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56 replies

redbull · 06/06/2006 14:50

i just carried away sometimes and when i have a prob and post like to include all details incase no one knows who i amSadSadSad!!!!!!!

im redbull (nicky) im 25 and i have a Ds who is 5 who is Autistic and goes to a SN school,my dp is 29 and does traffic management on the roads VERY LONG HOURS Sad (get Blush incase anyone thinks as we r not married hes not ds dad)
in jan this year ds got his boke at school wich reulted in 16 weeks off school, the school have been shite about everything and i end up in alot of rows with themGrin in my spare time i like to read,card making and go to angel work shops.

Im learning to drive through the family fund.

ds probs are constapated,little speach,no understanding of the world,no sense of danger,poor apitite and BAD sleep problems, the GOOD ponits are he is soooooooooooooooooo loving,good imagination,loves me his mommy to bits, he cant speack much but can work out instructions,he knows very good sense of direction as if he has a map in his head, he loves robots, cars and scooby dooSmile

we live in brum and my family are FAB loads of support, i suffer from depression and dp also has mental health problems (we are not crazy, PROMISE Grin) tell me about you Smile

OP posts:
redbull · 06/06/2006 15:09

no one want to share????Sad

OP posts:
FioFio · 06/06/2006 16:44

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coppertop · 06/06/2006 17:19

I'm 32 and live in Cambs.

Ds1 is nearly 6 and is autistic. He goes to a m/s primary school where they have a brilliant SENCO and lovely teachers. He's having a few problems atm but generally doing well. :) His main problems are sensory and he hates loud noise, bright lights and being physically close to other children. He also has a unique way of looking at life and makes us all laugh. :o

Ds2 is 3yrs old and is also autistic. He is affectionately known as HyperBoy and is permanently on the move. He goes to a m/s pre-school and is doing well there. He hates loud noise, bright lights, and wearing clothes. :o He is also incredibly cheeky and follows his big brother everywhere.

Dd is nearly 3 months old and very different to her brothers. I finally have a child who sleeps!

I don't seem to have much spare time (no babysitters either) but when I get the time I am the editor of a newsletter. I also love laminators, stationery and notebooks. :o

FioFio · 06/06/2006 17:20

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2shoes · 06/06/2006 17:30

what a good idea
i have 2 kids ds is 14 and nt brilliant with dd.
dd has cp she is 11. her dx is afetoid cerable palsey. she is in a wheelchair and can't talk/walk or most things. she is very bright and very funny. understands every thing you say(sometimes too much) she tries to vocalize and has some words. she needs one to one care. oh and she also has epilepsy and suffers with constipation. she has been at a special school since she was 3and half.
we live in brighton and DH is a painter/decorator.

sphil · 06/06/2006 17:59

I live in Lewes, East Sussex and am a lot older than any of you who've posted so far! I'm married, not working atm but used to be a secondary school English /Drama teacher before kids.

I have two sons. DS1 is just 5 and at m/s in reception. We describe him as NT with dyspraxic traits or dyspraxic with NT traits depending on which day it is Grin. He loves Power Rangers, Thunderbirds, volcanoes and asking millions of very hard to answer questions. Doing well at school with some extra help for his coordination problems - has made amazing progress this year.

DS2 is 3.8 and has ASD. He goes to m/s pre-school with 1:1 support. We're just about to start the statementing process but are unsure as yet whether he'll go to m/s primary or special school. He has severe language difficulties, a short attention span and some sensory problems but is also loving, funny, contented and adapts well to change. He's just starting to interact with other children, which is lovely, and is doing very well with PECS.

In my spare time (ha ha) I love gardening, reading the paper/trashy magazines and cooking/eating.

Blossomhill · 06/06/2006 18:25

Hi

I am 31, live in Surrey and have been married for 4 years (we have been together 10 yrs)

I have an 8 yr old ds (who is nt) and a nearly 7 yr old dd who is a very complex little thing. She has a pragmatic language disorder with autistic traits (possibly AS but have to wait and see) and Adhd. She is very high functioning but her anxiety can cause some behavioural issues. She is in a language unit and doing much better since going on medication for her hyperactivity 2 months ago.

I love clothes, going out with the girls, out for meals with my dh and generally spending time with the kids.

I am a SAHM and spend lots of time clearing up after my messy lot Angry

AttilaTheMeerkat · 06/06/2006 18:47

oakey dokey

I'll be 39 years old in just over a week's time and live in the Essex Badlands with my husband and DS.

DS was diagnosed with development delay and speech and language delay when he was 2 1/2. He is in mainstream and has a statement. Some good news that I received recently was that he will not have to see the SALT for much longer as she feels there are no longer speech issues with him. We still see a paediatrician along with an OT and the physio dept at hospital every six months or so. DS is happy at school and they are very pleased with his progress.

DH has and continues to be a godsend on all sorts of levels. I cannot however, say same re outlaws and parents though (particularly them).

It's been hard going at times and I do feel a bit battle scarred. I have great empathy with others who have far greater difficulties than me.

I like to travel, surf the net, read all sorts and watch nature programmes. Musical tastes include Bruce Springsteen, New Order, Nerina Paillot, Annie Lennox and REM. I also like going to concerts when time and sitters allow.

My best wishes to you all

Attila

anniebear · 06/06/2006 18:52

I'm 34 (35 in a few weeks!)

Have twin girls who will be 5 in August (that has gone so quick!)

One had Meningitis at 8 months old, suffered brain damage, Hydrocephalus, then went on to devlop a rare/serious form Of Epilepsy

She is doing a lot lot better than what we were told, although she is very behind with her development

Is hard work and we are stil waiting for her to sleep through!

I started selling Usborne books in June last year to give me somethign to do other than worry abotu the girls!!!

lourobert · 06/06/2006 19:12

Hello all

im 26 and live in Portsmouth with my dp and my 7 mth old son who was dx with infantile spasms about 2 months ago (certainly seems much longer than that!)

im a social worker and currently work part-time. My family are FAB as are my dp's and they LOVE their first grandson to bits so we are very lucky.

i o to the gym to de-stress (when I have time) enjoy girlie nights out- one is way over due!

Stiltrying to adjust to everything that has happened to us in the last 2 months but feel like were slowly getting there! :)

redbull · 06/06/2006 19:56

for got to mention mumsnet as well that is a BIG intrestGrin!!!
and love having nights in with dp and ds all cuddling up watching disney films or the scooby doo movie!!

OP posts:
Pixel · 06/06/2006 20:43

Hi, I live near Brighton, I'm 39, married (anniversary today!), with 2 children. Dd is 10 yo, very bright academically but absolutely zero common sense! She loves her little brother though and has endless patience with him. Ds is 6 yo with asd and sld. He is non-verbal and can be quite hard work but is loving and gorgeous. He is another scooby doo fan! Also Tom and Jerry, Roadrunner, Kipper the dog and of course Thomas! He cannot dress himself and is still in nappies but can figure out how to use a dvd player or computer game in no time. He's obviously a bit of a Geek! As for me, I'm a SAHM at the moment. I like reading, gardening, knitting, cross-stitch, horses and lots of other things. Don't seem to have much time for them though. Maybe I would if I didn't spend so much time lurking on Mumsnet Wink.

jenk1 · 06/06/2006 22:04

Hello im jen im 33 and married - have been for 6 years to a brill DH.

I have 2 children, DS who is 9 and has AS, he can be extremely hard work especially as he is home schooled atm with the help of part time tutors but he is very loving and has an amazing sense of humour.
DD is 2 and has CP, she is hard work as she also has a development and language delay and takes up a lot of our time.
Then theres me- i have AS, (never a dull moment in our house-i tell ya!!)

We get almost zero support and have to totally rely on each other and our counsellors!!!!
Which can make me get very down-but i soon pick myself back up again and of course---i have my friends on MN, who have kept me sane over the last year

Thanks to you Smile

Saker · 06/06/2006 22:41

I'm 36 and married, living in Cambridgeshire. We have two children, both boys. The eldest is six and is neurotypical, the younger is nearly five and has autistic and dyspraxic traits although no diagnosis. He goes to a special needs unit attached to a mainstream infant school. He has difficulties with speech, language, comprehension and social communication problems. He also has a lot of problems with his gross and fine motor skills - so for example, he cannot yet feed himself very well with a spoon, cannot take his shoes off, struggles to open doors, cannot jump etc. Although he is clearly behind he is not too bad in terms of behaviour and we are able to do things like go to restaurants, bowling and even the cinema although we have to plan these visits carefully.

We are just at the beginning of a RDI (relationship development intervention) program for him.

tobysmumkent · 06/06/2006 23:16

Ok, I'm 38, from Kent (grew up in Cheshire). Married fo 11 yrs. Mum to DS1 (8yrs old and NT) who is lovely, quite a mother hen type and who is a brilliant big brother to my 4 yr old DS2 (he's helped DS2 start off with PECS and learnt Makaton, plus endless playtime energy).

DS2 has ASD, is nonverbal (but is starting to use language at a 2/3 word level that I can understand but isn't very clear!). He has just about every area of difficulty that comes with ASD and his main obsession is with lines - especially telegraph poles, signposts etc etc. He has frustration/tired tantrums, headbangs but has also become much more willing to cuddle recently!

He goes to mainstream nursery 3 afternoons with support and local special needs preschool 2 mornings, and will be starting f/time at the special needs school in Sept.

I childmind one day a week and spend the rest of my life being a schoolrun taxi, cleaner, etc etc!!!

And I'm another one who probably spends too much of the little spare time I have scanning Mumsnet :)

eidsvold · 07/06/2006 03:46

i am the token foreigner Wink I am an aussie who went to England to teach and travel. Met dh - did lots of teaching not so much travelling outside the UK.

Whirlwind romance, married and honeymoon baby - dd1. Been together 5 years - married for 5 later in the year.

Have 2 dds - one born in England - ( like her dad ) one born in Aus ( like her mum).

Eldest is 4 soon. She has down syndrome and a congenital heart defect which has been corrected with surgery at 8 weeks old. We knew she would have the heart defect and in all probability Down syndrome.... at 20 weeks pregnant. When we left the UK just 2 years ago - dd1 knew 1 makaton sign and was not crawling or walking etc. She graduated to bum shuffling and has been walking for almost a year. She is signing so much and we are getting some phrases such as juice ( or whatever) please mum/dad etc. She is just sooo verbal and her language has just exploded. She attends a sn unit for two mornings a week and two days a week at mainstream kindy.

Dd2 is 18 months old and NT although picking up dd1's cheeky habits. Lots of talking which encourages dd1 and some walking - however reluctant.

Dh was an information manager for the NHS before we moved/emigrated to Aus and he now does the equivalent here in the Children's hospital.

I was a high school history and english teacher in a former life and am hoping to do my masters so I can go into early childhood sn... big changes to early childhood education and desperate for sn teachers - so looking into scholarships etc to help with fees.

Lived in Essex - Southend area and then Danbury - village outside Chelmsford. Dh originally from Rochester area in Kent. We now live in Brisbane Australia

Okay enough said.

eidsvold · 07/06/2006 03:48

what do I like when not chasing around after monkeys - cross stitching, sewing, we are redecorating the house - takes up time. Am liaison parent for down syndrome parent group as well as new parent support person for my area.

otherwise - sleep!!

kitegirl · 07/06/2006 05:34

I have not posted on this forum much as we have just started the journey in this world.. but here goes

I am 34, a SAHM, live in London with DH, one son 2.3 and another due August. DS was diagnosed with ASD last month, he has speech and language delay and some problems with social communication, but he is now doing so well and learning new words every week (yesterday it was 'digger'!). He likes to be in his own world but he is also very loving and has a great sense of humour and loves having a giggle with his friends. He loves running on the beach and throwing stones into the water, he is really into animals and cars and stickers and loves watching Nemo.

Me - when I am not pregnant I love kitesurfing and snowboarding, and girly things like clothes and gossiping with my friends in cafes. I have found MN such a treasure trove of information and support over the past few months and will be coming back for more for sure (just starting to wade through the archives re MMR....)

springgreens · 07/06/2006 08:02

I'm fairly new to mumsnet too, but have to say that it has been the single most useful source of information and support that I've found since my son was diagnosed with ASD 2 years ago.

My ds is 4 in September and is wonderful. He is vocal - on a single word level, and uses PECS really functionally. His passion has always been books - being extremely visual. He attends a mainstream playgroup with 1:1 support and a specialist nursery. I have recently started a Verbal Behaviour home programme for him that feels like a really good thing to be doing for us. Ds has moderate-severe learning difficulties.

I'm a single parent and also have a long history of depression. I normally keep this to myself though, as I've found that the health 'professional' focus on helping me rather than my son, when it's him not receiving the help he needs which is usually the cause of any bouts of poorlyness these days!

Aside from working with my boy. I am an artist for a local studio painting my designs onto china. Like you, I used to make cards when ds was a baby.

I like gardening and rabbits and music. I'm 29.

Thanks for this thread.

yawningmonster · 07/06/2006 08:27

Hi I am 34 with ds 20mths. Live in NZ with dh of 12 yrs. DS was born with a bowel disorder which has resulted in surgery,constipation alternating with diarhoea, food intolerances, distention, poor digestion, pain, failure to thrive and has caused some slight developmental delay due to his stomach muscles recovering from surgery. MN is an absolute godsend as far as we are concerned. My backround is as and Early Childhood Teacher and I now work part time facilitating parenting courses for new parents.

macwoozy · 07/06/2006 09:04

Good idea redbullSmile
I'm 36, live in Hampshire and have a 6 year old ds who has ASD. He's in MS and has 1:1. He has an enquiring mind, constantly asking questions about cars, fortuntely his dad works in the car trade so he's always bringing him up to date with new models.

Ds is socially far behind his years and can become very anxious and aggressive in particular situations, he has been described by his SALT as having a severe social communication difficulty, although he doesn't seem to have a problem getting just want he wants from me! He has real food issues, very sensitive to smells and every mealtime is a battle, he doesn't sleep through the night yet and still shares our room Blush He has got a remarkable memory, and can remember detail of events of several years ago. He's a hyper little boy with very short concentration although you wouldn't think so when he sits in front of his playstation. He's also makes me laugh so much with his unintentional witty comments.

Moi? Well I'm an ex publican but ds put a stop to that, so now I'm a SAHM with too much time on my hands. I have a little white maltese dog and a rabbit that we bought a few months ago, much to the dog's horror rabbit is getting slightly amorous with him just latelyShock

springgreens · 07/06/2006 09:40

Yes! Another rabbit lover! I had one that was into dogs too - so funny....:)

lucyep · 07/06/2006 12:26

I am 36 and married to a wonderful man who puts up with loads. 2 children from 1st marriage 3 from 2nd ages: 15, 12, 6, 4, 2.5.

dd2 has very severe congenital heart disease, no spleen and has lots of other bits wrong. She is now on the Active Transplant List and is waiting for a heart, operation will take place at Great Ormond Street if it happens. She has so far been waiting six months. Her name is Lucy (not mine lol)

We live near the South Coast, only a couple of miles from the New Forest. Have a dog, cat and 3 rabbits.

Lucy is statemented for 25 hours a week at school and has one to one care. Enjoys school as and when she can go. At the moment is managing full time around all of the hospital appys. Will be up in London for a while next week as she has to go for another assessment to see how quick she is deteriorating.

Love Mumsnet, although mainly only read, hardly ever post. Member of a few Heart Groups and Charities. Am area contact for the South for Little Hearts Matter.

macwoozy · 07/06/2006 12:54

Good luck next week at GOS lucyep, what a terribly anxious time for you. I just can't imagineSad

earthtomummy · 07/06/2006 13:18

Hi, this is a great idea. I'm 36 and live in Notts - moved here 2 yrs ago from London and planning a final move to the SW next yr. I have a wonderful DH and 3 beautiful children - the eldest, my DS, is 5 and as of yet has no diagnosis, but we are in the middle of this interminable process. He has ASD traits and dysprxic traits. He gets support at school with fine/gross motor skills and social communication. He is fantastic and funny and loves sealife, esp. pacific giant octopuses at the mo! DD is 3 and copies some of DS' behaviour which can make life exhausting and DD is 15 mos. I just realised today that this is the 1st summer since 1999 that I've been neither pregnant or breastfeeding and it does feel good! I used to be a social worker in adult mental health and DH works in child and adolexcent mental health and is training to be a family therapist.In bet. all the babies and school run stuff I love reading (we're setting up a bookclub here right now) and cooking. I'm also really enjoying growing my own veg. this summer. It is so nice to hear a little bit more about you all. Some of your names I recognise and you have given me lots of support in my more upset and angry moments. Thankyou.