trained?

maybe an observation from an OT might bring forth some useful advice and suggestions to help him x

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