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MRI for a baby, experiences? No sedation at 7 months

36 replies

childcarehell · 07/07/2013 22:20

DD, 7 months, is to have one. The plan is to feed her to sleep and sleep through it. I'm wondering how likely this is. She's an ok sleeper but not sure if it's a mad idea? Looking online they make a fantastic noise.

I'm not sure, now I've agreed to it on the spot, if it's the right plan. She's a happy baby but her left arm is tight, tends towards fisting but is functional. Very very difficult to move up. The left leg is weaker too, she holds it up or rolls her foot rather than weight bear on it. Her right arm is tighter than normal, but subtle. She can use this arm better, more accurate picking up things and can use it to balance. Less wild whole arm movement too. Her general development is mildly delayed, not yet rolling, only last week lifted her head whilst on her front. Otherwise she grows well, starting on solids too (spoon though, she can't get objects to her mouth).

I'm wondering as to the benefit of an MRI/ the likelyhood of finding an issue.

I'm not sure as to the implications of her symptoms, I'm torn between thinking there's an issue and thinking she'll grow out of this. At the back of my mind is cerebral palsy, but I'm wondering if muscle tightness (paed said 'rigidity') can reduce. The thing that threw him is that I said it's crept up on me, she was a floppy baby in my opinion before.

Thank you in advance for responses, I'm hoping this is a place where's there is experience.

OP posts:
MumuDeLulu · 21/07/2013 22:05

If paads sec won't give you the info, ask her to get the consultant to write to you. Or (even better) to fax it to your GP who can talk to you about it.

childcarehell · 22/07/2013 11:42

So you think I'm having too much faith in presuming they'd contact me if it's not clear?
It's all a new world. The one time ds saw a consultant they wrote back to my gp and I received a copy. Does every doctor have a secretary, or do you just contact outpatients?
I'm getting a gut feeling the mri is clear tbh, she's a bit delayed but only in motor skills and her range of movement has improved. She's able to reach out now and there seems to be less resistance in her muscles. My main concern is just how weak her arms are, it's what I think is causing the motor delay. She can't raise up or use them to support her sitting or even lift some toys. She's starting to sit briefly but without using her arms other than to wave them for balance, rather than use them to prop

OP posts:
vjg13 · 22/07/2013 20:28

Better IMHO to get hold of the consultant's Secretary/PA and see if the results are back then get a follow up appointment via out patients. In an ideal world you would be contacted but unfortunately being pro active is the only way to be sure nothing has been missed. Good luck.

MumuDeLulu · 23/07/2013 17:56

They may contact you soon just to say it's ok, but it varies. By and large, if 'something needs doing' you'll get a call. But not always if its to discuss/ inform about findings (or lack of)

sneezecakesmum · 23/07/2013 19:06

The consultants secretary of course can't give you the results, but she can liaise to get you an earlier appt. it's not right at all to wait until December. I doubt they would write to the gp with the info as they are not experts in neurology or CP but its worth suggesting all the same, because if its negative it wouldn't need interpreting iyswim. It's a definite plus to be proactive in this game. Tbh it sounds very good with your DD making the progress, but you really need the peace of mind wrt the scan.

childcarehell · 24/07/2013 13:10

I'm going to ask the GP for advice on this as I've booked an appointment anyway. She's turning her thigh out, won't weight bear at all on that leg and seems to have developed uneven folds.

Thanks all.

On the plus...she's sitting (like a drunk chicken...)

OP posts:
childcarehell · 07/08/2013 14:03

I was back from holiday and I rung the secretary, the doc hadn't yet requested the report so she printed it to put on his desk. He's on holiday until the end of the month and she couldn't say on the phone if there was an issue but said he will ring when he's back about any issues. But I won't know if he doesn't if he's forgotten again I guess or if there's no issues.
You end up second guessing and wondering if she'd tell you if it was clear or wouldn't say he'd ring #paranoid!

OP posts:
MaccaPacca123 · 07/08/2013 23:04

Go on. Get her to fax it to the GP. It'll probably be normal or minor changes. And even if there's something rare /weird / hard to understand, they'll help. GP doesn't need to be a professor of MRI-intepreting to discreetly google and translate into English for you.

notapizzaeater · 09/08/2013 00:16

I'd keep chasing. Maybe your doctor has seen a copy of the scan. ?

salondon · 20/08/2013 11:38

I would also push to get the scan on electronic media. Not many paed neurologists read the scans well and you might want a second opinion

Qwerty93 · 29/01/2022 09:32

Hey! Any update? Exact same with my little one

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