Does anyone have experiences with them. Ds had been I guess developing them for over a year. He generally has then monthly, goes grey and absent with lip smacking and garbled mumbling, big sleep and fine (well apart from the 2 generalised seizures). But each time he has a absent seizures over the last months they seem to be increasing in duration, so he will have his sleep then have another one etc this happened on Friday and lasted almost 24h, 18h before that and 9 hours, takes a while before he can function properly again, and seems to enhance his asd, if that makes sense. His on carbamazepine 200mg at day twice. His paed suggest we change I agree.
I do not know if the drugs are meant to stop the seizures or just prevent generalised ones. Rang the consultant today, he away, secretary away, other consultant away. Back end of month. Feeling a bit useless, as don't know what to do really.